Other caregivers, how do you cope?

DefinitelyNotAFae
2023-06-30T11:22:42Z

Hey all, my partner is newly paraplegic post spine surgery and while he's been disabled through our ten years together this is new. He's using a power wheelchair and has to transfer by Hoyer lift. And in the six days since he was discharged from the rehab (PT and OT) hospital he's been to the ER twice. We have home health set up. But all of a sudden my life is a lot more... Stressful is understating it. He's going through his own emotional journey and getting support so I was hoping to find some connections, suggestions and the like here.

Right now I'm feeling a ton of pressure not to let any of the various balls I'm juggling drop. Something that feels unsustainable, particularly with my ADHD. I feel like I'm only getting this far due to stress compensating for my lack of medication (it's packed from our recent move, I'll find it or get a new script I just haven't yet). My partner's in a rush to get a wheelchair van and I don't know if we're making a good purchase and it feels like everything has to be handled right now but also for the rest of our lives.

Are there devices that are must haves? Things I need to know about wheelchair vans? Empathy from fellow caretakers?

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