I'm a longtime lurker and I haven't yet seen a discussion thread on lived experiences with long covid. I'm assuming I'm not alone and am wondering if anyone could share their experiences and tips for recovery.
Right now I feel like the world is closing in around me. I'm in month four. The symptom I am struggling with the most is an inability to do physical exertion, which triggers a range of debilitating symptoms that last for up to a week. Unlike most long covid sufferers, I get post exercise symptoms immediately after I do activity (others seem to get theirs 24-48 hours after). This is great for knowing my triggers, but I am finding that the trigger threshold is rapidly decreasing over time. In the first month (the month after infection) I discovered I couldn't manage a casual walk. In the second, I found I could walk for around 5 - 10 minutes at a time, but slowly. In the third, I had to stop leaving the house entirely. Two weeks ago, I started having trouble doing my washing and chores. This week I'm struggling with showering and moving up the stairs to where I work/sleep. I don't know if I've hit rock bottom yet and it's pretty scary. I'm going through the process of suspending and reducing my work responsibilities drastically. All the plans I have for the future and progress I had made towards a promotion are off the cards.
I was not terribly active before Covid, but I know about pacing so have been trying to take it easy. I also have had chronic illness over the past decade, so I am very familiar with how mystery illnesses are generally treated in conventional medicine. I also understand those who have pre-existing conditions who see that long Covid is getting a lot more attention (and therefore funding) than before. I hope that research comes out of long Covid will also help those who have these other neglected illnesses.
I've had to stop myself browsing the covidlonghaulers subreddit because it can get depressing. But from what I have seen, many people tend to get worse in months 4-8 and then start to improve after a year. A lot of people seem to get better after 20 months, but there are those who are still long hauling after getting the virus in 2020. I know from experience that time in conjunction with many small cumulative efforts to promote well-being is an excellent remedy.
Has anyone had any success with getting through long covid? I am trying to focus on meditation, breathing exercises, resting, nutrition, and sleep hygiene. So far I haven't had any success am continuing on a downward spiral. I haven't yet tried fasting (e.g. the autophagy protocol), an anti-histamine diet (I'm on keto/anti inflammatory), or supplement regime (there are so many things to try that I don't know where to start).
My thoughts are with anyone else out there with long covid or other illnesses besides, and I hope to hear from you.