12
votes
Some patients could be living with the aftereffects of Covid-19 for years to come. Recent research into chronic fatigue syndrome might help us understand how to treat them.
Link information
This data is scraped automatically and may be incorrect.
- Title
- What If You Never Get Better From Covid-19?
- Published
- Jan 21 2021
- Word count
- 7815 words
I hate that it took a massive, deadly pandemic with potentially lifelong consequences for survivors for people to finally care about my disabling chronic illness.
I've been sick for over 15 years, so I'm a little doubtful that long COVID research will help me personally, since everyone involved in this new cohort has only been sick for one year at most. But after 40 years of people calling CFS/ME "yuppie flu" and "false illness belief," maybe this will help fight the dismissal these diseases get from so many doctors. (I'm not entirely sure, though. I've seen doctors with long COVID say, "I'm actually sick, this isn't just post viral fatigue," which suggests some folks will ignore the similarities even when faced with the symptoms themselves...)
This has been an ongoing development I've been watching since the studies out of China. I think this is something that has not received enough media attention. This is exactly the kind of information people who are hesitant to get the vaccine need to see. Do you really want to roll the dice on such a high chance of some sort of chronic issue on account of COVID? Let's all just get vaccinated, please đŸ¥º
This was also the kind of thing I had in mind when trying to convince family to take this seriously, weeks before it hit the US in early 2020. People zero'd in on the mortality rate, which is both an attention-grabbing and easy to understand metric for measuring how "bad" a disease is. What seemed clear early in the pandemic was that we didn't know anything, and the virus was going to grow far more quickly than our understanding of how it worked and it's long term effects.
FFS we're not that many generations removed from when the polio virus was just an every-day fact of life for people. Polio's mortality wasn't that high, but it had potential life-long effects.
Related, an NYT reporter with a personal story of fighting long covid:
My ‘Long Covid’ Nightmare: Still Sick After 6 Months