Sunday morning musings no. 2 How to be nice but authentic to people who seem decent but whose jobs seem to be a big part of the problem?

NoblePath
Sun, 02 Mar 2025 14:25:14 +0000

I recently was at a brunch with a friend and their friend. Their friend works at a startup who buys, very cheaply, pictures of mammograms from hospitals, something something AI anonymization, and resells the data to ‘researchers’. I asked several things, for example, what responsibility does her company have for breaches or failures to protect identity? Her response: we have reporting requirements.

In my mind, that something like this exists at all is a complete social failure and consequence of hypercapitalism. The goal of using hospital data for research is obviously a good one. But in my mind, that data should not exist in a non-anonymous way outside the control of the hospital, and, in its anonymous form, should be available to all researchers for free. It seems obvious to me the best way to innovate real solutions is to get as many smart people as possible researching the data, and not just those who can afford it. Less obvious, but still problematic: if we limit the availability of the data to those who can afford it, we are limiting the availability of the data to those whose primary incentive of research is profit, as opposed to public interests like health.

I’m very tired of pretending for the sake of equanimity that this work is somehow OK. But neither is it productive to be argumentative at brunch. I guess one approach is simply to say, gee that’s swell and move on to a different topic, or just not ask people about their work at all. But I’m a prophet, I feel compelled to tell the truth, and sometimes to an unhealthy degree make people feel uncomfortable.

I don’t know what the solution is, it’s one of the reasons I went to divinity school: to gain access to a potentially practical platform for advocating meaningful change. But the problem is so well integrated and so insidious. Am I doomed to always be in isolated despair?

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