5 votes

A startup company says it will give people free genome reports if they’re willing to answer detailed questions about their health, drinking habits, and more

4 comments

  1. clone1
    Link
    At least they're up front about it. Selling my genetic information makes me uncomfortable, though.

    At least they're up front about it. Selling my genetic information makes me uncomfortable, though.

    7 votes
  2. dainumer
    Link
    Here’s a bit more info on how Nebula’s platform will initially work: Users will fill out questionnaires that ask about traits such as personal and family medical history, Obbad says. Down the...

    Here’s a bit more info on how Nebula’s platform will initially work: Users will fill out questionnaires that ask about traits such as personal and family medical history, Obbad says. Down the road, the company might also ask individuals to share information about their dietary habits or upload data from wearable devices such as a Fitbit, he says. Sharing that health information will earn the users credits that, once they accumulate enough, can be exchanged for personal genome sequencing services. Nebula is betting that pharmaceutical companies and healthcare researchers will be willing to pay for users’ sequencing costs in order to access their health data—which will be anonymized—through Nebula’s online marketplace.

    Some thoughts on this:

    This startup is run by Harvard University professor and genomics pioneer George Church, so that's a plus.
    It's $99 up front and you get credits back, which I think is good for enrolling lower income people who tend to be underrepresented in medical research.
    The potential downside, as with any company that works with health data, are the potential privacy breaches and unforeseen unintended consequences.

    3 votes
  3. jlpoole
    Link
    This will be wildly successful, e.g. the next Facebook. (Thank you CIA for underwriting this.)

    This will be wildly successful, e.g. the next Facebook. (Thank you CIA for underwriting this.)

    2 votes
  4. nsz
    Link
    So apparently they won't even do an accurate sequencing Not really sure how they are going to use this data and it seems kind of pointless to run the test from a user point of view. Data about my...

    So apparently they won't even do an accurate sequencing

    “If you want health or medical information, this is not the solution for you.”

    Not really sure how they are going to use this data and it seems kind of pointless to run the test from a user point of view. Data about my height, eye colour and ancestry I already have just by looking in a mirror.