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A startup company says it will give people free genome reports if they’re willing to answer detailed questions about their health, drinking habits, and more
Link information
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- Title
- A new personal genome test is free, but only if you bare all about your life
- Published
- Nov 15 2018
- Word count
- 331 words
At least they're up front about it. Selling my genetic information makes me uncomfortable, though.
Here’s a bit more info on how Nebula’s platform will initially work: Users will fill out questionnaires that ask about traits such as personal and family medical history, Obbad says. Down the road, the company might also ask individuals to share information about their dietary habits or upload data from wearable devices such as a Fitbit, he says. Sharing that health information will earn the users credits that, once they accumulate enough, can be exchanged for personal genome sequencing services. Nebula is betting that pharmaceutical companies and healthcare researchers will be willing to pay for users’ sequencing costs in order to access their health data—which will be anonymized—through Nebula’s online marketplace.
Some thoughts on this:
This startup is run by Harvard University professor and genomics pioneer George Church, so that's a plus.
It's $99 up front and you get credits back, which I think is good for enrolling lower income people who tend to be underrepresented in medical research.
The potential downside, as with any company that works with health data, are the potential privacy breaches and unforeseen unintended consequences.
This will be wildly successful, e.g. the next Facebook. (Thank you CIA for underwriting this.)
So apparently they won't even do an accurate sequencing
Not really sure how they are going to use this data and it seems kind of pointless to run the test from a user point of view. Data about my height, eye colour and ancestry I already have just by looking in a mirror.