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27 votes
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At the end of our ropes
I’m here to ask the community for help. I know we’re a neurodiverse bunch, so I’ve got good hopes somebody can relate to this. My son is currently 16 and has always struggled with basic tasks....
I’m here to ask the community for help. I know we’re a neurodiverse bunch, so I’ve got good hopes somebody can relate to this.
My son is currently 16 and has always struggled with basic tasks. He’s gone through many tests and trainings when he was elementary school, but executive functions remain a challenge. From previous tests, we know he has an IQ of over 145. Back when he was tested, the psychologist advised to change his school curriculum to get him more engaged. This has partially worked: he’s been having more fun at school and has had some really cool academical achievements. But his struggle with basic day to day tasks and school work remains the same, and keeping focus is by far the most problematic part of it.
With going to middle school came owning a phone and iPad. From day one, these do get his full attention. Me and my son are much alike when it comes to obsessive behavior, so I sometimes feel like I’m looking in the mirror when I see him with his phone. I too can lose myself in a game and binge it in a weekend. But for me, it isn’t 24/7. I can turn it off when it needs to be off. So I’ve always been strict with rules about screen time for him, but these rules have gone out the window in the last 2 years. There has been lying, sneaking and hiding to increase screen time. It has had a negative effect on our family and it’s draining to have to deal with this daily. I think that’s why we’ve somewhat given up on it, it was impossible to keep in check.
In the past 3 years, he has started to really experience the negative impact of his challenges. We’ve attempted to help him plan his days, to plan his school work, to do chores in the house. But nothing seems to stick and he gets frustrated with himself and it is affecting his mood. In an attempt to find out more about what is causing his difficulties with basic tasks, we’ve asked a psychologist to look into AD(H)D. After an assessment, they’ve now come back with their findings. According to them, it cannot be AD(H)D because he can focus on things he likes (a board game was their example). Their rationale is that people with ADHD cannot focus on any task, even if they like them. They are saying it is his IQ, that he’s too bored to focus on basic tasks. According to them, he should force himself to do menial tasks and that we should be there to enforce this with rules and praise. Like we haven’t tried this already without any results. To say that I’m disappointed and furious about this outcome, is an understatement. It leaves us dead in the water and this makes me feel hopeless.
I’m hoping to gain some insights by reading your comments. This attempt might point us in a new direction, because I’m fine if it is something entirely different than ADHD. I just really want him to feel better.
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Apparently I'm autistic?
My son shares a lot of my traits, including being Gifted. He's in kindergarten now, and we were looking into getting him a IEP (individual education plan) because he's Gifted. In doing so though,...
My son shares a lot of my traits, including being Gifted. He's in kindergarten now, and we were looking into getting him a IEP (individual education plan) because he's Gifted.
In doing so though, someone brought up that it might result in an ASD diagnosis essentially - and they were right. Haven't had the formal test yet, but a lot of what I considered "idiosyncrises" in my son are also found in autistic individuals. Some of which I share. I have little doubt in the ultimate conclusion, which is that he's 2e (twice exceptional).
And it seems quite likely I am as well. It's gonna be a niche audience, but anyone in a similar boat? It feels weird looking back and (at 34) retroactively realizing why I do certain things the way I do.
Edit: I should add - it didn't really 'matter' to my development because I was Gifted. I can learn whatever, pretty darn fast. So I just taught myself social stuff, on purpose, when I was in high school and college. It takes a lot of effort on my part, but I can be "charasmatic". I ascribed the effort to my general tendency toward introversion, but it may have been, essentially, the mental cost of masking.
Edit2: oh man I even went out of my way to try and alter my personality towards more extroversion in college because it seemed more normal.
Edit3: and I taught myself to understand body language in high school, particularly to understand and help with reading girls I liked, and how they were reacting to various levels of flirtation.
Edit4:
My spatial sense is god level. My wife doesn't bother remembering where the car is, because I just know.My audition is similarly unrivaled, I hear things others don't, and my phonological loop is amazing - I can hold audio in my head for a time if I'm truly concentrating on something else.
My imagination is virtually non-existent, I'm nearly a complete aphantasia case - the best I can ever manage is a pulse of a 2d image, kinda.
I'm incredibly good at math, computer science, etc. I know more about science than... anyone else I've met.
I've never really felt like I didn't belong, though. I just learned how to be an effective communicator from books and videos. I almost feel like I have weaponized ASD.
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