...and people wonder why the UK Citizens are absolutely against any form of centralised database on our medical data? It's such a good idea. But the absolute sentient clown car(s) at the top of...
...and people wonder why the UK Citizens are absolutely against any form of centralised database on our medical data?
It's such a good idea. But the absolute sentient clown car(s) at the top of organisations just can't help themselves and their greedy little fingers. There needs to be accountability and actual declared usage that isn't buried in legalese or just a clickthru. Which you'll just get people shrugging at regardless because it adds complexity to an already exceptionally complex and difficult life.
I keep inching more and more towards the idea of a fundamental digital passport. A unique identifer that companies, organisations and institutions must record when they interact with any customer. That way you can see what your data is used for and by whom. It also gives you a "I don't want THAT company" holding my data and then goes back and ensures that it's deleted.
But that requires trust on the behalf of a single citizen against huge organisations, and that's rather lacking in the UK at the moment. Let alone the required legislation to comply with such behaviour.
It also has some rather interesting privacy issues.
All nicely spread out amongst GP services. I have a friend who works for the NHS and they have a similar problem. The frustration is just how easy it would be to consolidate and secure this data...
All nicely spread out amongst GP services. I have a friend who works for the NHS and they have a similar problem.
The frustration is just how easy it would be to consolidate and secure this data correctly. But it ALWAYS gets done the wrong way and ends up costing billions because 'consultants'. Rather than actually just getting a few bright people and demanding that GPs do things the right way.
This is what makes me so mad. I've considered signing up to donate my health information to this organisation before, because I do believe that it can be really valuable. I'd love to see a world...
This is what makes me so mad. I've considered signing up to donate my health information to this organisation before, because I do believe that it can be really valuable. I'd love to see a world where millions (billions?) can donate their health information safely and securely to science, resting assured that it will only be used to further research and healthcare. But I didn't donate, and I know so many others haven't because the sad truth is these organisations cannot be trusted. It really makes you wonder what kind of world we could live in if we weren't so driven by greed.
I think the part of the issue is that we haven't seen the same kind of enthusiasm for dragging malicious actors through the courts as we have in other countries, e.g. Austria.
I think the part of the issue is that we haven't seen the same kind of enthusiasm for dragging malicious actors through the courts as we have in other countries, e.g. Austria.
Never going to get that with the current clownshow in charge unfortunately. They love this type of thing as it gives some competition (read: their guys at the top) the edge they want them to have....
Never going to get that with the current clownshow in charge unfortunately. They love this type of thing as it gives some competition (read: their guys at the top) the edge they want them to have.
That being said, it could be drastically less complex than that. They're just incompetent and would never do anything for the actual people affected.
...and people wonder why the UK Citizens are absolutely against any form of centralised database on our medical data?
It's such a good idea. But the absolute sentient clown car(s) at the top of organisations just can't help themselves and their greedy little fingers. There needs to be accountability and actual declared usage that isn't buried in legalese or just a clickthru. Which you'll just get people shrugging at regardless because it adds complexity to an already exceptionally complex and difficult life.
I keep inching more and more towards the idea of a fundamental digital passport. A unique identifer that companies, organisations and institutions must record when they interact with any customer. That way you can see what your data is used for and by whom. It also gives you a "I don't want THAT company" holding my data and then goes back and ensures that it's deleted.
But that requires trust on the behalf of a single citizen against huge organisations, and that's rather lacking in the UK at the moment. Let alone the required legislation to comply with such behaviour.
It also has some rather interesting privacy issues.
Not to mention how difficult it can be to even have a copy of your own health data.
All nicely spread out amongst GP services. I have a friend who works for the NHS and they have a similar problem.
The frustration is just how easy it would be to consolidate and secure this data correctly. But it ALWAYS gets done the wrong way and ends up costing billions because 'consultants'. Rather than actually just getting a few bright people and demanding that GPs do things the right way.
This is what makes me so mad. I've considered signing up to donate my health information to this organisation before, because I do believe that it can be really valuable. I'd love to see a world where millions (billions?) can donate their health information safely and securely to science, resting assured that it will only be used to further research and healthcare. But I didn't donate, and I know so many others haven't because the sad truth is these organisations cannot be trusted. It really makes you wonder what kind of world we could live in if we weren't so driven by greed.
I think the part of the issue is that we haven't seen the same kind of enthusiasm for dragging malicious actors through the courts as we have in other countries, e.g. Austria.
Never going to get that with the current clownshow in charge unfortunately. They love this type of thing as it gives some competition (read: their guys at the top) the edge they want them to have.
That being said, it could be drastically less complex than that. They're just incompetent and would never do anything for the actual people affected.
Does this article read oddly to anyone else? Like it was put together by AI? I feel like some segments are oddly repetitive.
I had the same feeling and it's not something I'm used to from The Guardian.