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8 votes
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Domestic abuse experts to be embedded in emergency response control rooms in England and Wales
11 votes -
Getting shorter and going hungrier: how children in the UK live today
17 votes -
UK's NHS cannot embrace AI until its basic IT systems are up to scratch. Prof Sir Martin Landray: clinical IT functions are slow and ‘devastatingly user unfriendly’
20 votes -
Algorithms are deciding who gets organ transplants [in the UK's NHS]. Are their decisions fair?
21 votes -
mRNA melanoma vaccine halves the risk of death and recurrence
16 votes -
UK's NHS computer problems put patients at risk of harm
5 votes -
A British nurse was found guilty of killing seven babies. Did she do it?
19 votes -
Critical psychiatry and the political backlash against disabilities: a closer look at James Davies
11 votes -
The fight for abortion pills – In the US, UK and around the world, the backlash against safe, at-home abortion medication is growing
26 votes -
Britain’s future is being compromised by the massive increase in long-term sickness among the working age population
9 votes -
UK's NHS faces legal action over contract with data firm Palantir
12 votes -
Rickets, scurvy, measles and scabies are increasing in the UK alarming health experts
18 votes -
Rare genetic mutation allows woman to feel no pain
17 votes -
Aripiprazole (Abilify and generic brands): risk of pathological gambling
14 votes -
Can doctors in England detain you under the Mental Health Act if they've only met you in MS Teams? (No, not any more)
14 votes -
London hospital cuts waiting lists with innovative system
28 votes -
United Kingdom Prime Minister Rishi Sunak reportedly said 'just let people die', COVID inquiry hears
39 votes -
Novo Nordisk suggested to senior UK government officials that they could “profile” benefit claimants – those who are most likely to return to the labour market
17 votes -
Private UK health data donated for medical research shared with insurance companies
30 votes -
Nicholas’s story: ‘I’ve been locked up for ten years because I’m autistic. Is a chance at life too much to ask?’
32 votes -
Denmark topped a list of worst binge drinkers in a new health report from the OECD – Romania and the UK next worst offenders
9 votes -
The happiest man in the world
14 votes -
Scottish officials approve UK’s first drug consumption room intended for safer use of illegal drugs
30 votes -
UK Prime Minister Rishi Sunak considers banning cigarettes for next generation
36 votes -
Multiorgan MRI findings after hospitalisation with COVID-19 in the UK (C-MORE): a prospective, multicentre, observational cohort study
3 votes -
Ministers set to ban single-use vapes in UK over child addiction fears
30 votes -
Centene to sell GP clinics and hospitals in exit from UK market
14 votes -
I don't feel like a cancer patient
Last year (June 2022) I was diagnosed with colorectal cancer. I had surgery (which left me with a permanent stoma) and I had a bit of adjuvant chemo to kill off any remaining cells. I've been...
Last year (June 2022) I was diagnosed with colorectal cancer. I had surgery (which left me with a permanent stoma) and I had a bit of adjuvant chemo to kill off any remaining cells. I've been discharged from oncology, and I've started my 5 year surveillance. Staging is complicated but my I was pT3pN2bM0 (tumour was stage three, I had lots of lymph node involvement, but no metastasis).
Alongside that I've had problems with gall stones, starting in April 2022, and ending this year when my gall bladder was removed.
When I tell people about the cancer they pull on their serious face and say things like "oh no how awful hope you're okay glad to see you're doing so well now it's good news that you're in remission", and when I tell them about the gall bladder they're kind of baffled and not at all concerned.
But here's the thing: cancer was not such a big deal. I do have a permanent stoma, but for some reason my brain has disconnected that from being a cancer thing. I had a relatively gentle chemo regimen (short, and it was CAPOX which is less rough than other meds) -- don't get me wrong, chemo SUCKED, and left me with neuropathy in my feet, but I got through it. When I compare that to repeated[1] hospitalisation for cholangitis (a gall stone stuck in a bile duct causes bile to back up and that causes pretty severe problems), well, those repeated hospitalisations were a much bigger deal for me.
English NHS hospitals tend to have dorm wards. In the ward I was on there were 6 beds to a bay, and 5 bays to the ward, and then a further 6 or 7 single occupancy rooms. Some of the bays were smaller, and had 4 beds. Once the hospital was very full, so I spent a night in a bed (proper bed, not a trolley) but in the ward corridor. I spent over 60 days in hospital for the gall bladder stuff, and just 7 as an inpatient for the cancer. (And Sartre was right, hell is other people ).
There are lots of health forums online and I always feel deeply uncomfortable in the cancer forums. I feel okay in the ostomy forums[2], but I don't use them because they're all a bit odd.
I dunno what the point of this post is. Maybe it's "sometimes cancer is treatable and the person isn't particularly bothered by it", or maybe "people with cancer want support, but sometimes that support won't have anything to do with cancer".
[1] When a stone gets stuck they need to do some emergency work to stabilise you and remove the stone. And if you keep getting stones stuck they want to remove your gall bladder. There's some discussion about when to take the gall bladder out. Hypothetical Bob has a stone stuck - you stabilise him, so do you take the gall bladder out then (when he's still recovering) and then monitor him for a few days and discharge him home to fully recover? Or do you stabilise him, then discharge him home to recover, and call him back for planned surgery to remove the gall bladder? Evidence is inconclusive about which is best, so there's a bit of a lottery depending where you are in England. My local hospital took the later approach. The problem was that i) I had cancer, ii) My gall bladder was very active in kicking stones out and iii) we had several Covid pandemic waves causing huge disruption. These meant that by the time I had recovered enough to have the surgery, and they had a space on their surgical list for me, my gall bladder had kicked out another stone and that reset the whole thing again. They gave up this year and took my gallbladder out.
[2] Online health forums can have this really weird dynamic. English speaking forums are usually dominated by Americans, and Americans fall into 2 groups: 1) People with bad or no insurance and 2) People with good insurance. When someone says "I'm having this problem" the replies from the first group will all be along the lines of "go the the vet and buy this fish medicine" and the second group will be "here's a huge list of tests and products to use".
EDIT: I forgot to mention, I am in England, and so I am very fortunate because all treatment is free and a cancer diagnosis opens up quite a lot of support.
37 votes -
Neonatal nurse Lucy Letby found guilty of seven counts of murder, and seven counts of attempted murder in the UK
24 votes -
The UK NHS in crisis - evaluating radical alternatives
10 votes -
[preprint] Suicide after leaving the UK Armed Forces 1996-2018: a cohort study
13 votes -
Study on the health impact of snacking shows quality of snacks more important than quantity or frequency
24 votes -
Cochrane UK closes because funding has ended
11 votes -
The UK's NHS mental health review will fail to answer its darkest secret
12 votes -
Senior doctors back strike action in England
14 votes -
Does minimum unit pricing for alcohol cause or prevent harm?
9 votes -
Why suicide rates are dropping around the world
7 votes -
‘I got a brain injury and a life sentence’: The hidden legacy of male violence against women
3 votes -
One-hour operation could cure prostate cancer by destroying tumours with electric currents
11 votes -
European Commission contacted Swedish authorities after it emerged they were planning to deport a 74-year-old British woman with severe Alzheimers
4 votes -
UK girl with deadly inherited condition is cured with gene therapy on NHS
9 votes -
Semaglutide weight loss injections to be made available directly from pharmacies in the UK
6 votes -
Government refuses to fund UK students at new medical school despite ‘chronic’ doctor shortage
6 votes -
Cake in the office should be viewed like passive smoking, says UK food regulator
13 votes -
Critical incidents being declared across English hospitals
@Shaun Lintern: 🚨 @UHDBTrust declared a critical incident last night - cancelling all meetings and training to ensure clinical staff "are on wards and patient facing" pic.twitter.com/vLxUHwLZPD
14 votes -
What you need to know about Group A Strep (scarlet fever)?
5 votes -
Health in England 2015-2020
4 votes -
This man is allowed to starve himself to death, but not to eat some biscuits
9 votes -
Silent crisis of soaring excess deaths gripping Britain is only tip of the iceberg
6 votes