20 votes

Mental health support / discussion thread.

it's apparently been awhile since we had a proper one of these on tildes (we've had a few mental health related topics but nothing direct like this), and seeing as the site has grown a bit (to say the least) since the last one there's probably some utility in a new one of these. share your experiences/whatever you've found helps/etc. i think this is pretty straightforward.

18 comments

  1. [2]
    alyaza
    Link
    i normally do not have much to contribute to personal threads like this, but luckily i have plenty of fun experiences on this particular topic, so i can break the ice i guess. i live the wonderful...

    i normally do not have much to contribute to personal threads like this, but luckily i have plenty of fun experiences on this particular topic, so i can break the ice i guess.

    i live the wonderful reality of not being able to afford a diagnosis, therapy, or really medication of any kind under the glorious hellworld of a system that is american healthcare despite almost certainly having undiagnosed borderline personality disorder (in addition to diganosed generalized anxiety disorder, diagnosed autism spectrum disorder, and potentially some other stuff flying under the radar to the beautiful thing known as comorbidity). as you can no doubt ascertain already, this is fun to live, especially given that borderline is fairly severe if left untreated and has something like a 10% suicide rate.

    nonetheless, this is (and has been for the year and change now where symptoms have manifested themselves quite clearly) normally "manageable" insofar as nothing bad usually comes of it. actually for the past few weeks it's been... pretty quiet, relatively speaking? which is nice, because this semester is a clusterfuck and if i had to deal with this on top of what i already deal with it'd probably be cataclysmic since i'm already a gigantic trainwreck internally for a bunch of reasons that are complicated.

    enter today (technically yesterday, as of writing, since it's currently a little past midnight)! i don't think i have ever wanted to violently maim myself internally quite as much as today, and the best part is that i have no fucking idea what the trigger for any of this was. i've mentioned previously that i am capable of conjuring up quite violent images--and in this case, that really does not help because as it happens, one of the ways my feelings manifest themselves when they are wildly out of control is in gory or particularly painful acts of self harm. extremely fun. i'm pretty good about not acting self harm out because i am very averse to pain, but not acting the thoughts out doesn't exactly help that much when the thoughts themselves take forever to go away.

    at this point i'm fairly used to this, which is probably not good--but again, monetary concerns really constrain my ability to actually address any of this with the sorts of treatment you're supposed to get, so at least for the time being i'm basically just banking on things not going to total shit. we'll see how that goes, because the dice have not historically rolled in my favor on this one!


    as an aside to that, i increasingly find that i could probably just die and nobody would be particularly affected by that, which is weird. i know that's a oarticularly cliche line, but in my particular case my justification is that pretty much every friend group i exist in i have either left, been kicked out of, or seen disintegrate except one which has like, six people in it. most of the people i used to talk to on discord for example and have added? haven't talked to them in months, probably never will again. i slip in and out of groups so easily that it's laughable. i barely know any of the people i interact with and i have no connections with any of them. for all intents and purposes, just about every relationship i have is a parasocial one. i have zero actual friends outside of the internet and am a part of a whopping zero social groups in real life. i never had very many friends to begin with, but the few i did have pretty much aren't friendships anymore. insofar as it's possible, were i to die tomorrow, next to nobody would notice or particularly care--that's just the way the dice fall. if i was more susceptible to any kind of suicidal ideation, this might be problematic, but honestly i just find it sorta... strange? i almost have a detached view of it, honestly. it's complicated.

    on a more upbeat note: at least i'm not having panic attacks in the shower anymore! that used to happen a lot, and it was super fucking annoying. now it doesn't happen at all for whatever reason.

    6 votes
    1. cfabbro
      (edited )
      Link Parent
      People often say that, but rarely is it ever remotely true, in my experience. Having been to the funerals of several close friends in the last few years, I think the vast majority of people...

      as an aside to that, i increasingly find that i could probably just die and nobody would be particularly affected by that, which is weird

      People often say that, but rarely is it ever remotely true, in my experience. Having been to the funerals of several close friends in the last few years, I think the vast majority of people (especially those of us with mental illness), would be blown away by just how big an effect their existence has had on other people. And if I could add a personal anecdote related to this, as well... one of the most breakthrough moments I have ever had in a group therapy setting was an exercise in which everyone wrote something positive about everyone else in the group and read them aloud. The fact that people wrote nice things about me was not what broke me down into a blubbering mess and made me thoroughly question my perceptions... it was the fact that the way others saw me, and the things they genuinely seemed to appreciate about me, were almost the exact opposite of the way I, in my low-self-esteem, mentally ill head, saw myself. It made me realize how distorted the picture I had of myself was, and how totally shit I am at estimating what other people think of me.

      pretty much every friend group i exist in i have either left, been kicked out of, or seen disintegrate except one which has like, six people in it ... i have zero actual friends outside of the internet and am a part of a whopping zero social groups in real life

      Rarely, as people age, will they still have large numbers of friends like they may have had in high school. But that fact aside, IMO what really counts is the quality of your friends, not their number or their location... and at least in my case, I feel like while the number has diminished greatly, the quality has increased greatly as well. Those who I consider my friends now, even the ones I only know entirely online, are ones I can actually trust and who I don't need to hide who I am (or my problems) from.

      at least i'm not having panic attacks in the shower anymore!

      Fuck me, that hits close to home... isn't that the worst? The shower used to be my one safe place in the entire world where I didn't have panic attacks... but about 8 years ago that changed when I had my first full blown panic attack while having one. I don't get many in the shower, but showers have never felt the same for me since. :(

      p.s. If you ever need someone to talk to, let me know. :)

      8 votes
  2. [3]
    unknown user
    Link
    I think what a lot of normals don't understand is how fucking exhausting having a mental illness is. You are either too tired, or too active, or strangely both at the same time, a lot of the time....

    I think what a lot of normals don't understand is how fucking exhausting having a mental illness is. You are either too tired, or too active, or strangely both at the same time, a lot of the time. Simultaneously, you have the thoughts about how much your current state is not normal, which makes you think less of yourself, adding the oil into the fire. And don't even get me started on the process of finding the right medication. It's literally throwing things at the wall to see what sticks. I'm still thankful I have the meds that people in the 50s could only dream of, but there is definitely room for improvement. Where is the Elon Musk of psychiatry?

    6 votes
    1. [2]
      alyaza
      Link Parent
      my general take on treating mental health is that we will never have a truly complete mental health system in this world until it becomes easier to effectively treat people for their problems than...

      It's literally throwing things at the wall to see what sticks. I'm still thankful I have the meds that people in the 50s could only dream of, but there is definitely room for improvement. Where is the Elon Musk of psychiatry?

      my general take on treating mental health is that we will never have a truly complete mental health system in this world until it becomes easier to effectively treat people for their problems than it is for them to complain about them to strangers on the internet--which is a lofty bar, because it's an order of magnitude easier to just toss some shit up here than it is to seek out a psychiatrist for literally anything, but that's also kinda the point. people who are already fucked up or in a bad spot really shouldn't need to constantly have to worry about where to find someone who can treat their problems, how to find someone like that, whether they can afford someone like that, what sort of commitments are required for that, what it means in general, how they're going to be medically treated, and whatever else on top of the problems they already have.

      2 votes
      1. alt-account
        Link Parent
        I think both your point and @ainar-g's are crucially important. Access to care is a necessity, no question about it - without that, everything else is moot. More than that, to be meaningful,...

        I think both your point and @ainar-g's are crucially important. Access to care is a necessity, no question about it - without that, everything else is moot. More than that, to be meaningful, "access" has to cover not just the basic availability, but the affordability, the stress, the potential repercussions, the complexity of seeking help. It's a lot to deal with, and it all needs to be addressed to have a functioning mental healthcare system.

        I've been comparatively fortunate in terms of finding care. It hasn't been a perfect process, far far from it, but I have been able to see a variety of qualified specialists over the last decade or so. And I've had a wide variety of conflicting, and sometimes flat out contradictory, diagnoses and treatment plans. These people weren't incompetent, it's just that the state of the art, even the very best of human understanding when it comes to mental health, has a long way to go yet. I think of it like cancer treatment 50-60 years ago: we know there's something wrong, we can figure out only the broad strokes of what it is, but our best bet for treatment is still choosing a drug almost at random and hoping the benefits outweigh the risks.

        The last thing I want to do is discourage anyone from seeking treatment - like I said, I've been at it for over a decade and I'm still going - but I do think it's very important to remember a couple of things: firstly, the simple fact that we absolutely need to be funnelling resources into research. Lots of resources. Secondly, and perhaps more importantly, that while seeking help is always, always worth doing where possible, it's a different experience for everybody and it may well not be what you hoped for.

        Some of my absolute lowest points have been realising that the people I needed to help me, the people who in turn wanted to help me, didn't have the ability to do so. Times when I had just enough left in me to force myself out of bed, and force myself to the doctor, only to have that last tiny glimmer of hope go out when the new drug, the new therapist, the new recommendation didn't do anything to help.

        I steel myself for that now, I know that failure is part of the attempt and the only thing to do is keep trying. It scares the hell out of me that every time I cross something off the list, the pool of things that might work gets smaller.

        I keep trying. I just wish more people spoke about how hard that part is, and how far we still have to go.


        The above turned into a bit of a vent. I didn't intend it to when I started typing, I was going for a quick comment that access and research are both important.

        I do worry about posting this - I really don't want to scare anyone away from taking that first step - but I think it's in keeping with the thread and honestly I believe it's something that needs to be said.

        3 votes
  3. [11]
    alyaza
    Link
    casually dropping into this thread again because i'm in a weird mood emotionally today and it occurs to me that some people might be interested in getting to read the emotional experiences of...
    • Exemplary

    casually dropping into this thread again because i'm in a weird mood emotionally today and it occurs to me that some people might be interested in getting to read the emotional experiences of someone who is mildly fucked up. there is, of course, no better way to do this than to drop some expository piece entirely centered on emotions that i wrote like four months ago having just rebounded from a suicidal experience (and which still basically describes how i feel most of the time, but which i largely just suppress because i can't exactly get treatment for it currently). who knows, maybe this will also help people understand the fun time that is living with mental illness? ¯\_(ツ)_/¯. anyways:

    this is alyaza’s manifesto about death and some other feelings that keep eating away at me a lot which i decided to write down.
    (don’t worry i’m not going to shoot myself)

    life is too painful in general. i don’t really want to continue experiencing this. i want to live but i’m not willing to continue doing that if i’m always hurting. i wish people could understand how i feel, but nobody does. i’m alone, floating through life and nobody understands that. people don’t really think of me or do anything with me. if i didn’t reach out to people they’d ignore me. most people seem to just treat me as an expendable person to wring of enjoyment and dispose of when i become inconvenient. i have one or two friends, none of which are nearly enough to stop the feelings. i have a boyfriend who can’t stop the feelings. maybe if he was in my position he’d understand why i hurt and why i’m like this. i wish i could die without hurting him.

    i’m sick and hurt and always miserable. i’m never happy anymore. most of my “friends” just hurt me even if they don’t intend to. it’s so isolating to see everybody else in the world have a support structure and me have nothing. if i hurt myself or disappeared nobody would care. all the people who insist they would are probably lying or crazy, just like me. everything sucks. i’m getting worse and worse and i have nothing. i can’t stop sinking and i feel like i’m drowning. everything is fucking torture and i hate it and i can’t make it stop and i’d rather die than keep feeling this way but i’m so scared. i can’t take feeling this way anymore. i don’t want to hurt people but i’m scared if i keep up like this i’ll hurt someone.

    i’m so anxious and scared all the time. i have an anxiety disorder and it keeps getting worse and i want it to stop. i have panic attacks in the shower and when i’m not occupied and it makes me want to die. my mood swings keep getting worse and longer and making me hurt more and more. i think i’m borderline and have for a long time. people make me so upset and hurt sometimes and so happy other times but the happiness keeps disappearing and the hurt keeps amplifying forever and i hate it so much. i wish i could just be happy. why can’t i be happy? everybody else gets to be happy but me. i hate it. i wish i could hurt people, it makes me so upset. i wish i could die it makes me so sad.

    it feels like everyone is going to abandon me. everybody does abandon me. i’m so hurt all the time because all i do is fuck up my friendships with people. i have no friends and all the friends i have are going to just fucking leave me, i know it. i’ve gone through so many friends that i don’t feel anything anymore. they’re just people in my life and they leave me whenever i’m not convenient anymore. sometimes i feel like i’m just invisible to everyone, or some tangible spirit that everybody can see but which nobody really knows or understands. i feel so lonely because nobody ever does things with me, and i can never do things with them. i don’t get to do friend things because i don’t have money and i’m too scared and unqualified to get a job. i don’t understand anything. i’m stupid and stay in my room all the time. i get good grades but that doesn’t matter because everybody will probably just pass me over since i’m not capable of doing anything right. sometimes i just want to jump off a bridge or starve myself.

    maybe if people could just understand me they’d understand why i hurt so much. maybe if they were me they’d understand too. nobody ever tries to be either. what i do is worth nothing. i’m not smart or intelligent because of what i do. my work doesn’t have any value. nobody gives a shit about fictitious countries. that’s not ever sexy enough for people. i don’t have artistic talent and my writing is probably subpar. i don’t believe people who say i’m good at either because i doubt i am. comparing yourself to other people is cancerous, but you don’t have to compare me to recognize that i’m not good at things. if i burned all my journals tomorrow nobody would care. nothing would be lost.

    i don’t know why people care about me. i think they just do it because they’re obligated to, not because they really care. there are a million other, better people they could spend time with. i’m just some depressed fuck who would drag them down or hurt them. most people just yell at me or make me sad. i have symptoms that resemble ptsd from loud noises from being yelled at physically and living in a household that may or may not be abusive or which at one point was. i don’t really like either of my parents. i care about them so much though and i don’t know what i’m going to do without them. i’m dependent on everybody else to help me through life because i don’t know what to do. i’m alone all the time and yet i need everybody else to survive. it makes me want to hurt because i don’t understand.

    everything just makes me want to hurt. i have no future. i could write forever about everything that makes me hurt but i don’t want to. i only have three things in life that i really enjoy and those are my boyfriend, birds, and writing or reading. increasingly two of those are out of reach. i’m so tired. i just want to be gone.

    4 votes
    1. [10]
      user2
      Link Parent
      May I ask how old you are? The amount of cognitive dissonances in this post is really large. You are obviously depressed and have GAD. What steps have you taken to improve the situation?

      May I ask how old you are?

      The amount of cognitive dissonances in this post is really large. You are obviously depressed and have GAD. What steps have you taken to improve the situation?

      1 vote
      1. [9]
        alyaza
        Link Parent
        19. most of the ones that don't involve medication or therapy (which naturally are probably the only things that would help here for a couple of reasons).

        19. most of the ones that don't involve medication or therapy (which naturally are probably the only things that would help here for a couple of reasons).

        1. [8]
          user2
          Link Parent
          Have you already tried building a set of habits that have already proven to help depression/anxiety, such as: Meditation; Exercise (aerobic is best here, such as running); Gratitude journal; Diet...

          Have you already tried building a set of habits that have already proven to help depression/anxiety, such as:

          • Meditation;
          • Exercise (aerobic is best here, such as running);
          • Gratitude journal;
          • Diet (Cut out sugar and grains, maybe try paleo or something?);

          And have you taken any nootropics? Stuff like Ashwagandha may help.

          2 votes
          1. [7]
            alyaza
            Link Parent
            i should probably clarify that, among other things, i am probably an undiagnosed borderline person (and this is more responsible for how i conduct myself than any sort of anxiety disorder or...

            Have you already tried building a set of habits that have already proven to help depression/anxiety, such as:

            i should probably clarify that, among other things, i am probably an undiagnosed borderline person (and this is more responsible for how i conduct myself than any sort of anxiety disorder or depression) and that most of what you're suggesting here might help with the other stuff, but either doesn't or probably won't help with that since pretty much the only effective borderline treatment is therapy sometimes supplemented with medicine (neither of which i can currently afford).

            Meditation;

            i have not bothered with this because in general, i'm somewhat restless and in any case clarity of mind doesn't help me very much other than making me existential, which has a nasty tendency in my case to trigger anxiety attacks or panic attacks. in showering this got bad enough that as a matter of habit, i've taken to playing videos just so i can think about something else. maybe it's different with meditation.

            Exercise (aerobic is best here, such as running);

            already do that on and off as a separate matter of weight loss. hasn't really helped with any of my problems, and will probably continue to not do so, unfortunately.

            Gratitude journal;

            also done this on and off. varies in effectiveness, but in general i'd call it something of a wash with my case.

            Diet (Cut out sugar and grains, maybe try paleo or something?);

            kinda doesn't work with my situation. beyond the fact that dieting is mostly a meme, my family isn't really in a financial position where dieting of any kind is a viable option anyways because as a collective we make like, less than 20k/yr (and both of my parents have either allergies or health constraints that have to be accounted for). we pretty much buy what we can afford when we can afford it, and that obviously doesn't exactly lend itself to any kind of diet plan or particularly balanced nutritional regimen.

            1 vote
            1. [3]
              cfabbro
              (edited )
              Link Parent
              Are you American? If so, do you have health insurance? If so, you can look for Behavioral Health Treatment Services here: https://findtreatment.samhsa.gov/ If you currently don't have insurance,...

              i am probably an undiagnosed borderline person

              Are you American? If so, do you have health insurance? If so, you can look for Behavioral Health Treatment Services here:

              https://findtreatment.samhsa.gov/

              If you currently don't have insurance, given your family's financial situation, have you looked into if you are eligible for Medicaid?

              https://www.hhs.gov/answers/medicare-and-medicaid/who-is-eligible-for-medicaid/index.html

              p.s. If you are not American, I would be more than happy to try and help you look for treatment options in whichever country you are from.

              2 votes
              1. [2]
                alyaza
                Link Parent
                aware of the options (i mean at this point i've had like a year and a half to figure this all out). i would categorize it more as a logistical, "i have basically no ability to be even partially...

                aware of the options (i mean at this point i've had like a year and a half to figure this all out). i would categorize it more as a logistical, "i have basically no ability to be even partially independent about this" problem than it is a lack of knowing what to do, really. my parents aren't the best about this sort of thing (and honestly they mostly just exacerbate the problems right now), and in any case a lot of the things wrapped up in all of this just aren't thing i want them involved in, if that makes sense.

                1 vote
                1. cfabbro
                  (edited )
                  Link Parent
                  I totally understand. I am agoraphobic and suffer from debilitating panic attacks, so I imagine we might have quite similar limitations. But I would still strongly recommend trying to get yourself...

                  I totally understand. I am agoraphobic and suffer from debilitating panic attacks, so I imagine we might have quite similar limitations. But I would still strongly recommend trying to get yourself to a psychiatrist at all costs, even if it means involving your parents to do so, since getting a professional diagnosis is undeniably the first step you need to take if you want to get better IMO. Without a professional diagnosis you can't really be certain what you're actually suffering from or what the effective treatment options are for you, which makes even helping yourself that much more difficult, if not impossible.

                  In any case, I wish you luck and genuinely hope you find the help you require. And sorry I couldn't be of more assistance.

                  1 vote
            2. [3]
              user2
              Link Parent
              Meditation is much more than clarity of mind. I don't think playing video-games to "quiet" your mind is a good solution. You should become comfortable with your thoughts and notice that they are...

              Meditation is much more than clarity of mind. I don't think playing video-games to "quiet" your mind is a good solution. You should become comfortable with your thoughts and notice that they are just that, thoughts. Meditation helps with that.

              Also, how is diet a meme?

              I forgot to mention to ask 2 important things:

              • How is your sleep? (I suggest you read/listen to Matthew Walker. He makes pretty convincing cases as to why sleep is the single most important thing you should be doing right).
              • Have you tried CBT?
              1. [2]
                alyaza
                Link Parent
                i think you're misunderstanding what i said, so i'll just emphasize the part i think you missed. i'm far, far too poor to actually engage in most gaming, lmao. 60 dollars is basically a fortune to...

                Meditation is much more than clarity of mind. I don't think playing video-games to "quiet" your mind is a good solution. You should become comfortable with your thoughts and notice that they are just that, thoughts. Meditation helps with that.

                i think you're misunderstanding what i said, so i'll just emphasize the part i think you missed.

                in showering this got bad enough that as a matter of habit, i've taken to playing videos just so i can think about something else. maybe it's different with meditation.

                i'm far, far too poor to actually engage in most gaming, lmao. 60 dollars is basically a fortune to me. the last time i bought a video game with my own money instead of having one gifted to me was literally in like, 2011.

                as far as meditation goes the restlessness still stands and, in any case, the thoughts for me sometimes are not just thoughts, which is problematic.

                Also, how is diet a meme?

                i mean, i don't think something like dieting, even if it were practical in any way for me, is really going to help with the thoughts of self-harm or external harm, or the constant depersonalization and significant social issues that i have, no offense. it might make me feel better on the depression or anxiety side, but feeling better isn't super-duper helpful when i also can't regulate emotions like a normal person and so "feeling better" is still going to be tethered to extreme emotional volatility and mood swings, lol.

                How is your sleep? (I suggest you read/listen to Matthew Walker. He makes pretty convincing cases as to why sleep is the single most important thing you should be doing right).

                bounces between "roughly average" and "no idea how i am able to function like this". i have never slept much according to my parents.

                Have you tried CBT?

                nope. tied to therapy, mostly, that i cannot afford.

                1. user2
                  Link Parent
                  IIRC, you do not need to see a therapist to have good results from CBT. Applying/Learning CBT on your own is also very effective. Regardless, I don't know anything about depersonalization and...

                  IIRC, you do not need to see a therapist to have good results from CBT. Applying/Learning CBT on your own is also very effective.

                  Regardless, I don't know anything about depersonalization and self-harm. What I do know is that you are clearly not ok and so I ask. What are you currently doing to counter that?

                  2 votes
  4. [2]
    Comment deleted by author
    Link
    1. cfabbro
      Link Parent
      https://www.ulster.ac.uk/studentsupport/services/disability/needs-assessment-centre/what-is-needs-assessment As for how to book one, that would probably depend entirely on your particular Uni....

      https://www.ulster.ac.uk/studentsupport/services/disability/needs-assessment-centre/what-is-needs-assessment

      What is a needs assessment?

      A needs assessment is an essential part of your application for disability related funding through the Disabled Students' Allowance or equivalent (for Republic of Ireland and international students) and the cost of the assessment will be charged directly to your funding body. Your funding body can only determine eligibility for funded reasonable adjustments, such as non-medical help and equipment, based on the recommendations in your needs assessment report.

      A needs assessment is an informal meeting between a student and a needs assessor, which will last approximately one to two hours. The assessment is not a test of your academic ability but an evaluation of the support you need to adapt to higher education and university life.

      The needs assessor will be experienced in recommending support and equipment for students applying for disability related funding. During the assessment, they will discuss and demonstrate the different support options that will address any difficulties you may experience when studying, due to the impact of your disability or long-term medical condition.

      Depending on your individual needs, the assessor may make recommendations such as:

      • Assistive technology equipment or software
      • Non-medical help from a support provider
      • Costs for additional consumables such as photocopying, ink and paper
      • Assistance towards additional travel costs to and from the university because of the impact of your disability, i.e. funding towards the cost of a taxi where someone is unable to access public transport

      They will produce a report, which will make recommendations to your funding body on the type of funded support you require. We will submit this report to your funding body, who will then notify you of what support has been approved.

      As for how to book one, that would probably depend entirely on your particular Uni. They should probably have a support page similar to the Ulster University one with information on that.

      1 vote
  5. moocow1452
    (edited )
    Link
    Only tangentially related to mental health, but through some combination of working at a call center, and screwing around on my phone, I think I got some sort of RSI deal. I go see a chiropractor,...

    Only tangentially related to mental health, but through some combination of working at a call center, and screwing around on my phone, I think I got some sort of RSI deal. I go see a chiropractor, they have a massage therapist, I get poked and prodded and I guess since I can feel again it's better but damn if it hurts all weekend. Worse is that my insurance doesn't cover it. I can cover what I committed to, and I'm changing from temp employee to direct hire, so I can probably sort out something there, but it still kinda stinks.

    EDIT: Checked, have to go to a probationary period... again. Might be a touch more mental health related now.

    1 vote