I’m here to ask the community for help. I know we’re a neurodiverse bunch, so I’ve got good hopes somebody can relate to this.

My son is currently 16 and has always struggled with basic tasks. He’s gone through many tests and trainings when he was elementary school, but executive functions remain a challenge. From previous tests, we know he has an IQ of over 145. Back when he was tested, the psychologist advised to change his school curriculum to get him more engaged. This has partially worked: he’s been having more fun at school and has had some really cool academical achievements. But his struggle with basic day to day tasks and school work remains the same, and keeping focus is by far the most problematic part of it.

With going to middle school came owning a phone and iPad. From day one, these do get his full attention. Me and my son are much alike when it comes to obsessive behavior, so I sometimes feel like I’m looking in the mirror when I see him with his phone. I too can lose myself in a game and binge it in a weekend. But for me, it isn’t 24/7. I can turn it off when it needs to be off. So I’ve always been strict with rules about screen time for him, but these rules have gone out the window in the last 2 years. There has been lying, sneaking and hiding to increase screen time. It has had a negative effect on our family and it’s draining to have to deal with this daily. I think that’s why we’ve somewhat given up on it, it was impossible to keep in check.

In the past 3 years, he has started to really experience the negative impact of his challenges. We’ve attempted to help him plan his days, to plan his school work, to do chores in the house. But nothing seems to stick and he gets frustrated with himself and it is affecting his mood. In an attempt to find out more about what is causing his difficulties with basic tasks, we’ve asked a psychologist to look into AD(H)D. After an assessment, they’ve now come back with their findings. According to them, it cannot be AD(H)D because he can focus on things he likes (a board game was their example). Their rationale is that people with ADHD cannot focus on any task, even if they like them. They are saying it is his IQ, that he’s too bored to focus on basic tasks. According to them, he should force himself to do menial tasks and that we should be there to enforce this with rules and praise. Like we haven’t tried this already without any results. To say that I’m disappointed and furious about this outcome, is an understatement. It leaves us dead in the water and this makes me feel hopeless.

I’m hoping to gain some insights by reading your comments. This attempt might point us in a new direction, because I’m fine if it is something entirely different than ADHD. I just really want him to feel better.

My only living parent has between one and five days left to live. The parent is unable to speak now and has had dementia for the last 5 years and will not recognize who I am if I go visit now in these final hours.

They live a few thousand miles away from me; it would be expensive to go and money is painfully tight right now with my partner unexpectedly unemployed and struggling to get a job comparable to the job just lost.

I’m somewhat estranged from this parent. The short version is this parent is a narcissist and really didn’t show up when I was growing up, or at any point in my adult life, or really at any point when it mattered. Despite this person being a really crappy parent, they exerted a massive gravitational pull in my life through many decades—basically, this parent loomed very large for far too long given the extreme narcissism, albeit much less so in the last decade or two. (Dementia and my coming to terms with it all and caring less and time and my having my own kids and my starting my own family all being some sort of salve.)

I have one very close friend who is telling me that it is critical to go before this parent dies because being present while they are still living will give me a kind of closure and unexpected resolutions that I cannot even anticipate now. This friend is quite adamant that going is critical for personal growth.

A different close friend says that going while the person is still alive is a complete waste and that I should go for the funeral instead where I can see other relatives and connect with my sibling and other relatives and deepen those relationships which (the friend says) will be a momentous transition point for us all, creating a better sense of family than any of us could have ever had while this person was alive. This friend insists that the healing and closure is identical pre-death and post-death, but that the extra emotional burden of seeing someone dying will derail me and never be able to be “unseen.” This person thinks spending money on two trips is foolish, so the one trip to go on is for the memorial. FWIW, My sibling is only going for the memorial.

Even if money were no object, I’m not sure I could emotionally handle going twice. I suppose I can, but that’s very time intensive and I have young kids myself who need me and for whom it would be a strain if I were gone for too long. I’ve already said it, but I have to say it again: money is really tight Going twice feels possible, but extremely difficult

I guess what I’m really trying to understand, if my feelings for this parent are presently ambivalence that grew over a decade or two from what was formerly extreme anger and hurt, is there something meaningful about going while the parent is still alive? Is there something important that happens before the person dies that is in someway healing or transformative or valuable? Is it more important to instead go when my sibling is going? Should I max the credit card and go twice? Should I risk infuriating and deeply damaging my relationships with my extended family and not go at all to save money? (This last option seems wrong, but it is a possibility, so I feel like it at least deserves considering.)

Friends of Tildes, what did you gain or lose from seeing a relative in hospice? What thoughts and wisdom do you have to share around moments like these?

Thank you in advance for sharing your stories. I’m sure your collective wisdom will help me make a better choice.