loie's recent activity

  1. Comment on Advice on dealing with aging parents in ~life

    loie
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    It only gets worse from here. Dementia is a terminal illness. He will not get better. It is not temporary. There will be good days and bad days, then there will be good hours and bad hours. We did...

    I've framed this in terms of parents for convenience, but of course I am interested in anyone's experience with the aging.
    What did you learn later that you wish you knew about having aging parents when they started needing more care?

    It only gets worse from here. Dementia is a terminal illness. He will not get better. It is not temporary. There will be good days and bad days, then there will be good hours and bad hours.

    What resources were the most help to you navigating the transitions?
    That resources do you think were the most help to your parents in navigating the transitions?

    We did find that our city’s Council on Aging had good advice. They deal with elderly all the time who don’t have anyone else to care for them. They’ve seen it all.

    If you weren't local, what kind of things did you do to help stay connected? What worked, and what didn't?

    We were local, about 10 minutes away from the memory care facility. But this question reminds me of the repeat cellphone calling. Every 30 seconds, for hours on end, at all hours of the day. So be ready for that, should you decide to let him keep a cellphone until he doesn’t remember how to use it at all.

    I'm really struggling with depression, disappointment, and worry about my parents. What advice do you have for me?

    I’m really sorry, but steel yourself. Again, it only gets worse from here. Once I fully realized that, we were able to plan ahead instead of dealing with the current state and then being disappointed when it got worse again.

    Details inside. Sorry in advance. This is a long one.
    My parents are both in their 70s. My mom retired about 10 years ago, but my dad only retired last year. Shortly after his retirement, he received a dementia diagnosis.
    My sister and I live about 3 hours apart, but 1,200 miles away from my parents, who still lived in the town we grew up in. I have been quietly campaigning to get them to move closer for years. My mom always said, "When your dad retires, we'll think about it." But my dad has ADHD, and most things don't happen unless my mom spearheads them. The bottom line was that she didn't really want to leave, so they didn't.
    The dementia diagnosis proved to be the required catalyst. They have been packing for the past few months, and the movers moved them in to their apartment in the city where my sister lives. They're holding an estate sale to get rid of the rest of their stuff, and they have already found a realtor to list the house.
    They moved into a two bedroom apartment in an independent living facility that has options up to full memory care. Right now they are both functioning well enough not to need any daily care, though my dad is no longer driving.
    This new place is going to be good for them at least in terms of meeting their physical needs. It's a very nice facility with lots of social spaces. There's a (kind of blah) meal service, exercise equipment, a movie theater, and guest apartments we can stay in when we visit. It has a shuttle that they can book to take them anywhere within 20 miles, so the fact that my dad can't drive it's not as limiting. They're within easy walking distance of a grocery store and a Target.
    I went to visit them this week to help with some unpacking. It really made me sad. They moved from a seven bedroom house that they've lived in for 20 years in a town that they lived in for 45 years. The new apartment is 1200 square feet in a town where they don't know anyone but my sister. I'm glad that they made the move because they need the support, but seeing how diminished their circumstances are, and in some ways, how diminished they are has been really depressing to me.

    I expect the dementia will let your father acclimate to the new environment without much effort. I've seen patients have a really rough first few weeks, then as they get used to it, and literally forget their old place, it calms down. Your mother might have a more difficult time because she’s more aware of the change. Hopefully she appreciates the smaller space to manage, especially as your father’s condition progresses. You state that they are functioning well enough to not need daily care; this hits me as a red flag. Are you sure they are functioning well enough to not need daily care, or is it only your mother and she is picking up all the slack, every moment of every day? Is he still sleeping through the night? Eventually he won’t, and from what you’re saying below I’m worried that she’s the type who won’t say anything until she is completely burned out.

    Things are even harder because the relationship dynamic between them is not good. It's become apparent to me that they mostly function as a couple by not being together. My dad would be at work all day, and my mom was doing her own things: volunteering, book club, etc. Now that my dad is retired, there is a lot of friction between them. It's compounded by some anger outbursts from him that are probably related to the dementia but also certainly related to the unresolved conflict between them. He sees her as the person who's taking away his independence. She feels hurt that she's treated like the bad guy in every situation. She is also bitter because their plan was that he would retire and they would travel and see things they had always wanted to see. The truth is more like: she was enjoying her retirement and independence without having him underfoot, and now she has to face the consequences of having put it off for so long. They have tried couples counseling, but my mom has been saying she doesn't want to keep doing it. I had a super weird moment at Target when we were buying things for their apartment the way you would for a child going off to college, and I almost had to break to an argument between them about towels.

    Yes, get used to being the parent now. Reason and rationality might still get you somewhere with your mother, but the time is coming when that won’t work on your father anymore. Prepare now for your father’s transition to memory care. Keep a schedule to get your mother a break from being his primary caretaker. You may have to force her to go to that movie theater, or take the shuttle to a nearby coffee shop or whatever. She will need time out of there, often, even if she refuses to admit it.

    I guess I have idealized their relationship in a way that ignored the reality, and now that those blinders are lifted, it's really shaken me.
    To top it all off, my dad has had cancer (GIST) for the past 16 years. It's been pretty stable and manageable, but he is scheduled to have surgery in a few weeks to remove a tumor that recently started growing. This will be the first surgery in the new city, though they have an excellent cancer hospital so he should be in good hands. I will be there for the surgery and the recovery, so that is a good time to be able to suggest things to them or help them with things.

    This will be an opportunity to really assess his condition. Observe how quickly he is recovering, or whether he seems to stall at a plateau. Pay attention to your mother’s state as well. Is she still cooking their food? Keep an eye on expiration dates, and whether their food supply is being consumed and replenished appropriately.

    The dementia subreddit is actually very good still. Make use of everyone’s experiences there. On a positive note, be glad that your family is fortunate enough to afford memory care. I have no idea how people deal with this when all the caretaking must be done at home. Good luck, and I’m sorry.

    12 votes
  2. Comment on Need suggestions for soundproofing my place in ~life.home_improvement

    loie
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    How about moving your desk to that other wall and then building a "cubicle" around it? Just some quick Amazon/Lowe's/Home Depot searching: $30 for 24 sq ft in adhesive backed sound dampening...

    How about moving your desk to that other wall and then building a "cubicle" around it?

    Just some quick Amazon/Lowe's/Home Depot searching:

    $30 for 24 sq ft in adhesive backed sound dampening squares

    $15 each for cheap 4x8 hardboard panels

    $3 each for 2x2x8 furring strips, use those to frame and stand the panels

    $12 for a 20 pack of corner braces with screws

    Cut 2 feet off a 4x8 so you've got a 4x6 = 24 sq ft panel, use the remnant 4x2 as the base, use the furling strips and L-brackets to frame it all, and you've got a movable 4 foot wide, 6 foot high sound deadening panel for I'm guessing about $80 in raw materials.

    I don't know what you're considering 'budget' but I think you could do something effective for under $500.

    4 votes
  3. Comment on What do you actually do at work? in ~life

    loie
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    Fix shit Wait, no Paperwork

    Fix shit

    Wait, no

    Paperwork

    1 vote
  4. Comment on Cheap phone plan with international service? in ~tech

    loie
    Link
    Google Fi worked fine for me in France, Germany, Denmark. Maybe 5 minutes after landing at De Gaulle my phone put up a 'welcome to France!' splash screen and all good from there. No need to change...

    Google Fi worked fine for me in France, Germany, Denmark. Maybe 5 minutes after landing at De Gaulle my phone put up a 'welcome to France!' splash screen and all good from there. No need to change sims, no ridiculous overages on calls, texts, or data. This was 2018 though, maybe things are different now.

    13 votes
  5. Comment on Side projects that were actually good? in ~music

    loie
    (edited )
    Link Parent
    The last track on The Horrible Crowes - Elsie was a cover of 'Joey' by Concrete Blonde. I thought it was a great cover and it's scrubbed from every streaming version of the album. Lame! Edit, here...

    The last track on The Horrible Crowes - Elsie was a cover of 'Joey' by Concrete Blonde. I thought it was a great cover and it's scrubbed from every streaming version of the album. Lame!

    Edit, here it is.

    2 votes
  6. Comment on Toyota inks deal to mass produce solid state EV batteries with 932-mile range in ~transport

    loie
    Link Parent
    Once a month, sometimes twice, I'm doing a 600 mile round trip in one day. Several times a month I'm doing 360 mile round trips. For me, it isn't about 932 miles of range, it's about how much...

    Is it necessary to have 932 miles?

    Once a month, sometimes twice, I'm doing a 600 mile round trip in one day. Several times a month I'm doing 360 mile round trips. For me, it isn't about 932 miles of range, it's about how much range does that actually mean in frigid weather. When I can achieve that 600 miles in -20*F, I'm switching to electric.

  7. Comment on Microsoft might want to be making Windows 12 a subscription OS, suggests leak in ~tech

    loie
    Link Parent
    Yeah exactly, they can't help themselves. Why charge money for a subscription service with no ads....when you could charge money for a subscription service with ads?

    Yeah exactly, they can't help themselves. Why charge money for a subscription service with no ads....when you could charge money for a subscription service with ads?

    21 votes
  8. Comment on What are some modern first person shooters with a classic, old-school feel? in ~games

    loie
    Link
    Is it cheating to suggest Black Mesa? Or is HL1 even too new for what you're after?

    Is it cheating to suggest Black Mesa? Or is HL1 even too new for what you're after?

    1 vote
  9. Comment on <deleted topic> in ~hobbies

    loie
    Link Parent
    At that point, in my opinion, I'd rather go for "different" than "better". Try a Grado. Try some Mezes. Because yeah I agree about the diminishing returns.

    At that point, in my opinion, I'd rather go for "different" than "better". Try a Grado. Try some Mezes. Because yeah I agree about the diminishing returns.

    1 vote
  10. Comment on Continue to use your favorite third-party app for Reddit after July 1st with ReVanced! in ~tech

    loie
    (edited )
    Link Parent
    I do not approve of the greedy little piggies making a mess, and I do not like the direction of the platform. But there are still some small important communities. r/dementia is the most important...

    Is this really a platform you still want to use?

    I do not approve of the greedy little piggies making a mess, and I do not like the direction of the platform.

    But there are still some small important communities. r/dementia is the most important for me. It's a valuable resource and support group for many people. So for now, I'll be using Reddit, but much less often than before the API stupidity.

    2 votes
  11. Comment on Do you spend more time creating a Tildes reply than on other platforms? in ~tildes

    loie
    Link Parent
    Wow, you make my Reddit account seem prolific. I feel like Tildes is in a really sweet spot right now, there's finally good daily activity but it's still cozy.

    Wow, you make my Reddit account seem prolific. I feel like Tildes is in a really sweet spot right now, there's finally good daily activity but it's still cozy.

    18 votes
  12. Comment on Apollo is dead in ~talk

    loie
    Link
    What a mess. I'm thankful he implemented the json export, it's helped me transition a lot of subs over to Lemmy. Wefwef and jerboa are pretty nice...but they're not Apollo. :(

    What a mess.

    I'm thankful he implemented the json export, it's helped me transition a lot of subs over to Lemmy. Wefwef and jerboa are pretty nice...but they're not Apollo. :(

    4 votes
  13. Comment on Do you spend more time creating a Tildes reply than on other platforms? in ~tildes

    loie
    Link
    Nah.

    Nah.

    13 votes
  14. Comment on High quality USB-C in-ear monitors or good aux-to-USB-C adapters? in ~tech

    loie
    Link
    I've had this for a couple years and I like it: https://www.hidizs.net/products/hidizs-s3-pro-ultra-portable-hi-res-dac-dongle Looks like it's on clearance now maybe? MQA is on the rocks so maybe...

    I've had this for a couple years and I like it:
    https://www.hidizs.net/products/hidizs-s3-pro-ultra-portable-hi-res-dac-dongle

    Looks like it's on clearance now maybe? MQA is on the rocks so maybe they're looking to clear out, I don't know.

    Only criticism would be the power output is too low for headphones with higher impedance, like over 50 ish Ohms. But for my IEMs (KZ sxn?, truthears, blessings) and Grados, it's plenty.

  15. Comment on Spotify’s podcast plan is going off the rails in ~tech

    loie
    Link Parent
    Imagine buying Gimlet and then completely fucking it all up.

    Imagine buying Gimlet and then completely fucking it all up.

    2 votes
  16. Comment on <deleted topic> in ~tech

    loie
    Link
    Keep for My Stuff, OneNote for Work Stuff. Several of my colleagues are still on the Pile o’ Crumpled Coffee Stained Papers method. I have no idea how they ever find anything.

    Keep for My Stuff, OneNote for Work Stuff. Several of my colleagues are still on the Pile o’ Crumpled Coffee Stained Papers method. I have no idea how they ever find anything.

  17. Comment on How do you like your smart home setup? in ~tech

    loie
    Link
    I don't, not much anyways. All I have so far is a couple smart bulbs and plugs. I have several more not in use now, for the holiday lights. I'm using Google Home with various no-name vendor bulbs...

    I don't, not much anyways. All I have so far is a couple smart bulbs and plugs. I have several more not in use now, for the holiday lights. I'm using Google Home with various no-name vendor bulbs and Wemo plugs. I hardly ever use voice controls and I don't have any google smart speakers. Been waiting...and waiting...for Matter stuff to flood the market, but that doesn't appear to be happening? More of a trickle I think, but I have not paid very close attention.

    Glitch wise, it's always the Google Home app that doesn't respond reliably. One minute it's fine, bulb turns on instantly... then ten seconds later I go to change that same bulb's brightness and nothing happens.

    I do use Google Action Blocks app to set up weaker versions of Apple Shortcuts. A page on my phone is filled with Action Blocks that silently execute an Assistant command, so like "set the bathroom light to candlelight color and 1% brightness" has an icon I can tap to put a bulb into "nightlight mode".

    It's clunky but it's working well enough to keep it going. I wish for better though, hopefully from Matter compatible stuff eventually.

    1 vote
  18. Comment on Apollo will close down on June 30th. Reddit’s recent decisions and actions have unfortunately made it impossible for Apollo to continue. Thank you so, so much for all the support over the years. in ~tech

    loie
    Link
    Welp Hello everyone

    Welp
    Hello everyone

    4 votes