I almost donated ten gallons of blood products
Previous discussion about five gallons here
Sorry for the somewhat clickbaity title, but it's got relevance:
Ever since I hit five gallons last year, I've been donating away, excitedly working towards that ten gallon milestone. I do whole blood donations every eight weeks, and I try to do platelets once a month.
I literally had ONE donation left to get myself to ten gallons when I got a call that nobody, especially no gay man, ever wants to get: the blood tests from my last donation came back as potentially reactive for HIV antibodies.
To say I was tilted would be an understatement. I know that the prognosis for HIV is significantly better than it used to be, but as someone who grew up in the shadow of the AIDS crisis, I still had a significant gut reaction. It hit me hard.
After I had time to calm down, however, I was better able to process the information. First, the results were preliminary and not a confirmation. Second, I do not engage in any practices that would risk HIV transmission. My husband and I are mutually monogamous and have been so for the better part of two decades. And the only time I deal with blood is when it's my own and I'm donating. Also, the donation site I use is meticulous about cleanliness and sanitation, so there's no way it could have been from them not following proper protocol.
As such, it was significantly more likely that the test was a false positive than an actual one.
I immediately got myself tested and, sure enough, it came back negative. The Red Cross also did confirmation testing on my blood, which also came back negative. In digging around to find some actual data on this, I found this graph from this page which, if I'm reading it right, shows that they have a 96.2% false positive rate. Pretty high! But, it makes sense: apparently the tests they use are VERY sensitive. They do not want HIV entering the blood supply like it did back during the 80s, so better to trigger more false positives than allow any actual positives to get through.
I got a letter from the Red Cross confirming my negative results, along with bolded text that clearly states:
The Red Cross cannot accept blood from donors who have reactive test results for any infectious disease. This means you are no longer allowed to donate blood for others.
Again, I was devastated. I waited my whole lifetime to be able to donate blood because, as a gay man, I was considered a high risk for HIV and therefore not allowed to. And now, once they finally changed the rules and I finally got the chance to actually do it, I was cut off right as I was just getting the ball rolling -- all because of an incorrect preliminary test result for that very same HIV.
I called the Red Cross to discuss the results and learned that, thankfully, the moratorium is not a lifetime one but only for 6 months (this is mentioned nowhere in the letter, by the way). After that, I'm eligible for re-entry testing, upon which a negative result will clear me and I'll be able to donate again.
Given the incubation time of HIV it is technically a possibility that I do actually have it and it's just not triggering the confirmatory tests yet. However, as previously mentioned, I do literally nothing that would put me at risk for it, so I feel comfortable in saying this was, definitively, a false positive.
The person at the Red Cross did mention that allergies can trigger it, and my previous donation I had done shortly after getting my monthly allergy shots, so it's possible that was why the blood test flagged in the first place.
Unfortunately, this means that instead of hitting my 10 gallon goal this year like I was hoping to, I have to sit on the sidelines for a while and wait it out. A bit of a bummer, but genuinely better than either finding out I actually did have HIV and/or that I was ineligible to ever donate again.
Thanks for sharing, I hope others are inspired by your journey.
Sorry that milestone got pushed, but gotta say that's about the best possible reason. Frequent disease screening is a pretty good side effect of blood donation. Even if it had gone the other way...learning about being infected is still exponentially better than finding out when its way too late....the treatments are much better than decades ago.
I was trying to figure out how you were getting five gallons that quickly before catching the platelets part.
I suspect the letter text was not updated after other deferment changes or it's sent to people assuming that the vast majority should not return after that marker flags.
It's ok though, you'll hit your ten, and even if you never did, you have literally saved people's lives. ๐
Glad to hear it's a false positive. Can you still give platelets in the meantime?
The rules are the same for all blood components.
I have nothing to offer but a big virtual hug and an enormous amount of respect for everything you have done to save lives
๐
I used to donate whole blood as often as they let me and platelets pretty often as well. But in the end I picked my hair over the blood. You canโt donate blood while taking finasteride and if I stop taking it for a month to donate I think all of my new hair will fall out and may never come back.
I did get quite a bit of blood donated while I could. And if I ever give up on my hair Iโll immediately go back to blood donations.
I used to work as a pharmacy tech. Women are generally not allowed to even handle that stuff because touching broken tablets or powder while pregnant can cause both defects in male children.
I guess there's some argument now about the danger, but the red cross does not need something like birth defects traced back to even one pregnant woman receiving a blood donation from someone taking finasteride even if causation is never completely proven. Any whiff of danger and pregnant women are forbidden and then publicly judged for less than perfect behavior. We really don't need blood transfusions added to the forbidden list that already includes sushi, Tylenol, soft cheese, cold medicine, accutane, and coffee list. We'll probably never have solid risk numbers on any of those because knowingly pregnant women aren't really into joining drug trials.
Tbf they're not allowed to join the trials either, sometimes women or childbearing age aren't allowed to. It's frustrating as someone who will love to have treatments.
Yeah, the unknown is pretty terrifying. A lot of the forbidden stuff feels like, "We just don't think this sounds like a good idea," and moderation never seems to come into it. I have seen so many pregnant women completely miserable with a bad cold who were scared to take anything at all.
Wow, what a wild ride. I'm glad you'll be able to donate again eventually.
I remember talking about the ban at the donation center back before the rule change and was told it was because they don't test 100% of donations. I'm guessing they still don't and that's why you've got to wait.