I'm attempting to be more active on Tildes (after my last attempt), and I noticed that there hadn't been a new fortnightly thread, so here's my contribution!

https://tildes.net/~health.mental/1oax/victories_and_challenges_an_a_u_dhd_community_and_support_fortnightly_thread

I've been having a difficult time recently, which has been leading to my absence here and a lot of crying in my real life. I don't deal with letting go too well. I keep texts and pictures and messages and every once in a while I like to look back at them and remember that somebody out there at one point was capable of loving me.

It's not like I don't have friends that love me either, I've spent days and days at other people's houses just crying, people have taken me out to eat and cry and just feel my feelings, and people have been reminding me about the things they like about me too. I mentioned it to a friend that I've been having trouble letting go and we dug into it a bit more, about why I want to keep these things. My friend asks why I need the love to come from other people first. Where is the self love?

My core issue has always been needing to be reminded that I am loved. It's really silly sometimes, because on some level I know that I am. But something is missing.

There's an old saying that we judge other people by their actions and ourselves by our intentions. Sometimes I wonder if I'm just a bad person. Or if I think I am. Because if I didn't have that, why would I have such a hard time forgiving myself?

I don't really know how to self love, to be honest. I spent all day today barely working, just mindlessly staring at a screen playing a stupid game and not leaving the house. I dunno. Maybe I just need some ideas. I set up a couple more appointments with my therapist this week, but sometimes when it's 2 in the morning like it is now I just can't sleep and spend more time hurting myself in my own head.

Was listening to a pod where one person shared a funny, and having fun is taking care of your ~mental.health

This is my kind of humour, an 'article' about it: https://pleated-jeans.com/2023/08/29/disappointing-affirmations-dave-tarnowski/

And a link to the instagram account https://www.instagram.com/disappointingaffirmations/ for those who use instagram.

The episode in question: Divergent Conversations: Episode 106(mp3)

Maybe this isn't really a good topic, but maybe you'd like to share what makes you laugh, good podcasts or how you use humour for ~mental.health.

I also wrote something related in one the monthly check in topics, so maybe @chocobean would like to give an update! (Sorry for calling you out like this, just trying to have some fun)

I was recently thinking of a new way to describe to my spouse (and to myself) how my mind works when it comes to performing tasks. This is a regularly occuring conversation, as her needs and mine often run counter to each other and leave us both frustrated. I have trouble understanding even my own reactions to things, let alone hers, so I try to explain them in new terms occasionally to see if it makes things click.

Anyway, I came up with one that I found apt and kinda fun, if maybe a bit sad in places: a DnD 5e character sheet. For the purposes of this exercise, the sheet is for a sorcerer, not a wizard (learning new tasks happens slowly, almost at random) and the Frustration mechanic is effectively identical to Exhaustion in the PHB.

Here it is. I'm curious if any of you have thoughts on this or find it feeling familiar.

Spell list:

Cantrips:

Relax
Read
Eat
Get ready for bed ¹

1st level:

Choose to go to bed ²
Get ready to leave
Choose a meal
Prepare a meal
Work on dishes
Take out trash
Do laundry
Other chores
Do a favor (unasked)*

2nd level:

Do a favor (asked)*
Stifle frustration ³

3rd level:

Do a big favor (asked)*
Dismiss frustration ⁴

Feat - People Pleaser: When casting "Do a favor (unasked)", roll a d20. On a 15 or higher, cast as a cantrip instead. When casting "Do a favor (asked)", roll a d20. On a 5 or lower, add 1 level of frustration. When casting "Do a big favor (asked)", roll a d20. On a 10 or lower, add 1 level of frustration.

Feat - Desperate Times Call for Desperate Measures: Regenerate 1 spell slot of any level. Add 1 level of frustration.

Feat - Self Soothe: whenever casting a cantrip, roll a d20. On a 19 or 20, remove 1 level of frustration.

Curse - Temper: whenever casting a spell of 1st level or higher, roll a d20 with advantage. On a 2 or lower, add a level of frustration.

Curse - Social Anxiety: when interacting with another character, roll a d20. On a 5 or lower, burn 1 spell slot or add 1 level of frustration.

¹ Must be cast on the turn following casting "Choose to go to bed." Otherwise, this becomes a 1st level spell.

² After casting this spell, any spell other than a cantrip must be cast one level higher than usual (e.g., 1st level spells can only be cast using 2nd level spell slots).

³ Temporarily remove 1 level of frustration. It returns after d20X10 minutes.

⁴ Permanently remove 1 level of frustration.

Follow-up to my one gallon post here.

And technically, it's 5 gallons and 3 pints after this morning's platelet donation. I'd hit the five gallon milestone with my last one but didn't realize it. Never too late to celebrate though!

One of my co-workers is also a regular donor, and we've bonded over it. One time we were at lunch, eating in the teachers' lounge with a bunch of our colleagues. We were having a group conversation about blood donation, the pain of sticks, the fears of something going wrong, etc. It was kind of a downer conversation about the whole thing. After the group moved on to a different topic, she quietly leaned toward me and whispered "this is going to sound weird, but I actually like doing it."

She couldn't have found a better person to confide in! I feel exactly the same way.

It sounds weird that I like having someone stick needles in my arm and withdrawing my life force. It sounds even weirder when I say that I like donating platelets, in which I can't move my arms for two hours, and also the tape they use rips out my arm hair (this genuinely is worse than the needle sticks, by the way).

I think that's framing it the wrong way though.

I like doing it because it's something I can easily do, it doesn't cost me anything, and I know I'm helping people out. I read a comment online once about donating that stuck with me. It said something to the effect of:

The person who will be getting your donation is undergoing much worse, and they also don't have a choice in the matter.

I think about this in those times where I am a little anxious or nervous that things might hurt.

Yes, the sticks are painful sometimes. Yes, my arm hair getting ripped out is uncomfortable. Yes, sometimes I need to scratch my nose and I simply can't and I want to crawl out of my skin for a few minutes until the feeling subsides.

But that's nothing compared to the person with cancer who's getting my platelets. Or the car-crash victim who gets my blood.

I also think about it in terms of the bystander effect. It's easy to just assume that blood or platelets will be there for people who need it, but that only happens if people deliberately choose to donate.

I want to be one of those people who does it deliberately.

And so far I have: to the tune of FIVE GALLONS!

The last thing I'll say is that part of why I like doing it is because I really like my donation center. The staff there are excellent. I prefer doing it at a place like that than one of the closer, more convenient pop-up options because I feel like if something were to go wrong (god forbid), then a designated site is likely to have the supplies, preparation, and expertise in dealing with the issue.

For example: I have had a few times where the phlebotomist has whiffed one of the sticks for my arm. Each time, they've immediately called over the manager (who you can tell is esteemed by ALL of the staff for being VERY good at getting sticks right -- one time I heard a phlebotomist audibly "ooh" in amazement as she fixed their stick in my arm). She's been able to fix the issue each time.

Thankfully, those issues have been infrequent. Most of the time they do everything great and I barely feel a thing.

They also follow cleanliness and administrative protocols to a well-crossed, perfectly symmetrical T. It's comical, but I'll get asked my name and date of birth probably four different times during a platelet donation, because at each new step of the process they make sure that they've got the right paperwork, vials, and patient. It's always funny to me that they ask me this before they take the needles out of my arms, after I've been stuck in the chair unable to move for two hours. Do they think I somehow snuck out and someone else took my place when they weren't looking?

Of course, they're doing it not for me but to make sure everything gets properly labeled, but I genuinely appreciate the thoroughness. I feel very safe with them because they consistently operate with such a high level of care. If you've been turned off of donating due to bad experiences in the past, I recommend finding a good permanent donation center near you if you're willing to revisit it.

Anyway, that's all I have to say. I wanted to share my personal milestone. Again, as a gay guy who wasn't allowed to donate blood for DECADES, it feels really, REALLY good to be able to finally give back in this way.

Welcome to the inaugural thread! It is important to me that this is an inclusive space; and it should evolve to serve the needs of the community.

What is this space?

It is intended as a community space, primarily for those of us with ADHD and/or autism; but it should be open to evolution on what is explicitely encouraged (because all are welcome). It intended as a space to vent about your struggles and challenges in a space where there is implicit understanding of the issues we face with these diagnoses. It is intended as a space to celebrate your achievements and victories with those who understand why those are as meaningful as they are, even the little ones. It is intended as a space to seek support with related issues — like requesting accountability partnering, chunking, rubber-ducking, et cetera. It is a place to post news and articles about ADHD and autism that are of interest to the community. A place for discussion. And a place to be serious and silly together with folks who understand.

All are welcome to participate here. While generally on Tildes I would expect most participants to accept that ADHD and autism and the like are real diagnoses, I would expect those participating here to either have those diagnoses, understand those diagnoses, or if someone wants to learn more, to ask questions here with an open mind — i.e. this is a positive and supportive space.

All are welcome to participate here. Not just those with these diagnoses. The self-diagnosed are welcome. Support is welcome to be sought by those with ADHD-adjacent issues: for example, depression can cause executive function issues such that accountability partnering could be helpful. Feel free to seek such help here.

Your feedback is requested and valued. This community will evolve to fit the needs of those who participate here. What works will be retained; what doesn't work will be dropped. I am your facilitator, not dictator; and while for this first thread I am speaking with my voice, as we evolve things and figure out what works, I will rephrase whatever text that gets posted each time into a passive voice. I just want to reassure you that while I'm taking a leadship position to get the ball rolling here, I will be removing myself from this so it truly is a community space for us all. But to start, you gotta have someone doing the thing. :)

For now, I'll create one top-level reply that requests for support should be posted under. The idea is that it makes it easier for those wishing to volunteer to help can find the requests more easily. We'll see if that works or not.

It is my humble opinion that one should be encourged to post as you wish. If you want to post multiple things in a top level reply that are going on, great. If you want to make two little top level replies about different topics, even on the same day? I think that's also fine. Don't be shy about posting.

I think a fortnightly thread feels about right to start. Too frequent and things can get lost. Too infrequent and the thread might die out before we get a new one. But as with everything else, feedback is desired. By coincidence of when the idea was had, I'm posting this one on a Friday. If you'd prefer a different day, that's feedback that is welcome.

Welcome to your space! Help make this space be what you want it to be. <3

edit: Forgot to post where this came from:

Most recently: https://tildes.net/~health.mental/1oac/proposal_adhd_support_thread_reoccurring

Less recently: https://tildes.net/~life/1o92/how_my_life_changed_with_adhd_medication#comments

That first thread had such a sense of community that I want that to keep going, basically. :)

Top eidt: Thread is four hours old and already seems to have support. I'll create the first actual thread tomorrow. So please, your feedback is desired on anything you'd lke to see in the initial topic text. Also, I'm thinking fortnightly (every two weeks) might be good to start, but feedback will always be desired. Original thread follows:

https://tildes.net/~life/1o92/how_my_life_changed_with_adhd_medication#comments

That thread brought so many with ADHD out of the woodwork.

I wonder if there might be a use for a recurring (weekly? monthly?) thread for ADHD support?

I'd envision it for:

1. Venting
2. Mutual support, i.e. responsibility coaching, i.e. post what you're trying to work on so the rest of us can gently pester (check up on you) to try and help make sure You Did The Thing
3. General discussion as a hub for interesting ADHD-related articles/info/etc

Sort of like an ADHD club on Tildes that might help us all.

I know I am in love with the thread I linked just having so many of us there talking about this stuff. Reading others struggle with the same things I struggle with is comforting; reading others talking about conquering problems is lovely. And I know my "walking thread" is related to this idea - I started it to try and get folks from the community help keep me on track, so maybe that sort of thing would help others, too. (At least for some of us who aren't medicated! But even for medicated folks who could use that support)

So this is intended as a meta thread on the topic to see if the idea might have merit.

I think recurring threads are made manually, so I do volunteer to do that; but if the idea is a go and someone else would prefer to do it, I will certainly bow to that :)

(Also, it's my humble opinion that any autistic-related subjects would be quite welcome - I feel ADHD and autism are sibling diagnoses, even when they don't both apply to one person. Adn for that matter, anyone dealign with ADHD-adjacent issues - like how anxiety can sometimes present with ADHD-like symptoms - the venting and help-with-accomplishing-things should not be limited to JUST adhd folks, but I envision this as primarily and ADHD space that welcomes all. But my vision is up for discussion, IF the idea even has merit)

Hello everyone,

I wanted to provide a litmus test, of sorts. This test helps you figure out if you are engaging in the Sunken Cost Fallacy.

Sometimes I find myself asking if I should quit something, let something go, move on, etc.. It can be hard to figure out what the answer to those questions are. I heard a piece of advice regarding this very struggle, and wanted to share it with you all.

Ask yourself:

Knowing what I know now, would I still make the same decision that I did?

If the answer is "No" then you are most likely in a Sunken Cost Fallacy mindset. It could be argued that you should stop whatever it is you're considering stopping.

If the answer is "Yes" it is likely you are not in a Sunken Cost Fallacy and you made a decision in line with your values, even if it may not seem like it (hence the struggling).

Disclaimers:
Knowing the answer to this question does not imply you will know what to do with the information.

This test does not really "fix" anything, so to speak, but it is intended to help you realize when you are in a sunken cost fallacy situation.

^{I don't know if this counts as ~health.mental or ~life, so admins please feel free to move this as you see fit.}

A few days ago, I bought some Gameboy games for my Analogue Pocket from a local retro game store. I'm sitting here, looking at those cartridges and thinking only one thing.

"Why did buy these? They could just be a ROM".

This particular problem is easy to solve, I beat the games on cart and then sell it back to the store I bought it from. I lose some money, sure, but chalk that up to a learning experience. I just bought a new bag, I'd been researching options for months and finally picked one up when I was in the city. I felt like shit for the rest of the day because it was $30 more expensive than another option, even though the bag I bought:

• was available IRL so I knew it would fit all my stuff, unlike the online-only alternative.
• was made my city, with a lifetime warranty and a repair service available, unlike the alternative.

This seems like an unhealthy mentality to have towards buying things. Sure, a decent amount of restraint should be exercised when making purchases, but I have this feeling every single time I buy something. Even food does this to me to some degree (but usually that's because my eyes are bigger than my stomach, lol). I think this is a battle between my internal minimalist and my internal consumer, and I don't really know how to go about dealing with it.

Does anyone else have similar experience? I'd love to hear your thoughts on this matter. Alternatively, tell the story of your worst moment of buyers remorse :)

I might be a little early in posting this thread but I am personally beginning to stress a lot about the holidays - have been for like a month, even, to some degree.

So I wanted to make this thread as a safe venting space.

Is there anything specific about the holidays that might affect or trigger you?

How are you?

Feel very free to vent!

Hey Tildes,

Recently I picked up WoW again and I've felt a rush and focus I haven't felt for a while. I can play the game for an entire day. I feel nothing but guilt doing so. The one thing that gives me joy feels like something I'm not allowed to do at this stage of my life; I'm 35.

I'm in grouptherapy until march next year but I feel I'm not making any sensible progress. Others around me seem to open and loosen up, finding tangible changes that help their lives. Meanwhile I just keep resenting myself, dread doing anything that might even cost effort.

I feel I'm a fraud, a selfless good-for-nothing profiteer who blames anything but me. It fuels my self-hatred and my wish to self-isolate and act in self-destructive behavior. I also notice a growing bitterness as I get older.

I hate TODO lists. Even when they're for a single day.

I inevitably put more in my TODO list than I can accomplish in a day. When the new day begins, and I see the tasks I did not accomplish before, I feel anxious, sad, and even ashamed. Then I find some of that anxiety is for how my partner will judge me for the unfinished tasks on my list that she tells herself she expected me to accomplish.

While I have worked on self-compassion for years, occasionally it is not there. I have worked on having boundaries between my partner's own issues and my mental health.

I wonder how others with ADHD, particular those with partners, cope.

EDIT: I started using an allegedly ADHD-friendly planner yesterday. These feelings came pouring out of me this morning, hence the post. Yet I've had these similar difficulties for years.

“Dopamine” has entered cultural conversations as roughly equivalent to “the feel-good brain chemical.” People talk about “dopamine hits” and “dopamine fasts” and “low dopamine.” In a recent conversation a family member talked about starting the day on his phone and scrolling feeds “because I’ve gotta get my dopamine up before work.”

There’s a seemingly widespread understanding that dopamine makes us feel good and that it can be used against us to make us do things we don’t necessarily like (like endlessly scroll feeds).

Is any of this accurate to how dopamine actually works in our brains? It feels like an oversimplification to me, but I don’t actually know.

It also seems odd to me that there’s so much focus on dopamine but not, say, oxytocin or serotonin (unless you’re a Billie Eilish or Girl in Red fan, respectively).

Is our lay understanding of “dopamine” efficient shorthand or pseudoscientific sleight of hand?

I've been in therapy for ten years.

Recently, I hit a local minimum. I saw where the rest of the curve would take me, if I did not change somehow. It would end me early—maybe even in a few years or less.

And I saw what was holding me back.

I've had emotional scars accumulated from an early age. That kind of trauma seems to have a way of becoming a self-fulfilling prophecy; my life has been replete with repeated traumas. I've been reliving those root traumas over and over again, in my own mind, overlaid atop later events that only found correlation due to triggering those old wounded emotions.

I understand this to be called "CPTSD" in more civilized parts of the world than where I live: the United States. (As far as I know, the DSM-V does not acknowledge CPTSD.) I digress.

In therapy, I had identified two deeply wounded "parts" of myself: one represented by an ostracized seventeen year old Exile who attempted in all but direct intent to end himself and the other an emotionally abused and rage-filled ten year old Inner Child.

Recently, I healed the seventeen year old part. I saw how it was hurting me. Its expectation, its fear, of exile fueled nearly half of my life. My therapist and I pushed on it. What was preventing me from changing?

It was the fear of what I would become without it. Would I lose my wife? Would I lose my identity? Would I lose everything?

But it was this or my life. So, in that moment, I made a choice.

Instead what happened was something unexpected. The Exile flourished. It was as though my teen and 20 something years had been rewritten: a Back to the Future moment. It was no longer The Exile. It was transformed into something else entirely. It became strong and confident. Tapping into that part, by choice, I now seem to be able face most situations that would once cause near panic with, instead, determination. I persevere. I even seem, at times, to flourish.

However, the rage-filled Child remains. He is more activistic. He still has the sense that he will be punished for some perceived wrong. When provoked, he doesn't feel anxiety from these imagined tortures, he feels rage.

In my meditations, now, I attempt to integrate with this newfound strength to then reach out to and show more compassion to the Child—to salve his fear and show him that we, together, as a being, are now strong. I am hopeful.

In these ways, I am remade.

I still recognize old pieces. And, yet, there is so much new, so much yet undiscovered, that I confound myself with what is now easy and what remains difficult (but difficult in new ways). I am increasingly kinder to myself, allowing more connection with others, particularly those I would once consider incompatible, and perhaps even beginning to become physically healthier.

I can see a light at the end of the tunnel. Or, perhaps, I am only now stepping into that light, after decades.

How have you become more than your past traumas? How have you transformed for the better? How did you accomplish it?

EDIT: I shared this in the hope that it inspires. There can be healing, though it can take years and much effort. I would love to hear your stories of hope!

EDIT2: Feeling self-conscious, this all was decidedly not a humble brag. I never imagined that this sort of abrupt transformation was possible. However, it was a culmination of literally a decade of therapeutic intervention and hard work.

Previous posts:

• Comment: Becoming eligible to donate due to change in FDA guidelines that impact gay men
• Topic: I donated blood for the first time!
• Topic: I donated platelets for the first time!

Not sure if anyone here has been following my little personal saga on this front, but I have now officially donated a full gallon of blood products: two whole blood donations (1 pint each) and two platelet donations (3 pints each). All together that's eight pints, or one gallon! Not too bad for someone who just started this in January!

Having done it a couple of times now, I can confidently say that the worst part of the whole process for me is the finger prick at the beginning to check your hemoglobin levels. Because there are a lot of nerve endings on your fingertips, it hurts more and lingers longer than the needles in the arms. Those sting a little bit going in, but the pain isn't too bad and goes away very quickly.

I've been doing the platelet donations on my own, but my husband and I have been doing the blood donations together, which feels really cool to do as a gay couple since we were barred from doing it for so long. After our most recent donations we got free matching T-shirts, so now we can not only donate together but also look super cute while doing it too. 😁

This is probably the final update about this I'll post here. I don't want to come across as self-aggrandizing or anything, and I'm not posting this for any sort of kudos. I'm simply excited to share something that I've waited literal decades to do!

Also, while I was in the chair and watching my pint bag fill up, I did have a thought of "I should ask Tildes about this." In the US, they, of course, measure my donations in pints and gallons. In other countries however, is a pint still the standard measurement used for a "unit" of blood, or do they use a different easy metric unit (e.g. half a liter)?

Follow up to this post

I did my first ever platelet donation!

This one was a bit more intimidating than the blood donation. For platelets, the donation takes around two hours not counting the onboarding time. Additionally, during the donation, you can’t move either of your arms, as you have needles in both. The blood draws from one arm, goes into a centrifuge where they separate out the platelets, and then your blood gets returned to you in your other arm.

I was a little worried about how it was going to go leading up to the appointment, but I’m very happy to report that everything went fine! All of the needles went in easily and it was a nearly painless process. After that it was actually kind of boring! They had a screen with Netflix on it, so I watched three episodes of a TV show.

My least favorite part of the whole thing was not being able to scratch an itch when one arose, which is not so much a complaint as it is an endorsement. If the worst I can say is that I couldn’t scratch my nose once or twice during a multi-hour process involving multiple needles and my blood leaving and re-entering my body, then I’d say it went really well!

The staff kept checking in to see if I needed a blanket because most people feel cold when donating platelets, but, weirdly, I actually liked the chilled sensation I got? It wasn’t like a regular “cold” feeling; I found it genuinely pleasant.

Also, the whole experience was an interesting experiment in forced attention. I couldn’t check my phone, so I just watched a show, uninterrupted. I can’t remember the last time I did that? I got home and tried to continue watching it and, sure enough, now that my arms were free I was looking at my email and checking messages and the news instead of paying attention to what I had on. The whole donation session had a genuinely nice, calm, almost meditative quality to it. It was a nice way to start out a Saturday.

You can donate platelets separately from blood, and platelets have a much lower “donation cooldown” (you can donate them every seven days). I don’t think I’ll be keeping to that rapid of a turnaround, but I’m going to start doing it once a month. One thing I learned from this is that, unlike blood which can be stored for up to a year (edit: turns out it’s only 42 days), platelets have to be used within five days, so they’re pretty much constantly in demand because they can’t be stockpiled.

Anyway, I just wanted to share my little mini-milestone with everyone here. The novelty of being able to donate as a gay guy still hasn’t worn off for me. I love the idea of being able to do it regularly and support people over time!

I'm not here to talk about the New York Times bestseller, so apologies to anyone who's come looking for an informed discussion on that. Apologies if I'm posting this in the incorrect place, please move or delete the post if it's inappropriate. I had something of a breakthrough in therapy recently and I don't have anyone to share this with (for reasons that may become obvious) so I'm turning to Tildes to vomit these thoughts out into the world somewhere.

Like a lot of us growing older, I've been spending a some time trying to better understand myself and come to peace with the person I am. One of the aspects people around me (and myself) find perplexing is how I'm able to be personable and friendly, even popular in some circles, but given the choice I will stay away from people as much as possible (except for a very select few I can count on one hand). I often joke that if it weren't for my wife and kids I'd probably be feral and live in the woods, bite anyone who tries to get too close. That lady that lived alone in a cave for over a year? Life goals. I thought I was just a mega introvert, but something my therapist and I discussed made me realise that that side of my personality may be (at least partly?) a manifestation of past trauma. So here is my villain origin story.

I've shared before on Tildes that I was very sick with cancer for a good chunk of my infancy. Whenever someone finds out I had cancer (it's left fairly visible marks, so the topic inevitably comes up) I always say it's ok, I don't remember it at all, so really it's my parents who lived through the trauma, not me, ha ha. I no longer believe that is entirely true. The body does keep the score after all. My therapist pointed out that I must have spent many moments alone dealing with the consequences, unable to fully share or understand what I was going through. Moments where I was physically manipulated whichever way, by people and instruments, dealing the nausea, the pain and the fatigue. I was too young to fully articulate my distress, ask for help (beyond crying) or seek solutions to the problems I faced. So for some moments at least I had only myself to rely on. Did the part of me that would normally seek out others die a little then?

My parents used to remark that as a child I never cried out, just tears streaming silently down my face. They speak of how I used to play contentedly alone for hours. How I rarely asked for help when I really needed it. Don't get me wrong, I'm able to form relationships with people, and I'm perfectly capable of functioning in society. I do seek out others for company, connection, validation, love, etc, and vice versa. But I can't shake the feeling that there's something broken in those connections. It feels like something is amiss, even if I've mostly come to terms with being this way. I'm left thinking - did the trauma (at least partly) make me who I am? Where does the trauma end and where do I begin? How many of us are potentially totally different people today because the body remembers when we have completely and utterly forgotten? And if that's the case, is that...ok?

Follow-up to this post
(Summary: previously ineligible to give due to US FDA rules aimed at gay/bi men which were changed last year, then subsequently ineligible due to anemia which was resolved with an iron supplement)

I gave my first ever pint of blood this weekend!

The appointment went fine. I was a little nervous about the needle going into my arm, but I barely felt it. Taking the bandage off afterwards hurt way more! Even the finger prick at the beginning was worse. The actual blood donation part of the whole thing was painless and effortless.

I had no idea that the machine rocks your blood bag back and forth while it’s filling. As I sat there killing time during the donation, I watched my blood in its little cradle. It felt cute in a weird way?

Once my donation is processed, I’ll finally learn my blood type. My husband and I plan to start doing this regularly. There’s a donation center near(ish) us that’s easy to get to, and the staff were great. I might even try a platelet donation eventually, though that one intimidates me a bit. The idea of 2-3 hours with no use of either of my arms makes me nervous.

Anyway, I know donating blood is not a huge deal or anything, but I wanted to share a little mini-milestone of mine. As a gay guy, I spent a big portion of my life assuming I’d never be able to donate blood, so it feels really cool to finally get to do it!

Does anyone else completely disagree with that sentiment?

I see it a lot in these communities, and I definitely am not trying to yuck on someone else's yum, but I just don't relate to it. Maybe someone else can explain it better than me?

Like, I feel almost totally defined by borderline. I struggle so much with life because of this disorder. It takes so much time and energy away from being able to focus on normal people things, to the point that I feel unable to live a normal life without a ton of help and therapy.

So I just feel that I really am my BPD.

PS: not trying to stir a pot or anything, it's just a thought I had and wanted to talk about

My son shares a lot of my traits, including being Gifted. He's in kindergarten now, and we were looking into getting him a IEP (individual education plan) because he's Gifted.

In doing so though, someone brought up that it might result in an ASD diagnosis essentially - and they were right. Haven't had the formal test yet, but a lot of what I considered "idiosyncrises" in my son are also found in autistic individuals. Some of which I share. I have little doubt in the ultimate conclusion, which is that he's 2e (twice exceptional).

And it seems quite likely I am as well. It's gonna be a niche audience, but anyone in a similar boat? It feels weird looking back and (at 34) retroactively realizing why I do certain things the way I do.

Edit: I should add - it didn't really 'matter' to my development because I was Gifted. I can learn whatever, pretty darn fast. So I just taught myself social stuff, on purpose, when I was in high school and college. It takes a lot of effort on my part, but I can be "charasmatic". I ascribed the effort to my general tendency toward introversion, but it may have been, essentially, the mental cost of masking.

Edit2: oh man I even went out of my way to try and alter my personality towards more extroversion in college because it seemed more normal.

Edit3: and I taught myself to understand body language in high school, particularly to understand and help with reading girls I liked, and how they were reacting to various levels of flirtation.

Edit4:
My spatial sense is god level. My wife doesn't bother remembering where the car is, because I just know.

My audition is similarly unrivaled, I hear things others don't, and my phonological loop is amazing - I can hold audio in my head for a time if I'm truly concentrating on something else.

My imagination is virtually non-existent, I'm nearly a complete aphantasia case - the best I can ever manage is a pulse of a 2d image, kinda.

I'm incredibly good at math, computer science, etc. I know more about science than... anyone else I've met.

I've never really felt like I didn't belong, though. I just learned how to be an effective communicator from books and videos. I almost feel like I have weaponized ASD.

I often find myself ruminating over something I said that didn’t get the “right” feedback. Maybe this means my opinion wasn’t validated, or someone proved I was wrong, or I was completely ignored. The repetition of these moments in my head can last for days, sometimes years. I’ve learned a few coping mechanisms because no one can be perfect, for example, just telling myself that it’s a learning lesson and realizing that most of the “embarrassing” things I’ve said in the past are completely forgotten by anyone else who heard usually helps get me through. Can anyone who relates to this share some other good tips/tricks?

I'm trying to find the root cause of my declining mental health. Maybe there isn't one. Maybe my brain is just physically broken and I have to deal with it.
But what I tend to think of recently is the concept of belongingness.
I rarely feel I have a sense of belonging anywhere. And my theory is that the constant otherness is what is causing the degradation.

So what i want to is, for those who experience frequent depressive cycles -- do you have a sense of belonging? Or do you too feel constantly othered?

(I hope this makes sense haha)

I've just started switching my medication and it's been pretty bad for me. Brain zaps are very frequent and I'm crying a lot. I'm struggling.

I've been trying to find out what other people's experience has been like when they switch meds. What is normal and what isn't. People who relate to brain zaps and how they deal with it. Are brain zaps even considered a real thing?

What has your experience been like?

We have the weekly fitness check-in but I thought it would be valuable to have a thread to discuss more specific lifting topics and resources.

• What type of programs do you gravitate towards?
• Do you compete in Powerlifting/Weightlifting/Strongman or some other discipline? Any upcoming meets worth watching?
• Have you found any resources that others might be interested in?

I was inspired to write this after reading this reddit post. It ranted about people who attempt to disuade people from commiting suicide by telling them that they are selfish because of the impact it will have on other people (I do think it is explained better in the post if you are interested).
However I have also been thinking about how suicide prevention is handled by most governments. I am not sure of exactly what process happens in other countries, but in America if you fail a suicide attempt you can be involuntarily put into a mental health asylum for a temporary period of time, and from reading many accounts of what people have experienced in these asylums and from my ongoing experience with suicidal idealation I very much feel i would be 10x more likely to commit suicide if I was put into such a facility once i got out.
But I also wanted to talk about other ways individuals may try to disuade people from suicide which i find problematic. Before i continue, i do want to say that I am not blaming these people, they have very good intentions. But something that has bugged me for a while has been that whenever people discuss suicide/mental health problems the first thing that is done is just recommending suicide hotlines/telling the person in question to seek a therapist/psychologist. While these options can be good for many people, i want to mention that

1. Suicide hotlines (mainly 811) are known for reporting people to police and having them put in mental health asylums (often times unnecisarlly). And staff at these suicide hotlines are often uneducated or rude to callers, or will just not answer or even hang up.
2. Many people in these circumstances do not have access to trained proffesionals. Even if you live in a country with public healthcare, you may be in a situations (mainly abuse) where you cant get access to one either way.

Anyways sorry for the rambling, my brain is tired and i just wanted to get this out there. But based off of the above points, do you think that suicide prevention in society is flawed, and what could be better? While i do agree that it is flawed and there are ideas related to government on how to handle suicide prevention, i do not know what could be done on the individual level. To me one of my only resources apart from seeing other people experiences online is music (mainly Elliot Smith, Linkin park, Soundgarden and Nirvana) which I deeply relate to. But anhedonia can prevent enjoyment of such things.

I saw a post on reddit about a guy asking about why his wife changes hobbies so much. He went on to detail her getting super fixated on a hobby, investing a lot of money and learning a lot, and then dropping it. A lot of people were mentioning possibly being adhd.

I remember that being the first thing that clued me in as an adult who was not diagnosed until later in life.

Anyone else care to share?

About 3 or 4 times a year I will get pretty powerful manic episodes. Usually for a few days I'll stay at the office until late at night, I'm in an amazing mood, I'm always excited and have trouble sleeping. My focus is so powerful, If I could be this version of me all of the time I genuinely believe I could do anything.

It's like a totally different person from my usual self who is easily fatigued, slow to start, and generally lethargic.

Knowing this side of me exists is exciting but also kind of depressing given my awareness of its fleeting nature. How have you dealt with this? Any reading you could recomend?

Symptoms from my diagnoses of bipolar 2 and social anxiety disorder kept me from working, socializing, forming relationships, and living independently for more than a decade.

I worked my ass off to improve my wellness, and for the past 6 years I have worked as a Peer Support Specialist for 2 different public agencies. I tell my story to other people with mental health and substance issues as part of my work. If anyone’s interested, I’d love to share it here too.

About a year ago I was approaching 200 lbs. I work from home since pre-pandemic. I used to bike to an office but since then, I’ve moved somewhere less biking friendly. My strategy to tackle weight was intermittent fasting. And it was generally working for ~10 lbs and I stopped weighing myself for a year. And shirts were not fitting me, and then I learned the weight had come all back and more.
I knew enough that the fasting was going to do nothing if I was not telling my body to really use anything it stored up. Serendipitously I read about someone with a recumbent bike under their standing desk, and gaming, they’d wrack up the miles. I realized I needed that setup. I’m someone who just hates to go out of my way for working out.

Found one that was literally a desk chair with a bike under it and ordered it. I went from ultra sedentary to light exercise for ~4 hours a day. I’ve had it for about 2 weeks, and this thing is great. I’m listening to my body and not trying to do it too hard (for those who are concerned). Without every really trying to sprint I’ve been doing 40 miles a week-day. On the 4th of July I tried to see how far I could go biking all day. When I started I could not go anymore at 80 miles. Last weekend I easily knocked out 70 miles. The big thing is breaks. I’m not on a real bike, so there is no problem in taking a 5 minute break to knockout dishes or something. I don’t know if I trust the machine telling me I’m burning ~1,000 cals on my 40 miles, but I know what I am doing is healthy and I’m curious how my body will feel in 6 months or a year.

How do my legs feel? Oddly enough, during the day or after the work out, they’re beat. They seem to feel better by the time I’m ready to ride in the evening so no rest days yet. I’m shocked how much the leg fatigue really goes away once I start riding and focus on whatever is on my PC. Most of the discomfort is really from my bum. It has gone away generally though.
An odd risk I had to solve for myself was that upon pushing away from my desk while on my bike, I nearly topped my standing desk over. This was solved by well-placed PVC pipes and padding locked between the desk and the wall.

What bike do I recommend?
The budget version: https://www.amazon.com/dp/B004O6TXVS/
The one I have: https://www.amazon.com/dp/B0C8MVYLLT (but from their original website)
A cushion that the I book marked when I was doing research: https://www.amazon.com/dp/B01EBDV9BU

When I look up recumbent biking exercises, it’s kind of funny. It’s often recommended for the elderly because it’s potentially such a low intense workout. It’s great in a long duration. I would actually feel guilty spending this much time at the gym, but this method rocks. I have not worked out for this long since playing a Highschool sport. I won’t ever be shaped like a teenager again, but I can work towards it.

Hey all, my partner is newly paraplegic post spine surgery and while he's been disabled through our ten years together this is new. He's using a power wheelchair and has to transfer by Hoyer lift. And in the six days since he was discharged from the rehab (PT and OT) hospital he's been to the ER twice. We have home health set up. But all of a sudden my life is a lot more... Stressful is understating it. He's going through his own emotional journey and getting support so I was hoping to find some connections, suggestions and the like here.

Right now I'm feeling a ton of pressure not to let any of the various balls I'm juggling drop. Something that feels unsustainable, particularly with my ADHD. I feel like I'm only getting this far due to stress compensating for my lack of medication (it's packed from our recent move, I'll find it or get a new script I just haven't yet). My partner's in a rush to get a wheelchair van and I don't know if we're making a good purchase and it feels like everything has to be handled right now but also for the rest of our lives.

Are there devices that are must haves? Things I need to know about wheelchair vans? Empathy from fellow caretakers?

I have been running for 10 years. Since October 2019 I have run everyday without missing a single day. During the week I have little time and run 2-3 miles but on the weekends I try for 5-6 miles. I have made the occasional 10+ mile runs and find that at some point around mile 7 it becomes "How far can I really go today if I get through this mile." The only motivator I have is not breaking my daily run streak, nothing fancy. I know others have motivators to get into shape for a marathon or other event. What's your running motivation?

A recent thread had me reflecting on my own mental health journey and what really made a difference for me, I was interested in opening a discussion about what other people found most valuable too. I'll add my own as a comment.

Hi everyone! I am new to Tildes and wanted to say hi to the ~Health community. I am on a 28 hour emergency general surgery call today and have a bit of downtime. I also noticed that the post on the moral crisis of America's doctors had some interest so I thought I would answer any questions about that or training to be a surgeon in the United States. I am finishing my 2nd year of a 7-year training program. Ask me (almost) anything!

I’m interested to see how many others in the tilde community are trying to actively lose weight, what methods you’re using, any big milestones you reached recently and/or your goals!

I’ll kick off: I lost 25kg in 2022, have been on a long maintenance break while I restarted running and getting into my exercise groove, and am now starting up again to lose another 15-20kg. Last year I was just calorie counting but became a little obsessive so this time around I’m trying intermittent fasting - I’m short and I don’t have many calories to play with so skipping a meal feels like the most doable!

I’m a recent joiner after discovering tildes on Reddit (frankly have found that place terrible for my mental health lately, so this API thing bringing about discussions of alternatives has been a godsend!) but one thing I did like on there is the motivation I’d find in knowing I wasn’t the only one on this journey. Perhaps others feel similar! (And if not, if I’ve committed some heinous social faux pas by posting, I can only apologise - this feels like such a nicely curated place that I’m nervous of spoiling it like some great oaf burping during dinner with the queen)

I'll start this post off by summarizing my hair loss experience.

When I was 18, a few months shy of 19, I went to the barber and there was a miscommunication and the barber ended up buzzing my hair off. This is the first time that I was able to see my hairline in a while and I saw that it was higher than I remembered. I was scared at first, I couldn't believe that my hairline was receding. But then I read a few things figures maybe it was just maturing, and then I eventually forgot. Actually a few months later I was back thinking to whether I was losing my hair or not. I talked to a cousin of mine and he said something about a pill that he was taking but that it had a possible side effect of erectile dysfunction. I wasn't going to take a chance on that when I wasn't even sure if I was actually balding.

The next year and a half, I stop thinking about hair loss. It's like I had my memory wiped of that moment, probably due to stress from school. The only thing that happened is that I thought to myself was "man my hair is kind of weird right now." And also I had developed a scalp issue, which I later found out was psoriasis also due to stress.

So, right before the pandemic hits in February 2020, me and my dad go have lunch at this restaurant. I take a shower and go out. My hair is still wet by the time we go to the restaurant. My dad looks up at my hair and asks "are you losing your hair?" And that's when I realized that I was indeed going bald. For the next three months, I was going through all the stages of grief. I was wildly depressed and anxious. I did some research into possible treatments. It took me a while to learn (or re-learn) about the pill known as finasteride. I then find out about a website where you can buy prescription meds without a prescription shipped over from India so I buy finasteride from there and I started treatment on May 1st 2020. I was 20 years old. I then go to the dermatologist two months later and they prescribe me Dutasteride which I have been on ever since.

My initial side effect on the drug was watery semen, which cleared up a few weeks after starting the drug. My hair has re-grown a lot. It's back to it's original thickness, and my hairline has made a rather substantial comeback. It's not all back, but enough to the point where the average person wouldn't know I'm balding anymore.

Let me know if you have any questions. I would love to post pictures, but I rather not if that's okay with everyone.

Insight once came to me after I was prepped for a surgical procedure. As my body's weight began to evaporate, a pain I had never recognized, but which must have always been sounding in the background noise of my being, vanished. The superadhesive worry--which sometimes frightened others as much as myself, that in order to socialize, I had learned to sometimes twist into a temporary shape resembling charm--came unstuck and peeled away. Then followed a great thought, a mandate for how I should spend the remainder of my life. Also, I needed to poop. But more than that, I needed to get out of this semi-public hospital bed and to a private space immediately, so I could allow this cosmic insight a moment to fully bloom. Time was against me. Anesthetized, I knew I was slipping toward, maybe even over, the falls past which I would forget everything of this experience until a groggy post-procedure awakening brought dull daylight and its senseless aches back to me. I had to somehow save the thought. I searched, but the bathroom gave up no markers, no specimen cup labels to write on. I wondered about tearing toilet paper into little letters, hiding them above the cabinet. But would I remember to return to read the message? With an increasingly calm desperation, I dug my nails into the flesh of my hand and repeated again and again the life-saving insight delivered during communion with the world that lay beyond pain. Please remember, please remember this thought.

When I regained consciousness, it was waiting for me like a friend who had lost patience, and now seemed much less attractive. What I had somehow stolen from the gods, secreted in my closed palm through a swim across the river Lethe, was this message: “Do Drugs.”

I had realized that analysis, working on the problem of myself both mentally and verbally, had won me no appreciable gains. Insight, I had. But relief, happiness, an improved outlook? Nothing I had done had really helped me feel better. Anesthesia instantly had. These aren’t the words of an addict coming on-line. I was a reluctant user of any substance. However, in the years following I forced myself to again undertake drug trials with my psychiatrists. Methodically, I worked through every class, waltzed backward through the eras of drugs, danced off-label with each oddball wallflower, ingested every twisted molecule to ever win over the FDA with a promise of psychiatric benefit and maybe some that merely had intrigued one of my more historically-curious doctors. When Eddie Haskell, MD wanted to resurrect a drug of the bad old days just to see what it’d do to a person, I was the patient with his hand out.

I overslept and didn’t sleep. I gained and lost a third of my body weight. My head felt like a styrofoam block, then like the slate of a blackboard being scraped with tableware. I was more or less charged, sweaty, sensitive to light, and shaky. Some drugs make you feel like Benjamin Braddock in his birthday diving suit. Others make you feel like an amnesiac idiot in Benjamin Braddock’s birthday diving suit. A common theme emerges. These substances could help me feel slower, distant from the world, claustrophobic, clammy, sensorily distorted. Sometimes, they dulled my anxiety, or dried my hair-trigger tear ducts, but they accomplished this through impairment, and very clumsily. I have never been drunk, but I think it’s like a drunk traffic cop: success in psych meds comes about by the stopping of certain avenues, slowing up of traffic, blocking lawful turns. And it’s sometimes noted in the overall impact that fewer crashes have occurred. To me this is not success. Impairment so far hasn't been healing for me. I want my turn at quoting the line, "I feel like myself again."

And so, my heart sinks at every day's new headline about psychedelics. If you follow health news at all, you know they are a hot topic, showing a ridiculous amount of promise. Despite fitting the diagnostic profile, my former home was far from anywhere with signups for studies. I reached out to several "clinics" offering psychedelic-assisted therapy. They struck me as resembling many legal weed shops--loads of young bros polishing their presentation and sanitizing an extortionate drug deal in hopes of financing a Tesla. With fees starting at 8x the plane ticket to administer and contextualize a drug that costs less than $20 a dose, I wouldn't credit their soft patter as containing much idealism.

And here I am--for other reasons besides. Yes, a part of me thought living here would put legal psychedelics within my reach, but I'm not seeing any opportunities. Now I'm kicking myself for never having tried to cultivate mushroom spores, never having ventured to ask acquaintances for a hand. I'm marooned here and psilocybin is about blow up in the States.

Hello everyone,

I recently got put on some SSRI for my worsening suicidal ideation and honestly I can't believe the difference it's made. It's like a version of myself that I find hard to believe existed, but can draw parallels with the version of me before I got depressed, etc.

I'm just curious how I should be viewing these changes in me: Are they really me without depression/anxiety or is it a more lurid exaggerated version of that?

Any other thoughts on SSRIs in general welcome! I'm interested in seeing Tildians' thoughts on them :)

I think those could be real useful especially now. Sometimes I want to share related stuff but they would not warrant a full thread .

It’s possible that they never existed and I’m delusional. In which case, I think they should be a thing.

Around 2 years ago, when I first made a reddit account, I spent a lot of time on AskReddit asking about 'why are women so hard to date' like a personification of the dunning-kruger effect (while I don't think I've really learned anything about dating and socialization since then, I have stopped thinking women don't share the same basic emotions and reactions as men and in general don't think they're so removed from guys). Given that and how little engagement my threads were getting (it's AskReddit, but I didn't know what I was expecting) I was basically ready to be made an incel. Thankfully someone snapped me out of it by calling 12-year old me a neckbeard, which terrified me away from touching dating for a few months at least.

PS: If the answer is "if you don't feel like this you're in trouble, people don't/shouldn't just stop developing like that", I won't be surprised.

I'm sure something everyone has wondered at this point is simply what the plan is after the lockdown. Out of what's circulating in public policy circles, Paul Romer's plan is the probably the one with the most appealing results

https://paulromer.net/covid-sim-part1/

Basically, mass random testing--specifically, 7% of the population is tested every day, or 21 million, selected randomly.

Of course, 21 million random tests is an absurd number. But if it could be done, people could to some extent resume life, if the simulations hold to reality.

On the other hand, plans like

https://www.aei.org/research-products/report/national-coronavirus-response-a-road-map-to-reopening/

https://ethics.harvard.edu/covid-19-response

Have a few things in common. For one, they all involve incredibly advance and detailed contact tracing. They rely on the proliferation of mass surveillance similar to HK, where all US citizens would have to install apps, for instance, that track their location and ping them when they have been in contact with a COVID19 positive patient.

They also involve extreme limitations on travel, and one of them even has the forced drafting of immune citizens into the medical and food industries.

It's estimated about 80% of the economy could continue, and they will last until the minimum of vaccine (18 months - 2 years) or 14-20 months (herd immunity is achieved).

What does everyone else think? What do you think we should do after the lockdown?

Have you ever really looked at what you eat? If you have, you may notice one common ingredient present in everything from vegan sauces to certain ketogenic foods. Taking those specific diets into consideration, the widely accepted figure for keto is <100 grams, and similar in the vegan sphere as well(Often times you'll see a quoted 30 grams, but the kicker always comes in the comments where someone says fruit based sugars don't count towards this. They do, very much so, count towards it). This is far, far, far too much sugar for any one human to be taking in a day. The FDA has no recommended figure for their DV scale of food labels, but other groups certainly do. The World Health Organisation recommends no more than 5% of daily calories be from sugar of all types. This is equivalent to 25 grams for a 2000 calorie diet. The American Heart Association recommends the same figures.

Now, you may be asking yourself, why would the AHA bother themselves with sugar? Certainly that's more for a diabetes association to study than a heart disease one? Well, it's because sugar is heavily linked to heart disease. From the source:

participants who took in 25% or more of their daily calories as sugar were more than twice as likely to die from heart disease as those whose diets included less than 10% added sugar

So, not only are you at risk for heart disease, but there are new studies that suggest alzheimer's is nothing more than a 3rd form of diabetes.

I'm not hoping for much in posting this, except that someone somewhere looks at their diet and resists the stranglehold sugar has on our present society.