Author's note: I'm mostly typing this up for myself as a writing exercise to sum up my situation, so that I can present it to a doctor one day if I can find one who will listen. It's a long read, and I don't expect anyone to seriously read it? But, if you happen to make it through and have any advice, or recommendations for specialists I could seek out, I would really appreciate that.

I work remotely as an open source maintainer for a university research lab, so I spend a lot of time at my computer. Throughout my adult life, I've found that I work best when sitting in my bed with my laptop. Yet, I figure sitting in my bed isn't the best for my body, so I've tried hard over the years to make a desk setup that's as accommodating as possible:

• I have a big corner desk with lots of tabletop space and overhead cabinets.
• I've set up cozy under-cabinet 2700K LED strip lightning.
• I've decorated the space with nice sentimental things.
• I've got a foot-warmer under the desk (since I have chronic ice-cold feet for reasons I don't yet understand).
• I own a (secondhand) Steelcase Leap v1 that I've meticulously adjusted to my body, making sure all of the heights and distances are within typical ergonomic recommendations.
• I have an ergonomic keyboard with a sliding under-desk tray
• I've gotten dual monitors, with one being a modern 1024*1280 monitor to avoid whiplash from an extra-wide double-1080p monitor setup.

Despite all of the above, every time I go to use my setup, I feel a big sense of revulsion and a big urge to just curl up in bed with my laptop.

I've spent a lot of time thinking about why I react this way, and I attribute it to a whole bunch of underlying factors:

1. I'm autistic+anxious (ASD/GAD diagnoses), and I was previously diagnosed with ADHD, too.
2. I struggle a lot with pain/physical discomfort:
   • One of my brain quirks is that I have big sensory sensitivities surrounding my body. I'm hyperaware of any uncomfortable sensations in my body, and pain/discomfort can completely derail my ability to focus and be present in the moment. For example, if I eat too much and feel overfull, the sensation of my stomach pressing against my other internal organs drives me crazy, to the point where I can hardly even watch a show or listen to music. The same goes for when I'm constipated or have an upset stomach. When I get like this, it's like I can't feel any emotions. The discomfort/pain are the only physical sensations I can take in, because they crowd everything else out. I can't feel warmth or happiness or fullness in my heart. All I feel is discomfort.
   • My anxiety results in a near-constant state of tension. I'm often very aware of the booming of my heartbeat, or tightness in my chest. I fall into a negative feedback loop, as it makes it very difficult to relax, which further triggers anxiety and tension. (Side note: Beta blockers are the most effective anti-anxiety medications I've ever been prescribed for exactly this reason. They target the physical sensations, and helped me feel an overall sense of calm. I haven't been prescribed them in 7+ years, though, because every new GP/psych I visit automatically discounts them as off-label/not-first-line approaches, even though I've had direct success with them when other approaches have failed. I wish doctors would listen to me. Would weed help?)
   • When I get anxious/depressed, I find that my posture suffers a lot. My body sort of curls in on itself, as though it were attempting the fetal position. It takes an exceedingly difficult amount of effort to preserve good posture the more fatigued I get. But, in such a state, I don't have the spoons to exert this effort -- it gets harder and harder until I inevitably curl up in bed.
   • Wouldn't you know it, I have chronic pain, too. Multiple times a week, it manifests as this combo of upper-back/shoulder/neck/sinus/behind-the-eyes pain. It typically happens only on one side of my body (though which side it happens on is not consistent). The sinus pain is curious, too: I regularly have a "cold nose" (similar to my cold feet), and breathing in feels icy and sharp, with a tingle like I'm about to sneeze. I find myself reflexively picking or prodding at my nose just to distract from the painful sensations. I often cover my nose with my shirt so that I can breathe in my warm, moist, exhaled breath. It doesn't really warm up my nose, but it provides some in the moment relief.
   • You can imagine what this chronic pain does to my ability to feel emotions or focus on tasks... I rely a LOT on Aleve. ;;
   • I'm also sensitive to temperature: I really dislike being too cold or too hot. I often change clothes multiple times a day, from shirts to sweaters and back + shorts to sweatpants and back, because I'm constantly adjusting my temperature.
   • I also am particular about pressure and textures on my skin. I don't really like having my skin exposed? I like big comfy sweaters and a specific kind of sweatpants that Uniqlo used to sell. I also really adore this specific duvet I got from IKEA, because it's big and fluffy and weighty. It's like a semi-weighted blanket without being so densely concentrated (I have a glass bead weighted blanket I hardly use because of how icky it feels).
   • Because of all of this, my ideal state of being is one where my body just kind of... disappears from my consciousness? I strongly wish I could exist without being aware of my physical form, because I'd say at least 90% of my waking hours I'm feeling some form of discomfort or another, and thus 90% of the time any happiness is blocked by the discomfort.
3. As far as working on a computer, I find that I'm most productive when I can sink into a state of hyperfocus/flow and attack a task for hours at a time in a single sitting. I'll lose track of time, come out of the state wondering where the day went, yet be insanely productive during that period.
   • Naturally, this goes against conventional advice for computer-based WFH, since in this state I don't take stretching breaks, don't adjust my posture, don't rest my eyes, etc. But, I find forced breaks tend to rip me out of my focus, and it takes a lot of self-regulation/spoons to get back on track after a break.
   • Despite the terrible ergonomics of hyperfocus, it counterintuitively acts as a needed respite from the pain/discomfort. Being hyperfocused is one of the only states that supersedes the sensory sensitivity I have. I'll often be so focused that I don't notice the state my body is in, which is pretty much my ideal! (Side note: Because of this dynamic, I often lean on rhythm video games as a respite for pain, too. They're easy for me to hyperfocus on, which makes passing the time a lot more bearable for me when I'm in pain.)
4. And, the environment most conducive for sparking a state of hyperfocus is my bed, rather than a desk.
   • Even with all my adjustments, my desk feels very finicky and dynamic. The chair rolls, the keyboard tray slides, the chair back reclines, my foot warmer slides around. Rarely do I feel anchored, and rarely does everything feel "just right". I can't really find a "locked in" position for hyperfocus, as my body is always interacting with its environment via subtle little tics and adjustments.
   • I also find that sitting at a desk leaves me feeling rather exposed? Even with clothes on, I just... don't have enough weight on my legs to feel fully comfortable.
   • When I do try to sit at a desk, I may be somewhat comfortable at first, but as time goes on I get more and more uncomfortable. Maybe a tricky task temporarily spikes my anxiety, which causes tension and pain, which makes me focus on the pain, which makes it harder to think clearly about the task at hand, which makes me more anxious, which begins to affect my posture, which makes it harder to properly sit in my ergonomic chair. I'll fidget and shift, and start to lean on one arm. It often escalates to the point where it feels like torture to hold my own body up, because I feel like a ragdoll in my chair.
   • My bed, by comparison, doesn't ask any effort of me at all. I'm fully enveloped by the mattress and my pillows, so if I end up in "ragdoll anxiety/depression" mode, I'm supported in exactly the same way I would be if I was in "full spoons" mode. I also get the comfort of my duvet, with fluffy warmth and weight on every part of my body, and very little of me being exposed.
   • This means that I can somewhat ignore my body when I'm in my bed. Even if I'm in pain, even if I'm anxious, I don't really have to... DO anything about it? I don't have to physically move my body in a specific way in order to keep hacking away at a task. The pain will still be there, but the hyperfocus state can win out, and I can work away while feeling like my laptop is an extension of my body.

Surely this isn't good for me, right? Surely I should be attacking the root of the problem so that I don't devolve into a ragdoll mess of pain every time I try and use a desk? Surely lying in bed for hours at a time isn't good for my body, right? But, with this multi-layered set of factors, with many of them being inherent anxious/autistic traits, I don't know how to create an environment that's any better for me than my bed is.

What do?

by Wes Davis

A key cold medicine ingredient is basically worthless

The FDA’s 16-member advisory panel unanimously voted yesterday that oral phenylephrine, a common active ingredient in cold medications, is no better than a placebo for treating congestion.

Link to the article

The call by the panel sets up potential FDA action that could force the removal of certain over-the-counter medications containing the ingredient — including certain formulations of Mucinex, Sudafed, Tylenol, and NyQuil — from store shelves.
But FDA may hold off for many months, pending contested findings by drug makers and other considerations.

Data

Newer data from studies the panel says are more consistent with modern clinical trial standards showed phenylephrine simply “was not significantly different from placebo” in the recommended dosage, including trials from 2007 that the FDA had reviewed when considering the drug after a citizen petition prompted it to do so.

Bioavailability

The panel cited the drug’s low bioavailability, a term referring to qualities that allow the drug to be absorbed by the human body, as the main reason the drug should be removed from the market.

Jennifer Schwartzott said the drug “should have been removed from the market a long time ago,” while Dr. Stephen Clement said that although the drug itself isn’t dangerous, its usage by patients should be considered unsafe because it potentially delays actual treatment of disease symptoms.

Alternative

The panel cited pseudoephedrine as an effective alternative though while it’s technically available without a prescription, you must talk to a pharmacist to get it because, in large quantities, it can be used to make methamphetamines.

I'm trying to find the root cause of my declining mental health. Maybe there isn't one. Maybe my brain is just physically broken and I have to deal with it.
But what I tend to think of recently is the concept of belongingness.
I rarely feel I have a sense of belonging anywhere. And my theory is that the constant otherness is what is causing the degradation.

So what i want to is, for those who experience frequent depressive cycles -- do you have a sense of belonging? Or do you too feel constantly othered?

(I hope this makes sense haha)

I have a very long history of mental illness from age 10, and though I've cycled through a lot of explanations the diagnoses that best match my symptoms currently are currently ADHD and CPTSD. I am medicated for both, and although I am not in active therapy I have also done therapy. I consider my mental health relatively well-managed currently: at least, I am not in any urgent danger of hurting myself and it has been a very long time since I have been. Certainly things could be better but I'm usually functional.

But sometimes I go through these phases, generally 1-3 months long, where my ability to function on a normal level slips dramatically. It never gets to the nightmarish state I was in when I was a teenager, but it becomes hard to... oh, make appointments, do the dishes, walk the dog, just generally deal with the obligations of being an adult. My house is never in GREAT shape but it becomes a disaster. Work performance suffers a lot, my relationships suffer. I also start experiencing emotional PMS symptoms (or perhaps I just lose the ability to suppress them), and while I'm not the type to have "emotional outbursts" I do experience deep and irrational sadness or anger on those days. I also tend to end up dealing with insomnia, which is like a force multiplier on feeling overwhelmed.

It sucks especially because it's like I'm watching myself do it, and I feel as though I don't have enough control over myself to nip it in the bud, and sometimes the damage I do during these times is not fixable at all. It's almost like an unplaceable craving, like there's some thing I'm missing and my subconscious and my body are trying to send me signals, and I just can't interpret them right and figure out what I need.

How I generally get out of these phases is -- well, it's a bit chicken-egg, because the turmoil makes it difficult for me to reach out for help or even do anything to help myself, so to me it seems like sometimes the wave just passes. I'll say, "ok, this time I'll get my shit together", download some new app or whatever, organize my time or tasks via some new fascinating system, and that'll work... but it feels like it's only because I'm "ready" for it to work.

I think it's unlikely I'll find a solution that will work indefinitely to prevent these slips (hooray, novelty-obsessed brain). And anyway - as though it even needs to be said - I'm sulking in the midst of one now, so prevention or reduction tips might be helpful later, but for this moment I'm mostly concerned with getting out once I'm in.

If you have "swingy" mental health, or phases, or waves - what do YOU do about it, if anything? Therapy? Do you change your medication? Do you take a vacation? Commiserate on your favourite internet forums? What works for you?

I'm a long time Tildes user but I've created this separate account because I'd like to avoid connecting this topic to my normal username.

I am going through a divorce that will take about a year to finalize and I am struggling with the stress. If it were a short term thing, I would grit my teeth and bear it, but I have a full year ahead and I'm afraid I need some help in order to make it through with my physical and mental health intact.

My wife has a personality that includes "kill mode" for anyone she deems as an opponent -- whether it is another driver on the road, a customer service agent who doesn't give her what she wants, or anyone at all who she perceives as having slighted her. This is one of the reasons why we're getting divorced. I have nearly the opposite approach to conflict, and I can't handle seeing people get attacked so fiercely or so often. Now that we're getting divorced, I am the target of these attacks. For clarity, they're only verbal attacks, not physical -- there is no physical abuse in this case.

I could stiffen up and fight back whenever she starts arguing with me, but we have kids and I want to commit myself to preventing their exposure to hostilities as much as possible. But this means I have to do my best to brush off my wife's verbal abuse and maintain composure so they can have a stable dad to rely on.

Right now I'm having trouble sleeping and I am constantly anxious throughout the day. It gets worse whenever I have to interact with my wife; and unfortunately we have to interact frequently every day to coordinate childcare and logistics of the divorce. I have a tightness in my chest from being so anxious (not heart attack) and I am struggling to maintain focus on work or any tasks I have to complete. I can hold back the tears, but I really do want to cry many, many times a day.

What can I do to wade through this time period? I know there are breathing exercises to help calm down. What else can you recommend? I am trying to make sure I do eat well enough and that I drink enough water. I avoid alcohol entirely and don't take any kind of medication.

Any advice at all would be greatly appreciated. And I'm sorry if this is not an appropriate forum for this question. I will delete if so.

What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?

Hey there, curious if any other folks on tildes suffer with this, and if so, if you can share things that have helped you.

Context: I am a very light sleeper. Eg: the sound of a phone vibrating, or whispering, will wake me up. I have no issues falling asleep at night, nor do I have any anxiety around sleep, I just wake up from the slightest noise. I've been like this all my life.

Unfortunately, I also live in a very noisy neighborhood: lots of modded vehicles, lots of rumbling bass, etc. I wake up 2-5 times a night. I might get a full night sleep once every 2 months.

For the past year, I've been working very hard on solving this problem. I have made some progress, but still suffer nightly because of this. Things I've done:

• Noise masking: I now have 2 white noise machines, an air purifier (max volume), and sleep with ear plugs. Unbelievably, the cars are still loud enough to be heard over all of that and wake me up. Even when I can't hear them, they vibrate the floor/my bed, and the vibration wakes me up. However, this has still made a massive difference (I went from about 3-4 hours sleep/night, to 6-7.)

• Sleep hygiene. I've learned a lot about it, and worked hard to implement different techniques. I keep a very steady sleep schedule. I eat well and exercise. I do not get in bed ever unless for sleep. etc. While this does not prevent waking up from noise, I think it helps with keeping sleep consistent (i.e. at least I know what time I'll get tired at night.)

• Light: In similar vein of sleep hygiene, I've learned a lot about how light impacts our sleep wake cycles; I avoid light and screens in the evening, and get in direct sunlight (for about 20-30 minutes) within an hour of waking. Again, doesn't help with noise, but helps tremendously with keeping sleep consistent.

• Medical help: I see a neurologist / sleep specialist. He is wonderful He prescribed a low dose of gabapentin, which has actually been really helpful. Unfortunately, it only lasts about 4 hours, so while the first half of the night is good, I still wake up many times in the second half of the night. I have tried some other medications (trazadone, benadryl, zyrtec) but they have either had no impact (trazadone), or make you drowsy the next day which makes me miserable (bendaryl, zyrtec).

One slight annoyance is that whenever I bring up sleep issues, the first response I tend to get is "you must have anxiety". Then, advice is tailored to that. Really, it is not anxiety, and therapy will not help me here. I just wake up insanely easy. It seems most solutions are for folks with anxiety, and I don't find a lot for folks that are just light sleepers. Can anyone relate?

Any advice you can throw my way?

What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?

It's Spring here in Australia which means hayfever for me and more frequent usually minor sinus pain. I often wear sunglasses outside but I have 20/20 vision (afaik) so I don't have prescription glasses. I did get some cheap blue-light glasses a few years ago in case they helped with tiredness/eye strain/sleep hygiene when I was using screens late at night. I recently noticed that wearing them when I have sinus pain helps alleviate the pain a little. I've noticed before that pinching the bridge of my nose can help especially when the pain is bad, so I suppose it makes sense that the glasses do something similar.

This is my first post, and usually when I'm curious about something I look it up, but I only really found people talking about how glasses can cause headaches when they're ill-fitting. So I thought I'd ask around here to see if anyone else has experienced this or otherwise was interested in the topic. And maybe this will help someone in a similar situation.

Hello ~health tilderinos!

I have a case of the 'uneven pecs'.
To elaborate, my left pecs is much more developed and my right seems to be lagging behind which is mighty frustrating because I've always used dumbbells to eradicate any sort of uneven muscle development :(

My upper body strength training routine consists of

• bench presses (incline, flat, decline) with dumbbells
• bench presses (incline and flat) with cables for inner chest development
• rows with cable machine
• cable crossovers (high, low, mid)
• dumbbell pullover

FWIW I do have really uneven abs -- the abs on my left side are off by one. They first left ab starts where the second ab of the right side starts if that makes sense?
So I am sort of acknowledging that this could be genetic and out of my control.

Any help/insight/advice appreciated!

So, this won't be like the usual posts on Tildes. This will be on the long side and rambly, so I apologize for that in advance. Maybe this would fit better on a blog, but I don't have one so I'll post here instead. But while this post is definitely meant to be cathartic for me, I think maybe this will help some people too. Especially those who haven't experienced a super close or sudden loss yet.

I want to talk about neurodivergence and grief.

To start, I'm a 28-year-old woman. Higher end of the autism spectrum (diagnosed with Asperger's, though that term is out of favor now) and ADHD, and my parents managed to get me diagnosed by first grade. I've always known I perceived the world a bit differently from others, and this is further impacted by the fact I'm a writer. I often say one strange silver lining to being a writer is that everything is experience for writing. I've always been able to "detach" myself from reality pretty easily and view it from an almost outsider's point of view. Not full-blown disassociation, but I can step back more easily than most and start analyzing myself and others' actions. That definitely came into play here.

Two weeks ago on Wednesday, August 23, my dad died at the age of 68. Heart attack while golfing, stemming from a lifelong heart defect (structural issue, discovered when he had a heart attack at the age of 17). He had no other health issues, he went to regular checkups every six months or so and his heart checked out as fine as it could at the last one. There was zero warning, he was in perfect health that morning and everything was totally fine and normal up until the attack. The autopsy confirmed there were no external factors like the heat at play, just his heart suddenly giving out.

Just, one minute he was fine, and then less than 24 hours later my mom and I were sitting in a funeral home talking about packages and then to the cemetery to buy grave plots. It's the definition of a sudden death.

They say that everyone grieves differently, but I've been aware for a while that my grief is different from others. Until now, my experience with loss has been limited to three grandparents and pets. No aunts or uncles died during my lifetime, no cousins, no friends barring a former classmate who I didn't know too well but who committed suicide. With my grandparents, I definitely noticed I reacted differently. For example, I ended up checking out caskets during my grandmother's wake and talking to the workers about things like cremation jewelry. I still feel a bit bad for my dad who patiently followed me in there during his mother's wake. With my maternal grandfather, I remember thinking about a book I gave my grandmother while at their house, and I'm pretty sure I mentioned it to my cousins. Keep in mind, this would be like two hours tops since he died.

So, yeah. I've been aware for a while that my reactions to death and grief thus far aren't really "typical". I sometimes felt a bit guilty with how easily I felt okay after my grandparents died while seeing everyone around me nearly break. And more than that, I've been concerned about how I might react to other deaths. Particularly my parents.

So what I'm saying is that my dad was my first brush with super close and sudden loss.

So, now that you have the facts, I'll just start explaining my experiences with grief.

The Initial Reaction

My very first reaction: shock. Not even numbness, just shock.

My mom came home, and said she had bad news. I immediately thought it must be my grandmother, who's currently 97 and whose health has been on a steady decline. Instead, she told me my dad had a heart attack at the golf course (oh my gosh, is he okay?) and was pronounced dead at the hospital. For the first time in my life, I found myself asking if it was a dream and genuinely wishing it was. I hugged my mom and whispered "please be a dream", just like I often read and wrote in emotional scenes, and I meant it.

Almost right after she said that, the garage door opened and my first thought was that it was my dad, but instead it was my aunt.

That's around when my "writer-brain" kicked in. I looked at her and said "(Aunt), Dad's..." I couldn't finish the sentence—or maybe it wasn't a matter of could not but did not, because my writer-brain pulled upon all the similar scenes I'd read and written. My aunt pulled me in for a hug, followed by my two uncles, and I cried into their shoulders. I repeated this when my dad's brothers and their wives showed up, and pretty much everyone else who visited in the coming days.

Writer-brain led me to making a couple of docs on my phone: the first titled "Feelings of Grief", the second titled "Dad". "Feelings of Grief" was a bullet-point list of observations of my feelings and reactions. My arms felt heavy and kind of numb. Lifting my phone could be hard, every time I'd set it down or lower my arms in general my arms would just flop down to my side. I'd randomly start to cry and tear up. My chest hurt a bit. I felt empty. It was stronger when alone, maybe because I could distract myself with other people. Noted later in the evening that my arms were still kinda limp, and I didn't have many photos of dad on my phone, and please please PLEASE let mom's phone be synced to the cloud and the photos she had still there.

One interesting note I left: it wasn't the same hollow feeling as the former classmate who committed suicide. Writer-brain had kicked in similarly back then. I remember noting to myself how my jaw just naturally fell open of its own accord, I even closed it and it automatically went slack. When our vice principal first mentioned he'd died, my first thought was "oh no, it must be a car accident". But when he revealed it was suicide, it was a gut punch and the feeling was just... hollow. I reaffirmed this the next day while talking to my mom that there's a difference between "hollow" and "empty", not one I can put into words, but a difference nonetheless.

The second document on my phone, "Dad", started on Wednesday night as an obituary. When my grandfather died, my dad had told me how sad he always found those short obituaries, so I knew we'd have a long one. I'm a writer, so it felt natural that I start on it to take some of the burden off mom. The next day, I read it to mom and we ended up using it with minimal changes.

What I didn't tell her was that the rest of the document was basically me journaling. I don't journal, but I know writing helps me process things and organize thoughts, so I just wrote. Starting with the words "Dad, I love you." I wrote out all my thoughts, a letter he'd never get to read. I wrote about checking the Ring camera and it automatically pulling up the video of him getting the paper with the dog that morning. I made my bed and cried, put away dishes and cried, couldn't finish folding the laundry because I realized some of it was his. At that point it clicked in my head that the format was poem-like, and I wrote lines with questions that could fit a poem structure. I'm not even a poet, I've always preferred prose, but that's where my brain went.

And I also wrote about how I knew I'd be okay, because I already knew my grief was different. And how awful that made me feel. How I felt guilty that I wasn't there when mom was downstairs. She got the call while doing laundry, and I think I came downstairs right after she left. She went there alone, my uncle meeting her at the hospital, and had to wait until the doctor came out, while I was at home totally oblivious to the fact the most important man in my life was gone.

So, I never saw my dad in the hospital. Never saw how awful he looked after the attempts to revive him, only saw him on Monday at his calling when he'd been cleaned up. Both docs had me wondering if maybe the fact I hadn't seen him let my brain detach more, let me distance myself from his absence and the situation, and if seeing him on Monday would be when it really felt real.

Day 3 and Onwards: Weirdly Okay

On Friday, Day 3 after my dad died, everything felt... weirdly normal.

I think on Thursday, my brain was already starting to push me out of heavy-grief mode. Every time I hugged people on Wednesday I'd automatically cry, but I think towards the end of Thursday that reaction was dwindling. I think on Friday itself, it stopped entirely. I'd hug people but tears wouldn't automatically spring like the previous two days. I could even already tell, "Oh, I'm gonna get kinda tired of all these hugs, aren't I?" On Thursday I randomly cried a couple times, had to run upstairs to hug my mom as it crashed into me once again, but that didn't happen as much on Friday.

I'd already joked about "literal Covid flashbacks", because I got Covid this year and my primary symptom was an eternally runny nose. I went through at least one tissue box on my own and by the end my nose was just sore from blowing and wiping it so much, so I joked my brain didn't want a repeat of that soreness.

Inwardly though, I was reflecting on my previous experiences with grief. I knew I'd enter an "okay" state sooner than others, but I didn't expect it to happen so fast after my dad died. I still felt sad, but I wasn't randomly crying anymore. I live at home, never moved out and even attended a commuter college, we've always been an incredibly close family, so his death should be more... I guess devastating? Heart-breaking? It felt bizarre to me, to already feel like I was edging back towards okay.

My theory: it's an evolutionary trait promoted in neurodivergence, to ensure that at least one member of the "pack" won't be vulnerable. Make sure someone can be functional enough to identify potential threats and such, maybe go out for supplies. I mentioned this theory to a few people in the coming days. My mom said it was almost like a superpower when I explained it.

And as the child in the situation, it sucks. I don't have the experience or knowledge to do all these arrangements. All the financial stuff is on my mom since she has the accounts, she knows who to inform and could estimate how many people to expect, she had all the contacts who could help arrange and set up a reception at our house, etc. And even besides that, as the child in the situation, it wasn't exactly "my place" to do a bunch of that stuff. I couldn't directly help with anything but the obituary, provide tech support for getting the photos for the calling, and providing emotional support.

So, yeah. That sucked for me because I knew I felt much better than mom did, but couldn't really do much to ease her burden. So it felt like I was largely leaving her on her own to navigate the funeral process. We had my aunts and some of her friends present to help, including some who'd experienced similar abrupt loss and could help guide and advise her, but there's still a lot of stuff she needed to do herself. She didn't have much time to really process it on her own because she was just so busy, I don't think she really got a chance to relax until Wednesday after everything was over. So for most of the process, I was much more cognizant of my mom's grief than my own.

And I was honestly quite open with this. I didn't flaunt that I was weirdly okay, but people would ask how I was feeling and I'd be honest: "I think my neurodivergent brain is helping." By Sunday, I was still weirdly okay. The calling was the next day. I helped mom submit the pictures to the funeral home's website. We had a small horde of friends and aunts help move stuff to the backyard to prepare for the post-funeral reception at our house on Tuesday. We got through the day, and picked out dresses to wear.

The Calling

At the calling on Monday, I got to see my dad for the first and last time.

My mom originally wanted a closed-casket calling, but agreed to open-casket because we knew some people needed it. Including my uncle, who'd been present at the hospital and who my mom described as even worse off than her.

It turns out, my mom needed it too, more than she realized.

My dad had an autopsy for a few reasons. I kind of expected one given his heart defect, but there was also the fact it was an incredibly hot day and he hit his head when he fell, so the coroner wanted to confirm what exactly the cause was. And as I said near the start, it was just his heart. As far as I'm aware, he most likely died instantly from the heart attack itself, but they tried to revive him for a while before calling his death, maybe half an hour. The doctor at the hospital said he'd tried everything he could to bring him back. Surgery, intubation, etc.

To sum it up, he didn't look too good in the hospital. When I expressed regret I hadn't been with mom, she said she was glad I hadn't been there. I still wonder if that might have helped me get "okay" so quickly, since I didn't have the traumatic memory. He died away from home, so there's no traumatic memories associated with his body in our house. My first and only time seeing him post-mortem was at the funeral home, after he'd been cleaned up and dressed.

My dad in the casket looked peaceful. I don't know if I'd say he looked like he was sleeping, but he looked so much better than I had feared. At one of the last funerals I attended, I felt like their body hadn't looked like them (and my mom also felt that way when I mentioned it to her later), so I'd worried that might happen here. It was a relief that dad still looked like dad. Later, one of the morticians commented about the nasty bruise on his head from the fall, and I know that bruises can be particularly stark on corpses, so. Big kudos to the mortician. I think seeing him like that, instead of her last memory being at the hospital, was a big help to my mom.

Mom and I hugged in front of him and cried. We talked to dad a bit, and then people poured in. Relatives first, and then friends started coming, both friends of my dad and my mom. My mom is a social butterfly and has a MASSIVE social network in the local branch of her industry, to the point there's an actual joke about "Six degrees of separation from (Mom)", so there were a LOT of visitors just to support her. So my mom was in her element talking to people, while I floated around a bit talking to people I knew, hanging out with my cousins, helping introduce one of my dad's friends to other specific people he wanted to meet, etc.

I myself had four friends visit during the calling. And this is what inspired me to make this post.

Neurodivergence and Grief

One of my friends also abruptly lost her dad a few years ago. It's been a while so I can't remember the exact cause, but I think he'd died of a heart attack too. And like me, she's also neurodivergent. So of everyone I know, she's the one person who could relate to me the most.

So naturally, I told her about how I felt weirdly okay. I'd mentioned to others about how my neurodivergent brain seemed to be helping, mentioned my theory about it being an evolutionary advantage, but I went into more detail with her. I opened up a bit more than I did with everyone else, because I knew she'd gone through the same loss.

And she'd had the same thing happen.

I won't try to summarize everything we talked about. Some of it is personal and I reached some internal conclusions about her own experience she might not want me to share, but one thing that stuck out was that she told me not to let others act as if I was grieving wrong. She assured me that everyone grieves in their own way, and while everyone says that, hearing it from someone who went through the same experience as me just gave it so much more weight.

I'd been aware my reactions to loss would be different since my grandparents died. I've had years to think on it, and by the calling I already accepted that it was a quirk of my brain. It didn't mean something was "wrong" with me, that I didn't love my dad any less. It's just my brain being kinda weird and helping me adapt faster. I'd once read a theory years ago that autistic people don't struggle with feeling emotions at all, they struggle with feeling too much, and their brains get overloaded and just shut down the emotion. I don't know how true that is, but at times like this, I think that might be true.

But despite knowing and accepting this, hearing that I wasn't alone, that it wasn't just my brain and someone else had experienced this weird "okay-ness", helped more than I expected.

And that's why I'm writing this.

Neurodivergent brains don't process things the same as "normal" people. Anyone who's ND knows that, and every person's experiences with it is different. Even if you, the person reading this right now, also have ADHD and autism, you probably don't have a "writer-brain" analyzing events and your own emotions for writing reference the way I do. I got lucky to be born to two amazing, loving parents who never made me feel like I was wrong or broken for my differences, and to help me adapt to the world instead of trying to suppress those. They helped me accept it as part of myself.

But while I've always known and accepted this, it doesn't change the fact that knowing others feel the same way can be a relief. Confirming that it's not just you, that there are others—it can mean so much.

It's why I proudly identify myself as asexual to people I meet, to help educate others that it's a thing that exists and they're not broken. It's why I was so ecstatic to learn immersive and maladaptive daydreaming are things, to discover that my lifelong game of pretend isn't just some quirk of my autism and ADHD but something thousands of other people do, including full-grown adults. It's why people find pride and comfort in having labels at all, why even diagnoses can be a reason to celebrate: just being able to know you're not alone.

I got lucky with my parents, who have loved and supported me throughout my whole life. I don't even like referring to ADHD and autism as disabilities, because to me, they're just different forms of cognition. Nothing to be ashamed of, they're just a part of who I am. I've spent years thinking and reflecting over myself, and managed to understand the core pieces of myself as a person fairly early on. And I'm happy to say I like who I am.

Unfortunately, my story isn't nearly as common as I'd like though. Many neurodivergent people grow up thinking something is inherently wrong with them, either due to not knowing about their conditions, or because their own families tell them as much. Far too many people think they're awful people, stupid because of learning disabilities, or even just broken. Our "normal meters" are off by default compared to neurotypical people, and if you don't know why, it can really bother you.

This strange okay-ness and quick recovery from grief seems like one of those things that would haunt people, lead to all sorts of guilt for not feeling grief strongly enough when you "should". The words "everyone grieves differently" feels like a kind of hollow platitude in the face of those feelings. It's one of those sayings that everyone spouts, like "time heals all wounds", but there's a huge difference between saying something and experiencing it. It's just one of those things that people say, regardless of experience with it. Especially when it's "normal" people saying it.

So, take it from me now, someone who's neurodivergent and has just experienced close and sudden loss: You might feel okay sooner than you expect, and that's perfectly fine. It's just our brains being weird, and it says nothing about how we feel about the person we lost.

Maybe the circumstances of the death will make it easier or harder for you to adjust. Maybe it will hit you harder when you're alone. Maybe you'll find comfort in surprising details. Or maybe it will hit you in bits and pieces, in the smaller things you notice as time passes.

There are so many ways you can react. It really is true that everyone grieves differently. No matter how you react though, it doesn't automatically mean you're a bad person or don't miss them enough. It just means your brain processes things differently, and might be trying to shield you from the full brunt of the pain.

And besides, even if you feel like you’re recovering too quickly, I think there’s a good chance you feel that loss more strongly than you actually realize.

Nighttime Talks with Dad

The last time I saw my dad was Tuesday, August 22, before he went to bed.

I don’t remember our exact final conversation. We had a nightly ritual though where we’d either try to get our dog Zoey on the porch, or step out there ourselves. Zoey hates people hugging and kissing. For some reason at nighttime, just standing near each other can set her off. Every night when dad would come upstairs from the basement, the second one of us spoke, she’d start barking because she knew that was a precursor to physical contact. (Also, yes, this DID make the initial hug-fest after the news broke a bit frustrating since she barked constantly.) I like to say that she’s brought our family closer together than ever, and she hates it. Dad would go out of his way to give extra hugs and kisses just to set her off, laughing while she’d go crazy. Usually we’d try to get her on the porch so she couldn’t jump up on us while barking, but even after letting her back in he’d still sometimes give an extra hug and kiss just to mess with her.

If she wouldn’t go on the porch, we’d just go out there ourselves. And in more recent months, we’d step outside on the deck to look at the night sky. Dad would usually go out there in the summer before going to bed, so I just started joining him. I think the only constellation either of us can identify is the Big Dipper, but it was still nice to look at the stars and moon.

On Tuesday, August 22, we went outside as part of that ritual.

The next night before going to bed, I stepped outside to talk to dad again.

And I’ve done that most nights since then.

I just step outside and talk to him. I don’t know if he can hear me. I’m not particularly religious and honestly terrified of the unknown eternity that is the afterlife, and I told him that. But I want to believe he can. I tried talking to him from the porch one night, but it felt wrong so I stepped outside to do it. So maybe it’s just psychological and in my head, or maybe it actually means something.

And when I do, I usually end up crying a bit.

That’s one thing I’ve noticed: while I stopped randomly crying throughout the day by like Friday or Saturday, I still cry at night when I talk to him. I think that little note I made on night one that I might feel the grief more strongly when I was alone was right. I’ve even said as much out loud, just asked, “Dang it, why do I only do this at night?” It’s the kind of time where I’d want to hug someone like mom, but by that point she’s in bed.

I’ve probably weirded out Zoey with the near-nightly hugs after these talks. I doubt she understands dad is gone for good, and I don’t think she fully gets we’re sad. That dog lives in her own world and isn’t the brightest. At least she’s finally made the connection that water helps with thirst (no, I’m not joking. We genuinely questioned if she realizes water helps with thirst, and now that she’s drinking regularly we’re pretty sure the answer was “no”).

Right now, I think during the day I can function fine. I think I am mostly fine already, wrong as that feels. I know that it will be the little things I’ll miss the most. Like him making my bed every day, or being able to suggest watching a show, or messing with the dog together, or coming home from visiting friends to see him and mom slow-dancing in the living room.

But at night, when I step outside to talk to dad... Well, I think that’s when I allow myself to really process it. To process his absence on a subconscious level that I just can’t do consciously. Maybe it’s because it’s too much to process, like that theory about autism I mentioned earlier. I don’t know.

One thing I do know: everything still feels surreal.

My mom and I went to my cousins’ lake house over the weekend. We had already planned to go before, and last Wednesday my mom said “Screw it, let’s go up anyway.” We needed the change of scenery and time to decompress after the funeral. She later said it’s basically us avoiding the situation for just a little longer, and I think she was right about that. Being away from the house made it a little easier to act as if it was just a normal vacation, almost like a "girls' trip".

I didn’t talk to dad while up there, maybe due to avoidance, or maybe due to my brain suddenly deciding it doesn’t like being surrounded by water in the dark. It was never an issue on previous visits. Last time we were up there, dad and I sat on the dock staring up at the stars and just being in awe. We’ve been reminiscing about it all summer long. I planned to talk to him, but the first night on the dock I turned off the flashlight on my phone and my brain basically went “nopenopenope, water everywhere verybad runrunrun get to land runrunrun”. So that's a thing now, good to know I guess?

So, yeah. We got back on Tuesday, and were exhausted from a seven-hour car trip. And then I talked to him again last night. Cried a bit, because that’s just how those talks tend to go, and then I went inside to hug the dog before sitting on the couch to resume my usual quasi-nocturnal routine. (I got upstairs and into bed before 4 am though, so I'm getting better! Little victories.)

Closing Thoughts

There’s a lot more I could say, but I don’t know what. Usually I like to edit these sorts of rambles to heck and back, but this time I’m doing minimal editing. (Editing note: I apparently lied, just went back to reread and edited it as I went along, dang it.) For now, I want to focus on some more closing thoughts and miscellaneous details. Things I couldn’t fit above too well, but think need to be said and shared. Maybe it can help you, maybe it won’t.

The benefits of how my neurodivergence is impacting my grief: I can help my mom more. I’ve already decided I’ll take on the task of figuring out all the account transfers (e.g. Netflix, Ring, etc.). I was also able to go through my dad’s laptop to find photos, just quickly page through them and look for any photos with him. I’m not sure my mom could have done that herself without getting sucked into each memory they held.

I will say that, as a writer, I like to think I understand emotions better than most people. I like putting myself in people’s shoes to figure out why they feel a certain way, understand their mindsets and how it influences their thought processes and actions. I’m definitely incredibly empathetic compared to the average person. That said, just because I understand their feelings, it doesn’t mean I know how the heck to handle it. My brain tends to freeze up. Happened when my aunt burst out crying and hugged me when my grandfather died years ago, and it will probably happen again now.

So I’m still out of my element if mom suddenly breaks down sobbing and crying. I think this will apply to many of us. So uh. Sorry guys, I don’t have much advice for comforting people other than “just hug them as needed and let them vent”. Hugs can REALLY help though, I think some people these past two needed the hugs more than I did.

On that note, feel free to reject the parade of hugs. I know a lot of ND folks don’t like physical contact or hugs anyway, but neurotypical folks can get over-hugged during these times too. One of my mom’s friends who lost her husband told us that we might get sick of hugs. So don’t feel obligated to accept them just because of the occasion. You're the one grieving, so they can't judge you for refusing. If they judge you anyway, they're assholes and don't deserve to have their opinions considered.

One of my main coping mechanisms is humor. I try to be mindful of it and keep some of them to myself, but I might've made some jokes that are "too soon". For example, our dog is the only thing now standing between my mom and I from becoming crazy cat ladies. Previously it was my dad's allergies, so yeah. If you also cope with humor, just be careful about telling the jokes. The pain can be more raw for some than others, and some jokes might be too much. Some people are really good at putting up a strong front, so you can't always be sure how they'll actually take it. So be careful.

I mentioned earlier that when my mom told me the news, I first thought it was about my grandmother. At the time, part of me wished it had been my grandmother, which made me feel guilty. But I later found out pretty much everyone had this exact reaction, including my aunt (her daughter) and I think even my grandmother herself. We've all been sort of mentally bracing for her death, and she's 97 so she’s lived a long and good life. It would still be sad of course, but, well, we’re expecting it. No one was expecting my dad to die though. So if you find yourself with similar thoughts, don’t feel like that makes you an awful person.

One of the biggest benefits of my neurodivergence though: I was able to give a eulogy for my dad.

I honestly expected I’d give one from day one, but apparently no one else did until I talked to the minister right before the service. Originally we said I’d go second, between my dad’s best friend and his brother. After his best friend’s speech though, I realized I should definitely go last. I could tell they’d be telling more lighthearted stories, and mine would set a different tone that served better for the end.

I wanted to talk about dad’s love, his most defining trait and the most important thing he passed on to me. He was the kind of man who’d sacrifice for the people he loved, who’d go out of his way to find a specific restaurant despite wanting to go home just because we mentioned wanting milkshakes from there. Heck, last Christmas we all agreed to buy just three gifts each, and guess who didn't stick to that rule? I swore I'd buy a blu-ray player sometime this year instead, our DVD player doesn't work with the new TV we got in the basement so just needed to run to a store together. (I still might, but it's a lower priority now.)

Besides all that, I wanted to share a story he told me, that I’ll also tell you now.

When my grandfather was a little boy, one day at school a classmate came in raging mad about a fight with his own father. They’d had some argument, and this kid was ranting about how he hated his father. Petty, empty words because he was still mad at his dad over whatever they'd fought before.

Well, his father died at work that day. Car accident, I think. And the boy grew up knowing his last memory with his father was that awful fight.

Yeah, that sounds like an awful story to tell a kid, huh? I must have been five or six when he told me, and it was probably because I was pretty angry at my mom for some stupid petty reason. Just a kid throwing a tantrum, you know how it goes. Maybe it was a true story, maybe he just made it up on the spot to show me that being mad at my mom over petty little things was wrong. Either way, it worked. And I think it worked better than my dad ever knew. Thanks to that story, I grew up aware in the back of my head that death can happen suddenly and without warning. Maybe that’s a bit of a bad thing, but I’m grateful I got to understand that so early on without experiencing that sort of sudden loss myself. And it stuck with me, just how awful it would feel to have your last memory be such a bitter one.

So, I made a point to always say “I love you” to my parents and any others I care about. They go to bed, “Good night, I love you.” They're going on a trip, “Have fun, love you!” when they leave and at the end of every phone call. They’re just running to the grocery store five minutes away, I open the garage door to stick out my head to say “I love you” just to make absolutely sure it’s the last thing I said to them, just in case.

I don’t remember my exact last words with my dad. But I know that it was almost certainly “Good night, I love you” just like countless other nights. And I am so damn grateful I can say that.

So I passed on that story at his funeral. And afterwards, I got countless compliments about how strong I was for speaking at all, and how I didn’t stutter or need notes (someone asked if I had public speaking experience, and I don't, so I guess I might have a natural knack for speeches??), but... I think that was most definitely because of my neurodivergence. I think I’ve already made it quite clear over the course of this post, but by the time of his funeral, I was, weirdly, okay. Sad and empty, but not devastated. So I could deliver my message clearly, the same one I'll pass to you:

My dad was a wonderful, loving man, and everyone should remember that you never know which goodbye will be the last one. So make sure you always punctuate your farewells with an “I love you”, and try not to ever part on a bad note. Not even when you’re just going to sleep.

If you’ve read all of this, thanks. And I hope maybe this ramble of mine can help people a bit too, especially those who have yet to experience such a loss themselves.

Remember, everyone experiences grief differently. Maybe it will devastate you and you won't be able to function for a while, or maybe you'll be able to largely go back to "normal" a bit faster than you expect like I did. Brains are weird, even without throwing neurodivergence into the mix, and there's so many factors in grief that makes every experience truly unique. I'm not sure I'd be nearly as composed if I'd seen my dad at the hospital, or if he'd died in pain or of heatstroke. The inevitability and quickness of his death, the fact we could have done nothing to prevent it, has been a surprising comfort to both me and my mom because there are no agonizing "what ifs" to haunt us. We're not sure how we'd feel if it was something preventable, that's a "what if" I don't want to consider.

Just remember that no matter how you respond, somewhere out there, there's likely someone else who's had the same feelings and reactions as you. You're not broken, you're not an awful person. You're just you. Your reaction won't diminish whatever feelings you have for the person—and note that I said have and not had: just because they're gone doesn't mean those feelings are gone too. He's still my father, I'm still his daughter. Death doesn't change that, it just means I can't hug him and tell him that directly anymore. The same applies for every other loss we'll experience. There's a reason some people refuse to date widows and widowers.

Today, my aunt left. She’s been staying here since he died, she flew in from out of state. Tonight will be the first night with just me and mom at our house. This is the first night of our new “normal”. I don’t think we’ll have anyone over tomorrow besides the cleaning lady (who last came the day after he died—felt kinda bad for her to visit that day knowing what happened), so tomorrow will be the first day it’s really just us. The first day we won't have any real distractions from his absence.

I don’t know how we’ll feel in the coming days, how things will go from here. Maybe his death will finally really hit us now that we’re not in funeral-preparation or vacation mode, and can sit and breathe in our own house. Maybe I’ll have a delayed grief reaction. Maybe my mom will break down sobbing in her bed tonight or tomorrow. I don’t know. Everything feels almost dream-like, like we’re in a weird limbo but also not. The world’s still moving without us, and we’re slowly moving with it.

All we can do is take it one hour at a time.

What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?