86 votes

New tinnitus therapy can quiet torturous ringing in the ears

36 comments

  1. [3]
    idrumgood
    Link
    Oh man, I've been a drummer for over 20 years and have tinnitus for at least 10. It's annoying at times but in general doesn't interfere with everyday life. In the past year or so it's gotten more...

    Oh man, I've been a drummer for over 20 years and have tinnitus for at least 10. It's annoying at times but in general doesn't interfere with everyday life. In the past year or so it's gotten more noticeable, basically like I just walked out of a concert... but always.

    This is great news that they're making progress with therapies and treatments. I'm pretty sure I'll eventually have to seek some sort of treatment, and now maybe sooner than later!

    24 votes
    1. [2]
      Matcha
      Link Parent
      How chilling was watching or rather listening to the Sound of Metal?

      How chilling was watching or rather listening to the Sound of Metal?

      2 votes
      1. idrumgood
        Link Parent
        Oh man that movie made me uncomfortable. Occasionally one side will flare up and ring worse or get that sort of muted underwater sound, and it was eerily like they didn't in the movie....

        Oh man that movie made me uncomfortable. Occasionally one side will flare up and ring worse or get that sort of muted underwater sound, and it was eerily like they didn't in the movie.

        Interestingly though, tinnitus doesn't really correlate with hearing loss. I've lost I bit of high frequency but overall still have pretty solid hearing (granted it's been like 5 years since my last hearing test).

        And I definitely wear earplugs any time I play, or am at concerts. Hell, I've worn earlugs while vacuuming or seeing a marvel movie in theaters!

        2 votes
  2. [6]
    Rocket_Man
    Link
    Tinnitus is one of those conditions where there wasn't much hope. Medicine just isn't very good at manipulating sensory processing. But this looks like we're getting better and there's a bit of...

    Tinnitus is one of those conditions where there wasn't much hope. Medicine just isn't very good at manipulating sensory processing. But this looks like we're getting better and there's a bit of hope for those who suffer from Tinnitus.

    19 votes
    1. [5]
      OBLIVIATER
      Link Parent
      I've had tinnitus since I was like 15 and I never even listened to loud music or anything. It's a bummer but it doesn't really bother me too much, just sleep with a fan and white noise machine

      I've had tinnitus since I was like 15 and I never even listened to loud music or anything. It's a bummer but it doesn't really bother me too much, just sleep with a fan and white noise machine

      17 votes
      1. automaton
        Link Parent
        I got it recently from an ear infection as an adult. It sucks. But yea if there's white noise I don't really notice it, so that's something.

        I got it recently from an ear infection as an adult.

        It sucks. But yea if there's white noise I don't really notice it, so that's something.

        8 votes
      2. [2]
        DingusMaximus
        Link Parent
        I hope I'm not negating anyone else's experience, but I don't understand how people say it doesn't bother them much. A constant, 24/7 screaming in one's ears has to have an effect on the psyche. I...

        I hope I'm not negating anyone else's experience, but I don't understand how people say it doesn't bother them much. A constant, 24/7 screaming in one's ears has to have an effect on the psyche. I feel like it largely contributes to irritability in my life that I otherwise wouldn't have to constantly put effort into overcoming. It's fucking exhausting.

        No exaggeration at all, I would at least strongly and carefully consider exchanging a whole goddamn limb in order to make it stop should I come across some diabolical genie one day. I know it's cliché, but I seriously wouldn't wish this on anyone. Even people I wish were dead.

        4 votes
        1. RheingoldRiver
          Link Parent
          My tinnitus isn't 24/7. When I have loud enough white noise (eg a fan on in the background), I don't hear anything. And constant white noise isn't particularly bothersome to me. But ohhhhhhhhhhhh...

          but I don't understand how people say it doesn't bother them much. A constant, 24/7 screaming in one's ears has to have an effect on the psyche

          My tinnitus isn't 24/7. When I have loud enough white noise (eg a fan on in the background), I don't hear anything. And constant white noise isn't particularly bothersome to me. But ohhhhhhhhhhhh if I ever am faced with actual silence....

          4 votes
      3. Beowulf
        Link Parent
        I've had it since I was a kid, too. I honestly don't even remember ever not having it. In fact, it was only a couple years ago that I even realized it was a thing not everyone had. Maybe I have a...

        I've had it since I was a kid, too. I honestly don't even remember ever not having it. In fact, it was only a couple years ago that I even realized it was a thing not everyone had. Maybe I have a mild case or maybe because it's been a part of me for so long, it just doesn't seem to bother me as much as I hear it bothers others.

        1 vote
  3. [6]
    Wulfarweijd
    Link
    I have a mild tinnitus in my left ear, I don’t notice it often but when I go to a classical concert and the wood winds play, I get a really intense ringing because somehow the frequencies clash...

    I have a mild tinnitus in my left ear, I don’t notice it often but when I go to a classical concert and the wood winds play, I get a really intense ringing because somehow the frequencies clash with each other. It would be so awesome to fully enjoy such concerts again.

    6 votes
    1. automaton
      Link Parent
      Wow I get the exact same thing but from certain people's voice tones. It's rare but excruciating when it happens. I thought I was the only one lol.

      Wow I get the exact same thing but from certain people's voice tones. It's rare but excruciating when it happens. I thought I was the only one lol.

      5 votes
    2. [3]
      lackofaname
      Link Parent
      Similar ish, but for me there are certain sounds that make my ears experience a rapid 'popping' sound, almost like the auditory equivalent of a spasm. Usually in videos or music, though i haven't...

      Similar ish, but for me there are certain sounds that make my ears experience a rapid 'popping' sound, almost like the auditory equivalent of a spasm.

      Usually in videos or music, though i haven't been able to pin it down precisley.

      3 votes
      1. [2]
        liv
        Link Parent
        I get that too, like a flutttering popping sound? It's usually from too many people talking loudly, like at a gallery opening.

        I get that too, like a flutttering popping sound?

        It's usually from too many people talking loudly, like at a gallery opening.

        3 votes
        1. lackofaname
          Link Parent
          Yes, exactly! It's so bizarre

          Yes, exactly! It's so bizarre

          2 votes
    3. Nazarie
      Link Parent
      Mine is pretty severe, but I can tune it out mostly during the day. In the mornings and evenings it seems worse. My son plays the trombone in his school band and going to concerts is torture for...

      Mine is pretty severe, but I can tune it out mostly during the day. In the mornings and evenings it seems worse. My son plays the trombone in his school band and going to concerts is torture for me. Brass instruments cause me intense pain if I listen too long and my tinnitus goes nuts.

      1 vote
  4. BajaBlastoise
    Link
    Always love to see these advancements. I have tinnitus and while it doesn't bother me, I would 100% throw money at the problem to make it go away, or at least diminish to a point where I hardly...

    Always love to see these advancements. I have tinnitus and while it doesn't bother me, I would 100% throw money at the problem to make it go away, or at least diminish to a point where I hardly ever perceive it.
    My career depends upon my hearing so I always have that fear in the back of my mind that something will happen one day that will render me unable to work. Seeing progress like this gives me hope that we'll have an accessible solution to this problem in our lifetime.

    5 votes
  5. [5]
    Gamemaster
    Link
    I have in the past year randomly developed tinnitus, and I have had really no idea as to where it’s come from, and my ENT was really quick to give up and say “Well you have tinnitus, live with...

    I have in the past year randomly developed tinnitus, and I have had really no idea as to where it’s come from, and my ENT was really quick to give up and say “Well you have tinnitus, live with it”. It’s rather mild, and only really noticeable when I stretch my jaw or neck out or am in total quiet. It does make sleeping rather difficult and I have GAD so I randomly will get small panic attacks if I think I hear it throughout the day.

    I suppose I share my experience because even though my case may be mild, it’s such a horrible condition. That even with my case my life is completely different, I used to love silence, now I hate it. So it’s extremely uplifting to see some breakthroughs on tinnitus, whatever it may be, thank you!

    4 votes
    1. [3]
      YosemiteFinish
      Link Parent
      On the off chance you haven't tried it yet, a fan running at night is a live saver for sleep w tinnitus

      On the off chance you haven't tried it yet, a fan running at night is a live saver for sleep w tinnitus

      10 votes
      1. Gamemaster
        Link Parent
        Oh absolutely, I have a fan running almost always. I need to have some noise in the background, and the drone of a fan is perfect. Just for some annoying reason I can't lay fully on one ear or...

        Oh absolutely, I have a fan running almost always. I need to have some noise in the background, and the drone of a fan is perfect. Just for some annoying reason I can't lay fully on one ear or i'll hear the tinnitus, so i often use an arm to prop my head up and leave an opening for my ear.

        4 votes
      2. atmofunk
        Link Parent
        I put on one of those 8+ hour youtube rain videos!

        I put on one of those 8+ hour youtube rain videos!

        3 votes
    2. EsteeBestee
      Link Parent
      I've got a similar experience. I don't really know what caused it (I'm around firearms sometimes, but always with hearing protection, so idk) and I had an MRI just yesterday to rule out...

      I've got a similar experience. I don't really know what caused it (I'm around firearms sometimes, but always with hearing protection, so idk) and I had an MRI just yesterday to rule out inflammation, benign tumors, etc., and the advice I got when all that was negative is "welp, we can't really do anything. Come back in a year for another hearing test", which is frustrating.

      I am fortunately not at the point where it affects sleep, but I do notice it in a quiet room or if I specifically listen for it and it's incredibly annoying.

      2 votes
  6. lunaronyx
    Link
    Big fan of making progress for tinnitus treatment. I was on Wellbutrin for a couple months a year or two ago, and I know it works well for some people, but unfortunately very much not for me. I...

    Big fan of making progress for tinnitus treatment. I was on Wellbutrin for a couple months a year or two ago, and I know it works well for some people, but unfortunately very much not for me. I developed an unbearable (to me) level of tinnitus, plus jaw pain from clenching and a racing resting heart rate. Fortunately the side effects stopped after the Wellbutrin got out of my system, including the tinnitus. I can't imagine having to deal with that permanently; I feel for anyone who does.

    4 votes
  7. iamnotree
    Link
    I've had tinnitus since my early 20s. It's gotten slightly better over the years, but I would love to sit in a quiet room in silence again. Lol

    I've had tinnitus since my early 20s. It's gotten slightly better over the years, but I would love to sit in a quiet room in silence again. Lol

    3 votes
  8. [4]
    Caliwyrm
    Link
    I've had tinnitus my whole life. Most of the time I can ignore it and with just a little concentration I can adjust the pitch. The biggest issue I have is that it makes it harder to fall asleep...

    I've had tinnitus my whole life. Most of the time I can ignore it and with just a little concentration I can adjust the pitch. The biggest issue I have is that it makes it harder to fall asleep sometimes. Occasionally it will get really bad and amplify my headache but that isn't too often, thankfully.

    I've had it so long I'm not even sure if I'd be comfortable with complete silence in a quiet area..

    When I was around 4 I had to go to speech therapy because I grew up only hearing something like 10% in one ear and less than 20% in the other ear. They were able to fix my hearing and now I only have a hard time if there is background noise like people talking kind of loud or a fan running at max.

    The one oddity of my tinnitus is that I could "hear" the security screen system at the entrance to mall stores (long ago they'd make the dye pack explode if someone stole something). Stepping into a Belk's or Dillard's will totally change the pitch of my tinnitus while I'm close to the entrance. Stepping back out and it will go right back to normal. It is also only higher end stores with those anti-theft tags and never like a Claire's or the sensor column alarm things like Hot Topic or Walmart uses.

    2 votes
    1. [3]
      Omnicrola
      Link Parent
      Interesting. I've had tinnitus for my entire life as well, and I've always been able to hear things other either can't or don't notice until I point it out. In particular the sound a CRT TV makes...

      Stepping into a Belk's or Dillard's will totally change the pitch of my tinnitus while I'm close to the entrance

      Interesting. I've had tinnitus for my entire life as well, and I've always been able to hear things other either can't or don't notice until I point it out. In particular the sound a CRT TV makes when it's turned on. Even with no actual sound, the transformer/capacitor/electrongun/something makes a sound at about 15,000hz that I can hear. I've noticed this around certain other electronics as well. Maybe something in their lighting or security system is oscillating near your personal tinnitus frequency, and that's what you're noticing?

      3 votes
      1. [2]
        ken_cleanairsystems
        Link Parent
        Ha, yeah, me three! Although I've always described the CRT thing as "feeling" that a TV was on and not so much hearing it, because it doesn't completely feel like hearing, if that makes sense....

        Ha, yeah, me three! Although I've always described the CRT thing as "feeling" that a TV was on and not so much hearing it, because it doesn't completely feel like hearing, if that makes sense. When I was younger, I could hear a few really high-pitched things other people couldn't, too, like some types of dog whistles and rodent deterrent machines.

        On one hand, I also don't know how I'd feel about not having it at all, but it sounds like the results they've gotten so far aren't complete elimination but just reduction. That would be nice. Mine's only getting louder as I get older, and I've got mild hearing loss on top of it (or possibly these are really just the same thing). It would be nice if the ringing were quieter and I could hear actual stuff a little better.

        2 votes
        1. Omnicrola
          Link Parent
          I've experienced the same thing. It's sometimes worse after a cold/flu, anything that inflames the ENT system. I've actually gone and gotten a hearing test to check, and the doctor said my hearing...

          Mine's only getting louder as I get older, and I've got mild hearing loss on top of it (or possibly these are really just the same thing).

          I've experienced the same thing. It's sometimes worse after a cold/flu, anything that inflames the ENT system. I've actually gone and gotten a hearing test to check, and the doctor said my hearing is normal except for a severe dip in sensitivity right around 6500hz. So we assume that's where my ambient tinnitus is.

          2 votes
  9. lou
    (edited )
    Link
    That is encouraging research that confirms my experience with a treatment that is probably similar to the auditory part of the study. I've had continuous tinnitus in both ears for 20 years, and it...

    That is encouraging research that confirms my experience with a treatment that is probably similar to the auditory part of the study.

    I've had continuous tinnitus in both ears for 20 years, and it got progressively worse in the past 3 or 4 years, to the point that I couldn't stay a second without a sound source nearby, and it got louder and louder to the point that I could not function and was scared for my life. I wasn't gonna end it, but the perspective of living that way for the rest of my life was terrifying.

    For the past month or so, I have been using a tinnitus relief device my doctor prescribed. The Tinnitus Retraining Therapy (TRT) works by means of a sound generator that randomly cycles through multiple frequencies that are tuned to my tinnitus, dishabituating the brain from tinnitus. It's like a bunch of cicadas tuned to a frequency which is helpful to me. The relief when I put on the hearing aids is immediate, but it is also possible that in 6 months to a year, I'll experience an actual reduction in my perception of the tinnitus, effectively lowering its volume. The device was very expensive for me, but it is probably relatively cheap if you earn income in Europe or the US.

    The frequencies remind color noises such as white noise, etc. You can choose between a few. The one I choose is more like an infinite cicada, and I love it. It is not uncomfortable at all, in fact I find it pleasant, and so much better than any color noises or tones I generated with Audacity out of sheer desperation.

    It is conceivable that a specialized device is not needed, and you could simply generate your own TRT frequencies. But I also have ADHD and being near my smartphone at all times is a recipe for disaster. I also like that it's a "dumb", standalone device with buttons and the battery lasts a week. That's essential for something I'll use at every waking hour. It has to "blend into me" so I don't have to think about it all the time. It's an extension of my body. And there's probably some value in having a device that comes with lifetime access to an audiologist at no extra charge.

    I haven't experienced an objective reduction in the tinnitus volume, but, when I take the hearing aid off, it doesn't bother me as much as before. According to studies, the disassociation of negative emotions towards the tinnitus can signal to the brain that it is not important, allowing it to tune out the tinnitus.

    I can read again -- for pleasure. Turns out I like reading.

    If you have tinnitus, I encourage you to ask your doctor about palliative measures and treatments involving TRT devices. You may not find a cure, but sometimes all you need is some relief.

    I wrote more about it here.

    2 votes
  10. potatoes
    Link
    I’ve read a couple of threads back then on Reddit about the overactivity of the DCN, but I guess this is the first time it really got out there. I hope it gets approved soon — silence and...

    I’ve read a couple of threads back then on Reddit about the overactivity of the DCN, but I guess this is the first time it really got out there.

    I hope it gets approved soon — silence and listening to music is so important!

    1 vote
  11. [7]
    asparagus_p
    Link
    Slightly off-topic, but I wanted to say to non-English-native speakers that tinnitus can be pronounced in two different ways. It can be pronounced "tinny tuss" or "tin eye tuss". My completely...

    Slightly off-topic, but I wanted to say to non-English-native speakers that tinnitus can be pronounced in two different ways. It can be pronounced "tinny tuss" or "tin eye tuss". My completely unfounded theory is that the second pronunciation came about because it rhymes with other "itis" medical issues, such as bronchitis and meningitis, even though it is not actually an "itis", it's an "itus" :) Any doctors want to weigh in and say how they were taught to pronounce it?

    9 votes
    1. [3]
      Dovey
      Link Parent
      (IANAD) I'm in Canada and I say tinny-tuss, but my doctor says tin-eye-tuss. I'm sure I'm right but I'm always a little self-conscious about pronouncing the word anywhere. In other news, in a...

      (IANAD) I'm in Canada and I say tinny-tuss, but my doctor says tin-eye-tuss. I'm sure I'm right but I'm always a little self-conscious about pronouncing the word anywhere. In other news, in a couple of weeks I have an appointment for a hearing test with the hope that hearing aids might decrease my tinnitus. I've just lived with it for years but it's so freakin' loud, and I do notice it's getting harder to follow a conversation. An acquaintance found great relief with hearing aids so I'm eager to see what happens.

      5 votes
      1. inner_vision
        Link Parent
        I'm also a non-doctor Canadian. I wasn't aware there was a pronunciation other than 'tin eye tuss'. More to your other news, I was tested and fit for my first pair of hearing aids last year, at...

        I'm also a non-doctor Canadian. I wasn't aware there was a pronunciation other than 'tin eye tuss'.
        More to your other news, I was tested and fit for my first pair of hearing aids last year, at the ripe age of 44. Though the hearing aids were life changing, they didn't help too much with my tinnitus.
        I hope your results turn out well for you!

        3 votes
      2. asparagus_p
        Link Parent
        Best of luck, hope it goes well for you. (I'm British-Canadian and I say tinny-tuss too.)

        Best of luck, hope it goes well for you. (I'm British-Canadian and I say tinny-tuss too.)

        2 votes
    2. [2]
      CannibalisticApple
      Link Parent
      As a native English speaker, I appreciate knowing it can be pronounced two different ways. I've heard it both, but never realized both were technically correct. I go for the "tinny-tus"...

      As a native English speaker, I appreciate knowing it can be pronounced two different ways. I've heard it both, but never realized both were technically correct.

      I go for the "tinny-tus" pronunciation myself, though I'd personally spell it out "tin-ih-tus" since "tinny" has an "ee" sound to me. So hopefully that doesn't mean I just gave a third pronunciation.

      1 vote
      1. asparagus_p
        Link Parent
        No you're right with that pronunciation. My phonetic spelling was off. There's not really an ee sound in the middle.

        No you're right with that pronunciation. My phonetic spelling was off. There's not really an ee sound in the middle.

    3. Malle
      Link Parent
      As a non-native speaker, I would say that in addition to this, it is my impression that English uses a lot of single character vowel diphthongs so the expected pronunciation in English is...

      As a non-native speaker, I would say that in addition to this, it is my impression that English uses a lot of single character vowel diphthongs so the expected pronunciation in English is ambiguous, and the "tin-eye-tuss" pronunciation may very well stem from this.

      Looking at the latin root tinnire, there's no diphthong: /tinˈniː.tus/ or /tinˈni.tus/.

      For the English version you have the ones without diphthongs following the latin root (/ˈtɪn.ɪ.təs/, /ˈtɪn.ə.təs/), and the one with a diphthong (/tɪˈnaɪ.təs/). Note how the written singular vowel character "i" turns into a spoken diphthong "aɪ" in the last example.

      You can see the same thing happen with i or y in many words, such as: Hi! I like bikes. Ride my trike. Spy by hiking.

      I don't have any scholarly sources for this, so if anyone just happens to have references to, say, a comparative study of single letter diphthongs in various languages, feel free to drop them here.