Last year (June 2022) I was diagnosed with colorectal cancer. I had surgery (which left me with a permanent stoma) and I had a bit of adjuvant chemo to kill off any remaining cells. I've been discharged from oncology, and I've started my 5 year surveillance. Staging is complicated but my I was pT3pN2bM0 (tumour was stage three, I had lots of lymph node involvement, but no metastasis).

Alongside that I've had problems with gall stones, starting in April 2022, and ending this year when my gall bladder was removed.

When I tell people about the cancer they pull on their serious face and say things like "oh no how awful hope you're okay glad to see you're doing so well now it's good news that you're in remission", and when I tell them about the gall bladder they're kind of baffled and not at all concerned.

But here's the thing: cancer was not such a big deal. I do have a permanent stoma, but for some reason my brain has disconnected that from being a cancer thing. I had a relatively gentle chemo regimen (short, and it was CAPOX which is less rough than other meds) -- don't get me wrong, chemo SUCKED, and left me with neuropathy in my feet, but I got through it. When I compare that to repeated[1] hospitalisation for cholangitis (a gall stone stuck in a bile duct causes bile to back up and that causes pretty severe problems), well, those repeated hospitalisations were a much bigger deal for me.

English NHS hospitals tend to have dorm wards. In the ward I was on there were 6 beds to a bay, and 5 bays to the ward, and then a further 6 or 7 single occupancy rooms. Some of the bays were smaller, and had 4 beds. Once the hospital was very full, so I spent a night in a bed (proper bed, not a trolley) but in the ward corridor. I spent over 60 days in hospital for the gall bladder stuff, and just 7 as an inpatient for the cancer. (And Sartre was right, hell is other people ).

There are lots of health forums online and I always feel deeply uncomfortable in the cancer forums. I feel okay in the ostomy forums[2], but I don't use them because they're all a bit odd.

I dunno what the point of this post is. Maybe it's "sometimes cancer is treatable and the person isn't particularly bothered by it", or maybe "people with cancer want support, but sometimes that support won't have anything to do with cancer".

[1] When a stone gets stuck they need to do some emergency work to stabilise you and remove the stone. And if you keep getting stones stuck they want to remove your gall bladder. There's some discussion about when to take the gall bladder out. Hypothetical Bob has a stone stuck - you stabilise him, so do you take the gall bladder out then (when he's still recovering) and then monitor him for a few days and discharge him home to fully recover? Or do you stabilise him, then discharge him home to recover, and call him back for planned surgery to remove the gall bladder? Evidence is inconclusive about which is best, so there's a bit of a lottery depending where you are in England. My local hospital took the later approach. The problem was that i) I had cancer, ii) My gall bladder was very active in kicking stones out and iii) we had several Covid pandemic waves causing huge disruption. These meant that by the time I had recovered enough to have the surgery, and they had a space on their surgical list for me, my gall bladder had kicked out another stone and that reset the whole thing again. They gave up this year and took my gallbladder out.

[2] Online health forums can have this really weird dynamic. English speaking forums are usually dominated by Americans, and Americans fall into 2 groups: 1) People with bad or no insurance and 2) People with good insurance. When someone says "I'm having this problem" the replies from the first group will all be along the lines of "go the the vet and buy this fish medicine" and the second group will be "here's a huge list of tests and products to use".

EDIT: I forgot to mention, I am in England, and so I am very fortunate because all treatment is free and a cancer diagnosis opens up quite a lot of support.

Just getting this off my chest because the number of people I can talk to about it right now is very small.

My mom got diagnosed with cancer a few days ago. Tumors in her breast(s?) and the cancer has made it into her lymph nodes and possibly her blood as well. None of us have much idea where that puts us right now and we won't know much more until her consult + surgery next week. It's gut-wrenchingly awful. The unknown of everything gnaws at you -- I don't wholesale trust what I read on the internet but it certainly doesn't seem great. I'm still in disbelief -- my mom is only in her mid sixties and she is extremely healthy. My mom is obviously scared but she is doing ok otherwise -- she is a fighter and my whole family is behind her and ready to support her however we can. This next block of time is going to be so hard on both of my parents it physically hurts to think about. I guess as we learn more information things will become easier to deal with because it certainly isn't easy right now. Lots of tears, but lots of video chat smiles and laughing too.

The saving grace has been knowing how much time I have been able to spend with my parents through the pandemic as they have been helping us out with childcare. My mom has loved being a grandma, getting to watch her eyes light up when she holds our daughter has been amazing and I just want so, so, so badly for her to be able to continue to watch her grow up and for my daughter to know her. If you have a mom in your life please give her an extra hug/ehug this mother's day for me.

Also, if anyone has any personal experience of battling or having people close to you battle cancer please feel free to share if you want to. Cancer fucking sucks.