Anyone here with narcolepsy or idiopathic hypersomnia?
I got diagnosed a couple of months ago with IH and just wanted a place to share experiences, info, etc., with anyone else who deals with this form of daily torture laughcry
I got diagnosed a couple of months ago with IH and just wanted a place to share experiences, info, etc., with anyone else who deals with this form of daily torture laughcry
I have lost my r/finch community, and am feeling curious to see if there are any folks here who also find apps can be helpful for their mental health.
I struggle with anxiety and am processing a lot of grief, and may or may not have ADHD (I am in the process of getting tested, but it takes a while). My experiences with therapy are a bit mixed, so I am currently going down the route of trying to DIY my wellness a little. Starting simple with things like, sleep more, try to focus on drinking enough, go out in nature, switching off podcasts and phones and reading more. It's actually helped me, bit by bit.
One of my 'tools' is an app called finch, a virtual pet that encourages you to set goals, check in how you are feeling, journal, do mindful breathing and such. I tried many things and this app is the one that stuck and actually works.
Just wanted to ask, do any others here use wellness apps? And have they worked for you? Which do you recommend?
Just to be clear, I mean apps that work as a stand alone solution, rather than apps like 'better help' which ultimately just connect you to a therapist. Although Better Help has its uses too!
My hypoglycemia issues are not related to diabetes fwiw. That said, I tend to get hypoglycemia a few times a day. If I catch it quick enough and treat, it's usually not a big deal, but if I get too low (maybe once I get into the 50s mg/dl), then after treating (usually about 15 minutes later), I get so. freaking. tired. Like, barely able to stand up exhausted. Currently dealing with this as we speak, and it's very frustrating. My endocrinologist told me it's normal to get tired like this while recovering. I'm curious if anyone else deals with this? If so, do you have any advice for dealing with the fatigue?
Tildes might be too small of a platform for this. If no one deals with hypoglycemia here, please feel free to remove it. I thought with the prevalence of diabetes, it would be likely there are folks who encounter this.
Its been on my mind lately, and i feel like i could use some hope and some perspectives from other people who have experienced this before. Apologies if this has been posted before.
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
Every person in my household takes a daily regimen of prescription medication and/or supplements. We keep ending up in situations where we run out of something because we don’t have a good way to keep track of our remaining supply of each thing. We need a better system for managing this!
We each use a 28-day (4 week) pill dispenser box which helps somewhat. I refill the dispensers when they are empty. The problem is, some of the medications run out in the last week of the dispenser. At the time I fill it, it’s way too early to call the pharmacy for a refill. But by the time the supply runs out I’ve forgotten about it and have to scramble to get more. I hope I’m explaining that clearly. It’s complicated because every medication runs out on a different schedule.
If you’ve got a solution to this problem please share it!
A recent thread had me reflecting on my own mental health journey and what really made a difference for me, I was interested in opening a discussion about what other people found most valuable too. I'll add my own as a comment.
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
This is a monthly thread for those who need it. Vent, share your experiences, ask for advice, talk about how you are doing. Let's make this a compassionate space for all who may need one.
Happy summer! Now that the weather is hopefully better, what are your favorite ways to get active outdoors?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
I’m training for a 10K race in September. The app I’m using this time includes tempo runs - I’ve never done one before! When I looked it up the speed advice was pretty vague (hard but controlled) or dependent on your race time (85-90% of your 5k race speed). I find both of these pretty confusing! I recently did a 7km race at an average speed of 6.20/km and did the jogging portion of this run at about that speed (I wasn’t trying to run fast in my 7km, only to finish!); I did the tempo portion of my run at about 5.45/km, but I found it pretty tough and also found it hard to maintain a speed without constantly checking my watch.
Any tips here?
Hi everyone! I am new to Tildes and wanted to say hi to the ~Health community. I am on a 28 hour emergency general surgery call today and have a bit of downtime. I also noticed that the post on the moral crisis of America's doctors had some interest so I thought I would answer any questions about that or training to be a surgeon in the United States. I am finishing my 2nd year of a 7-year training program. Ask me (almost) anything!
...When I can't complete a task right now but instead have to wait for some reason. For example:
When I have to complete a task list for school, and would love to just blitz through it all, but have to wait on someone else to fill out some form. Then I get it in an email a day or two later, but have already completely forgotten about the list and things I should do, because something else took over my mind. And I put it off because I have other things to do. Then the deadline comes and goes, and I'm sitting there thinking "Well shit, if I could have done it immediately then it would have been fine."
I ask my kids for things they want at the store. I know I need to add it to the grocery list app immediately or I won't remember it, but I'm driving them to camp and can't use my phone. By the time I've dropped them off, I forgot already. Then they're upset with me because I forgot their things, and I'm upset with me because I forgot their things.
All these little things that just add up to make life a little more frustrating and annoying.
Anyone else with ADHD, have any tips to overcome these? Frustrations of your own to vent? How do you explain to others that it isn't you being careless or lazy, but instead it's your brain working against itself?
This is something I picked up a few years ago, but basically, my logic is that:
You kind of have to retrain yourself, as far as both gait (forefoot strike instead of heel strike) and gaze ("scan" ahead every few seconds), but you absolutely can acclimate to it, so thoughts of "I could never!" are probably wrong.
I have a very close friend that has been in the deepest troughs of depression for the past couple of years. They live about an hour away, so though my wife and I try to physically show up to support them whenever we can, that's much less often than we'd like. Their support network is thin, and day-to-day basically consists of only their partner, with whom they live, and who is visibly fraying at the seams.
This person (I'll just call them John for the sake of readability) is currently on medication for their depression and OCD (I'm nearly certain it's Lexapro, can't remember for sure) and has on and off therapy, though they often find themselves at odds with their therapists' perspectives. Some of this is because it feels like the profession has been flooded with folks who lack experience with patients with severe chronic mental illness, and some of this is (I suspect) John's illness distorting their thinking, leading to frustration and anger in the moment that doesn't make sense in retrospect.
John had a particularly bad day yesterday, and after I spent some time with them, we started talking about how they felt like they needed considerably more support than they were able to get in their current situation. Unfortunately, the only option he was aware of was "group homes", which seems like a pretty broad term and I don't know much about what they look like (or how successful they are at helping people like John).
I'm trying to get a sense of the spectrum of options available for people like John who are suffering from severe chronic mental illness. On the one end, there's what we're doing now; regular psychiatry and counseling, and on the other end, I guess, is involuntary in-patient behavioral health/medicine clinics. Being involuntarily committed to such programs has been a source of trauma for them in the past, so I'd like to avoid anything even close to that end of the spectrum, if possible. I know that there are, for example, 90-day rehabilitation centers for folks with substance use disorders (I have a family member that found a lot of success at one of these), but do similar programs exist for folks non-substance-related mental illness? Does anyone have personal experience with any of these programs?
Thanks in advance to anyone who takes a moment to read and share their thoughts; I know this is a really challenging topic.
Just promoting open conversation. Anything to get off your chest?
I'm writing this post in the spirit of the powerful conversations that I had participated in on reddit in /r/adhd. I'm giving up reddit, after this recent fiasco. And, so, I hope to find a similar community here.
And, so, here we go.
I recently quit my job in Big Tech after 7 years in that space. Corporate America, and Big Tech in particular (among other fields) is a human meat grinder. Humans go in and husks come out. After taking a medical leave of absence from work due to complications from anxiety, and multiple medical interventions, I realized that I needed to evaluate whether my job, even my career, was sustainable for me. It only took a few weeks, after returning to work, to accept that, yes, this job and perhaps this career are actively harming me. After talking about it with my wife, at length, I found relief in quitting.
At the core of it: my career has simply been incongruent with my values.
Sure, I've always been a nerd. I was the "brainy" kid. I didn't know how to people well (though I'm told that I'm not on the spectrum or not in any meaningful way). I'd always been overweight and prone to stress. Throughout my life, I was often labeled as the "sensitive" one by people. I rarely felt as though I fit in with any group of people, save perhaps for the other misfits who would band together because they didn't with in with any group of people.
Just before the pandemic began, at the tender age of 47, I was diagnosed with ADHD Combined type. More recently, I was diagnosed with C-PTSD, that I have likely suffered for 40 of my 50 years.
Now I know where that weight comes from: self-medication to give me a dopamine hit and numb me to layers of trauma. I also know where the emotional reactivity comes from: emotional flashbacks resulting from the C-PTSD.
I know: I'm privileged. I'm an "old white dude who profited from being in Tech". Yep. True. But I can't retire yet; we don't have that kind of money. We do, however, have enough such that I have the luxury of time to figure out my next steps.
What I have right now is the plan to make a plan. The core of it: live a life congruent with my values--not just at some far off retirement but here, now.
At first, step 1 was to answer this question: "What is the minimum amount of money that I need to earn for us to not massively disrupt our lives?" But then I realized that this is a fear-based question. It means starting out by saying "no" to everything that doesn't earn "enough" money for some arbitrary value of enough.
Where I'm at now, Step 1 Mark II, poses a more inspiring question: "What does retirement look like for my wife and I?" I don't know that we truly get to retire in the sense of living a life of leisure as seemingly many Boomers and earlier were privileged to do. Besides, part of my sense of accomplishment and peace is knowing that I did something to make the world better.
So what do you struggle with?
How are you doing?
What are you doing about it?
Be well.
P.S. This is me trying to do my part, as a new member of this community, to encourage growth not in membership but into different areas of discussion.
After years and years of sitting in front of a computer I have poor hamstring flexibility.
The thing is i've been lifting weights pretty regularly for at least 8 years now and have good numbers on squat, deadlift, bench. I do a lot of romanian deadlifts and kettlebell swings.
But these don't seem to help with sitting at 90º with my legs straight.
I can search for flexibility routine, but the internet these days are full of ad riddled and generic content that I'm having a hard time filtering through the bullshit and finding something that says "do this 3 times per week, progress like this, etc". They just throw some stretches at you and don't say exactly how to progress and what to look for.
It's not like lifting weights that you put more weight on the bar to quantify things easily.
One of the communities on reddit that I greatly benefited from was /r/migraine. It was helpful to have a space to talk about common symptoms, experiences, and the various treatment options out there. Wondering if anyone here also experiences migraines & might be interested in a support-ish type discussion thread? I'll post a bit about my personal experience in a separate comment.
(Also -- this is my first post here, so please feel free to let me know if I've tagged this incorrectly or made some other newbie mistake. Thanks!!)
I’m interested to see how many others in the tilde community are trying to actively lose weight, what methods you’re using, any big milestones you reached recently and/or your goals!
I’ll kick off: I lost 25kg in 2022, have been on a long maintenance break while I restarted running and getting into my exercise groove, and am now starting up again to lose another 15-20kg. Last year I was just calorie counting but became a little obsessive so this time around I’m trying intermittent fasting - I’m short and I don’t have many calories to play with so skipping a meal feels like the most doable!
I’m a recent joiner after discovering tildes on Reddit (frankly have found that place terrible for my mental health lately, so this API thing bringing about discussions of alternatives has been a godsend!) but one thing I did like on there is the motivation I’d find in knowing I wasn’t the only one on this journey. Perhaps others feel similar! (And if not, if I’ve committed some heinous social faux pas by posting, I can only apologise - this feels like such a nicely curated place that I’m nervous of spoiling it like some great oaf burping during dinner with the queen)
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
This is a monthly thread for those who need it. Vent, share your experiences, ask for advice, talk about how you are doing. Let's make this a compassionate space for all who may need one.
I have an oral surgery coming up that's going to require me to be on a liquid diet for around two weeks (possibly more). Early on it'll have to be pretty strict -- nothing with even small bits of food or anything "gritty" like a smoothie. Later on I'll have a bit more leeway, but I will still have to keep to stuff that doesn't really require chewing until everything's fully healed.
I'm mostly looking for opinions on stuff like meal replacement shakes -- ideally ones that are tasty, satisfying, and without a lot of sugar (if anything like that even exists?).
I'm also interested in any tips/tricks people have if they've been through something similar. I'm hoping to make the best of the (hopefully no more than) two weeks that I can.
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
This is a monthly thread for those who need it. Vent, share your experiences, ask for advice, talk about how you are doing. Let's make this a compassionate space for all who may need one.
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
Not sure if this is the right spot, but the topic says it. I'd like to get my DNA checked out, but I don't want it connected to my name and all that. Is this actually possible? Am I overreacting?
I'm not even sure what I look to gain from the testing, but I figured I'd look into it. If I can do it safely and privately, I'm game. If not, no loss.
Any thoughts?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
This is a monthly thread for those who need it. Vent, share your experiences, ask for advice, talk about how you are doing. Let's make this a compassionate space for all who may need one.
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
This thread is posted weekly, and is intended as a place for more-casual discussion of the coronavirus and questions/updates that may not warrant their own dedicated topics. Tell us about what the situation is like where you live!
This is a monthly thread for those who need it. Vent, share your experiences, ask for advice, talk about how you are doing. Let's make this a compassionate space for all who may need one.
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
This thread is posted weekly, and is intended as a place for more-casual discussion of the coronavirus and questions/updates that may not warrant their own dedicated topics. Tell us about what the situation is like where you live!
What have you been doing lately for your own fitness? Try out any new programs or exercises? Have any questions for others about your training? Want to vent about poor behavior in the gym? Started a new diet or have a new recipe you want to share? Anything else health and wellness related?
This thread is posted weekly, and is intended as a place for more-casual discussion of the coronavirus and questions/updates that may not warrant their own dedicated topics. Tell us about what the situation is like where you live!