I'll try to be brief.

I lost my older brother March this year. Barely a year after I moved to the same city as him, he passed away from a bacterial infection he got in a hospital. He went for stomach surgery, everything went fine. Suddenly, a month later, this bacterial infection got to his brain and he was gone.

It was a big shock to our family and things are not the same anymore. My parents are old, mother is 73, father is 78.

My mother is simply just existing these days. She is barely eating and is now weighing 48kgs (105 lbs). She needed to go to the hospital a couple of days ago because she was so weak.

She already had problems before the death of my brother. She is losing her eyesight and despite all the treatments, it does not get better. She can see up close, she can use her smartphone, but it's hard for her to recognize people if they are not right up in her face.

She has three hernias and can't stand too much. She can get up to make breakfast or coffee, but after 20 minutes has to lie down because of pain. It does not help that she barely eats and is getting weaker every day.

She does not want to go to a psychologist. She just says she is not crazy and won't go. I tried contacting one that can go to her house, but she says she simply won't open the door. My father is trying to convince her, but I know it won't change.

I can understand her and I can't see what more can I do. She never had much going for her, now her oldest (and dearest) son is dead all of a sudden, she has all this physical pain going on for years, eyesight getting worse and I can understand the fact that she simply don't care for it anymore. She simply lost her appetite.

She is going to doctors to take exams, she did a battery of tests and everything seems fine. Even her cholesterol which was problematic is fine.

He prescribed something to help with her appetite and vitamins, but it is not the first time. Don't think this will change much.

I don't know really what I'm asking here. I sometimes think I should do more, but there is already my father which lives with her and my other brother who is there in the same city. I already tried sending a psychologist to help her at home, I don't know what more can I do.

I go visit every two or three weeks (i am going for christmas and new year) and she is the same way. 80% of the time lying down in the couch, she gets up to make food or coffee, go sit in the front of the house for some time, then it's time to go to bed. This is repeated every day.

It's not like it was much different before, but at least she ate some food. There was a day that she just ate an apple and that was it.

She goes out of the house if she needs, like going to the doctor or groceries, but avoids for any other reason.

Does anyone else completely disagree with that sentiment?

I see it a lot in these communities, and I definitely am not trying to yuck on someone else's yum, but I just don't relate to it. Maybe someone else can explain it better than me?

Like, I feel almost totally defined by borderline. I struggle so much with life because of this disorder. It takes so much time and energy away from being able to focus on normal people things, to the point that I feel unable to live a normal life without a ton of help and therapy.

So I just feel that I really am my BPD.

PS: not trying to stir a pot or anything, it's just a thought I had and wanted to talk about

My son shares a lot of my traits, including being Gifted. He's in kindergarten now, and we were looking into getting him a IEP (individual education plan) because he's Gifted.

In doing so though, someone brought up that it might result in an ASD diagnosis essentially - and they were right. Haven't had the formal test yet, but a lot of what I considered "idiosyncrises" in my son are also found in autistic individuals. Some of which I share. I have little doubt in the ultimate conclusion, which is that he's 2e (twice exceptional).

And it seems quite likely I am as well. It's gonna be a niche audience, but anyone in a similar boat? It feels weird looking back and (at 34) retroactively realizing why I do certain things the way I do.

Edit: I should add - it didn't really 'matter' to my development because I was Gifted. I can learn whatever, pretty darn fast. So I just taught myself social stuff, on purpose, when I was in high school and college. It takes a lot of effort on my part, but I can be "charasmatic". I ascribed the effort to my general tendency toward introversion, but it may have been, essentially, the mental cost of masking.

Edit2: oh man I even went out of my way to try and alter my personality towards more extroversion in college because it seemed more normal.

Edit3: and I taught myself to understand body language in high school, particularly to understand and help with reading girls I liked, and how they were reacting to various levels of flirtation.

Edit4:
My spatial sense is god level. My wife doesn't bother remembering where the car is, because I just know.

My audition is similarly unrivaled, I hear things others don't, and my phonological loop is amazing - I can hold audio in my head for a time if I'm truly concentrating on something else.

My imagination is virtually non-existent, I'm nearly a complete aphantasia case - the best I can ever manage is a pulse of a 2d image, kinda.

I'm incredibly good at math, computer science, etc. I know more about science than... anyone else I've met.

I've never really felt like I didn't belong, though. I just learned how to be an effective communicator from books and videos. I almost feel like I have weaponized ASD.

Hey folks, I have been following The Trevor Project's survey for a few years now and their 2023 one is just presented in a fantastic, easy to read and understand way so I think it's a great resource and worth sharing

The Trevor Project 2023 Survey on Mental Health in LGBTQ young people

BUT, I'm also looking for similar reports focusing on other minoritized populations in particular, or (whether in part or in full) focusing on the age ranges covering college students. I'm struggling to find something nearly so comprehensive, but I'm also not sure I'm looking in the right way. The Steve Fund seems to be a great resource for mental health for students of color, for example, but doesn't have obviously available data like this

I often find myself ruminating over something I said that didn’t get the “right” feedback. Maybe this means my opinion wasn’t validated, or someone proved I was wrong, or I was completely ignored. The repetition of these moments in my head can last for days, sometimes years. I’ve learned a few coping mechanisms because no one can be perfect, for example, just telling myself that it’s a learning lesson and realizing that most of the “embarrassing” things I’ve said in the past are completely forgotten by anyone else who heard usually helps get me through. Can anyone who relates to this share some other good tips/tricks?

I've recently been diagnosed with adult onset ADHD. The signs were always kind of there I guess, but without the right people asking the right questions, it's easy for health problems to go undiagnosed. After seeing articles like this one I realize that I'm not alone. I'm of a similar age bracket to the writer of the article, and at first I was dismissive of the diagnosis because I'd been functional (or at least thought I was) up until around when the pandemic started. I've since come to terms with the fact I have a lot of mental health baggage piling up because of a dysfunctional childhood that I ignored until it finally reached up and bit me. I'm considering going back on medication, but the one they had me on previously (methylphenidate, aka Ritalin) has the effect of making me so intensely focused on something that I sometimes forget to eat for hours at a time. It's a toss-up between being unable to concentrate or being focused to the point of it being a detriment.

Is there anyone here in a similar situation? What have you done that works for you? Any advice is appreciated.

I am realizing as I age that when I’m feeling unwell in some kind of way, I cannot be comforted by others.

I have friends and family and sometimes a romantic partner who try to comfort me, and while I am thankful for their support, I never feel comforted. I know what doesn’t work but I cannot provide them with what I want or need because I don’t know what I want or need to feel comforted.

So, how do you get emotional or mental comfort from others?

Edit - I wanted to start a conversation about how you (the reader) feel comfort from others. Thank everyone so much for the tips for me, but that was very much not the point and I can see now how that was unclear. Thanks again, everyone!

To the powers that be: if there is better phrasing, please help me out with the title.

I hear people saying to suicidal people that its easier to get through life if you just try to get through the next moment, but tbh for me its at a point where depending on my mood i can't get through one moment, and i have used drugs much more frequently and made 3 attempts in the past week as a result (though they were all when cptsd and psychosis was bad so i wasn't thinking at all rationally, and i didn't completely expect them to work).
For me "getting through the moment" is just continuing to exist, or just trying to distract myself/take drugs.

So does anyone know of any ways to keep going without drugs if things are really severe?

I've been writing and rewriting this to make it more formal, but I've decided to screw it because the original was raw and can probably describe my needs better than my rewrites could ever. So apologies if it doesn't fit the tone of Tildes

As of right now, I am currently not seeing anyone for my mental health. However, I'm in the process of getting help. I already have a consultation form for one and all I have to is figure out if I'm saying too much because one part ended up being like 16 paragraphs long and I don't think mental health professionals like that...

Anyways, I've been having trouble getting myself to clean. There's a gap between my bed and the wall that I put in case I ever got bedbugs (never got bedbugs in my life) and what ended up happening is various items of clothing would fall into that gap without me knowing. Which led to a whole bunch of carpet beetles suddenly flying in my room a month and a half ago.

Here's my concern: I did have a period where I found fleas in my room, and after seeing them a few times I went on a cleaning spree. Eventually my dad had to stop me because I was deep cleaning the house every single day, and when I wasn't doing that I was researching about pest control. When I wasn't able to clean I ended up researching too deeply on pest control, which led me to find out about scabies. Which led me to a delusion that I had scabies, then went straight back to my cleaning frenzy again, this time with this newfound fear that I'm infesting my family with scabies if I don't babywipe or vacuum everything.

Then one day, I started getting psychosomatic hallucinations that matched the symptoms of scabies. At night, I wouldn't be able to sleep because I would feel hundreds of bugs crawling inside my skin every time it got dark, forcing me to sleep with 3 lamps around me to mitigate the sensation. Every time I got out of a hot shower I could feel it too, but not as strongly as at night. And then when I sought out a dermatologist, because there was no way I didn't have scabies if I was going through all these symptoms, it just suddenly... stopped? Which was my biggest indicator that it wasn't scabies, because it would have never stopped if it was scabies.

It was a... bizarre experience for sure, but an impactful one. Especially now that it's been about a year since it all went down, and I've been having trouble sleeping because my room gets so stuffy. I keep my window open at all times, even when I'm too cold to sleep, just because the air is so musky and makes me feel like I'm on the edge of throwing up. I don't feel hunger in my room, and all I can think of is how there's carpet beetles in those gaps and how I will have to clean them when I get better. Because I don't want to repeat what happened last year. I don't want to clean and have these stupid carpet beetles or whatever else I find in that gap briefly take over my life like those fleas and imaginary scabies did. For the past few years I've been swinging between moments of depressive symptoms, grandiosity, and paranoia one after another and a few months ago is the first time in five years since I stopped having these back-to-back moments and I just... can't have another one again. Not until I get help.

But it has come to my attention that help might take a long time. If I need therapy, that might take months, if not years, and there's a good chance if I need medication I won't find the perfect one right away. So either I have to wait until months or years of my room rotting more and more or I clean it now. To clean knowing full well that I might relapse into another stupid paranoid episode because it was a trigger before and can be a trigger now.

I don't know. I don't know what to do. I want to clean but I don't want to trigger what I went through in the past again. I don't want to trigger anything. Any causes to my episodes I keep it in my head and make it a rule to avoid at all cost, but how do I avoid cleaning when it's impacting my physical health not to clean? I know I should get help, get treatment, but I shouldn't do anything funny while I wait for the perfect solution right? When I have the right treatment and coping mechanisms I can tackle my triggers, so best not to clean? If that's a trigger? I hate this. I just want guidance

I signed up for a class from Udemy. Udemy makes tech classes you take at your own pace. The lessons are many short videos with lectures and some practical exercises.

I signed up for a class that will prepare me to take a certification class for a skill that will help my resume. Complete worth it.

I am about 2/3 done.

The thing is I've getting frustrated and mentally run down.

The course is voluminous. The going is slow.

I know the thing to do is to forget about finishing, forget about the results, and just focus on enjoying each lesson in the hear and now.

I enjoy taking notes, I am good at it, and I find reviewing notes to be soothing/meditative.

I still get frustrated and demoralized.

Worse, I always thought if I got a lot of time to learn something I would sit down at it 8 hours a day and blow it away. I get wiped out at about 3-4 hours. I'm kicking myself for this which isn't helping.

Any advice, commiseration, or success stories?

I have Bipolar I with minor psychosis, CPTSD and OCD. I was born into an emotionally abusive family, and they are the only people i know, because i am also chronically alone and have dealt with feelings of loneliness on some level since i was a young kid. I had some online friends who helped me a lot with mental health issues but i lost access to them. The main reason im suicidal is because i feel like i have really bad luck. No matter what i do it ends up amounting to nothing. Everytime i start having hope i lose it because something bad happens to me again.
I hear about mental illness and people having a successful life despite it and despite feeling hopeless, but i just dont see that its possible to ever have a life worth living.
I really hope there are other people who relate, or maybe people who used to be that hopeless but ended up living a good life.

I'm trying to find the root cause of my declining mental health. Maybe there isn't one. Maybe my brain is just physically broken and I have to deal with it.
But what I tend to think of recently is the concept of belongingness.
I rarely feel I have a sense of belonging anywhere. And my theory is that the constant otherness is what is causing the degradation.

So what i want to is, for those who experience frequent depressive cycles -- do you have a sense of belonging? Or do you too feel constantly othered?

(I hope this makes sense haha)

I have a very long history of mental illness from age 10, and though I've cycled through a lot of explanations the diagnoses that best match my symptoms currently are currently ADHD and CPTSD. I am medicated for both, and although I am not in active therapy I have also done therapy. I consider my mental health relatively well-managed currently: at least, I am not in any urgent danger of hurting myself and it has been a very long time since I have been. Certainly things could be better but I'm usually functional.

But sometimes I go through these phases, generally 1-3 months long, where my ability to function on a normal level slips dramatically. It never gets to the nightmarish state I was in when I was a teenager, but it becomes hard to... oh, make appointments, do the dishes, walk the dog, just generally deal with the obligations of being an adult. My house is never in GREAT shape but it becomes a disaster. Work performance suffers a lot, my relationships suffer. I also start experiencing emotional PMS symptoms (or perhaps I just lose the ability to suppress them), and while I'm not the type to have "emotional outbursts" I do experience deep and irrational sadness or anger on those days. I also tend to end up dealing with insomnia, which is like a force multiplier on feeling overwhelmed.

It sucks especially because it's like I'm watching myself do it, and I feel as though I don't have enough control over myself to nip it in the bud, and sometimes the damage I do during these times is not fixable at all. It's almost like an unplaceable craving, like there's some thing I'm missing and my subconscious and my body are trying to send me signals, and I just can't interpret them right and figure out what I need.

How I generally get out of these phases is -- well, it's a bit chicken-egg, because the turmoil makes it difficult for me to reach out for help or even do anything to help myself, so to me it seems like sometimes the wave just passes. I'll say, "ok, this time I'll get my shit together", download some new app or whatever, organize my time or tasks via some new fascinating system, and that'll work... but it feels like it's only because I'm "ready" for it to work.

I think it's unlikely I'll find a solution that will work indefinitely to prevent these slips (hooray, novelty-obsessed brain). And anyway - as though it even needs to be said - I'm sulking in the midst of one now, so prevention or reduction tips might be helpful later, but for this moment I'm mostly concerned with getting out once I'm in.

If you have "swingy" mental health, or phases, or waves - what do YOU do about it, if anything? Therapy? Do you change your medication? Do you take a vacation? Commiserate on your favourite internet forums? What works for you?

I'm a long time Tildes user but I've created this separate account because I'd like to avoid connecting this topic to my normal username.

I am going through a divorce that will take about a year to finalize and I am struggling with the stress. If it were a short term thing, I would grit my teeth and bear it, but I have a full year ahead and I'm afraid I need some help in order to make it through with my physical and mental health intact.

My wife has a personality that includes "kill mode" for anyone she deems as an opponent -- whether it is another driver on the road, a customer service agent who doesn't give her what she wants, or anyone at all who she perceives as having slighted her. This is one of the reasons why we're getting divorced. I have nearly the opposite approach to conflict, and I can't handle seeing people get attacked so fiercely or so often. Now that we're getting divorced, I am the target of these attacks. For clarity, they're only verbal attacks, not physical -- there is no physical abuse in this case.

I could stiffen up and fight back whenever she starts arguing with me, but we have kids and I want to commit myself to preventing their exposure to hostilities as much as possible. But this means I have to do my best to brush off my wife's verbal abuse and maintain composure so they can have a stable dad to rely on.

Right now I'm having trouble sleeping and I am constantly anxious throughout the day. It gets worse whenever I have to interact with my wife; and unfortunately we have to interact frequently every day to coordinate childcare and logistics of the divorce. I have a tightness in my chest from being so anxious (not heart attack) and I am struggling to maintain focus on work or any tasks I have to complete. I can hold back the tears, but I really do want to cry many, many times a day.

What can I do to wade through this time period? I know there are breathing exercises to help calm down. What else can you recommend? I am trying to make sure I do eat well enough and that I drink enough water. I avoid alcohol entirely and don't take any kind of medication.

Any advice at all would be greatly appreciated. And I'm sorry if this is not an appropriate forum for this question. I will delete if so.

So, this won't be like the usual posts on Tildes. This will be on the long side and rambly, so I apologize for that in advance. Maybe this would fit better on a blog, but I don't have one so I'll post here instead. But while this post is definitely meant to be cathartic for me, I think maybe this will help some people too. Especially those who haven't experienced a super close or sudden loss yet.

I want to talk about neurodivergence and grief.

To start, I'm a 28-year-old woman. Higher end of the autism spectrum (diagnosed with Asperger's, though that term is out of favor now) and ADHD, and my parents managed to get me diagnosed by first grade. I've always known I perceived the world a bit differently from others, and this is further impacted by the fact I'm a writer. I often say one strange silver lining to being a writer is that everything is experience for writing. I've always been able to "detach" myself from reality pretty easily and view it from an almost outsider's point of view. Not full-blown disassociation, but I can step back more easily than most and start analyzing myself and others' actions. That definitely came into play here.

Two weeks ago on Wednesday, August 23, my dad died at the age of 68. Heart attack while golfing, stemming from a lifelong heart defect (structural issue, discovered when he had a heart attack at the age of 17). He had no other health issues, he went to regular checkups every six months or so and his heart checked out as fine as it could at the last one. There was zero warning, he was in perfect health that morning and everything was totally fine and normal up until the attack. The autopsy confirmed there were no external factors like the heat at play, just his heart suddenly giving out.

Just, one minute he was fine, and then less than 24 hours later my mom and I were sitting in a funeral home talking about packages and then to the cemetery to buy grave plots. It's the definition of a sudden death.

They say that everyone grieves differently, but I've been aware for a while that my grief is different from others. Until now, my experience with loss has been limited to three grandparents and pets. No aunts or uncles died during my lifetime, no cousins, no friends barring a former classmate who I didn't know too well but who committed suicide. With my grandparents, I definitely noticed I reacted differently. For example, I ended up checking out caskets during my grandmother's wake and talking to the workers about things like cremation jewelry. I still feel a bit bad for my dad who patiently followed me in there during his mother's wake. With my maternal grandfather, I remember thinking about a book I gave my grandmother while at their house, and I'm pretty sure I mentioned it to my cousins. Keep in mind, this would be like two hours tops since he died.

So, yeah. I've been aware for a while that my reactions to death and grief thus far aren't really "typical". I sometimes felt a bit guilty with how easily I felt okay after my grandparents died while seeing everyone around me nearly break. And more than that, I've been concerned about how I might react to other deaths. Particularly my parents.

So what I'm saying is that my dad was my first brush with super close and sudden loss.

So, now that you have the facts, I'll just start explaining my experiences with grief.

The Initial Reaction

My very first reaction: shock. Not even numbness, just shock.

My mom came home, and said she had bad news. I immediately thought it must be my grandmother, who's currently 97 and whose health has been on a steady decline. Instead, she told me my dad had a heart attack at the golf course (oh my gosh, is he okay?) and was pronounced dead at the hospital. For the first time in my life, I found myself asking if it was a dream and genuinely wishing it was. I hugged my mom and whispered "please be a dream", just like I often read and wrote in emotional scenes, and I meant it.

Almost right after she said that, the garage door opened and my first thought was that it was my dad, but instead it was my aunt.

That's around when my "writer-brain" kicked in. I looked at her and said "(Aunt), Dad's..." I couldn't finish the sentence—or maybe it wasn't a matter of could not but did not, because my writer-brain pulled upon all the similar scenes I'd read and written. My aunt pulled me in for a hug, followed by my two uncles, and I cried into their shoulders. I repeated this when my dad's brothers and their wives showed up, and pretty much everyone else who visited in the coming days.

Writer-brain led me to making a couple of docs on my phone: the first titled "Feelings of Grief", the second titled "Dad". "Feelings of Grief" was a bullet-point list of observations of my feelings and reactions. My arms felt heavy and kind of numb. Lifting my phone could be hard, every time I'd set it down or lower my arms in general my arms would just flop down to my side. I'd randomly start to cry and tear up. My chest hurt a bit. I felt empty. It was stronger when alone, maybe because I could distract myself with other people. Noted later in the evening that my arms were still kinda limp, and I didn't have many photos of dad on my phone, and please please PLEASE let mom's phone be synced to the cloud and the photos she had still there.

One interesting note I left: it wasn't the same hollow feeling as the former classmate who committed suicide. Writer-brain had kicked in similarly back then. I remember noting to myself how my jaw just naturally fell open of its own accord, I even closed it and it automatically went slack. When our vice principal first mentioned he'd died, my first thought was "oh no, it must be a car accident". But when he revealed it was suicide, it was a gut punch and the feeling was just... hollow. I reaffirmed this the next day while talking to my mom that there's a difference between "hollow" and "empty", not one I can put into words, but a difference nonetheless.

The second document on my phone, "Dad", started on Wednesday night as an obituary. When my grandfather died, my dad had told me how sad he always found those short obituaries, so I knew we'd have a long one. I'm a writer, so it felt natural that I start on it to take some of the burden off mom. The next day, I read it to mom and we ended up using it with minimal changes.

What I didn't tell her was that the rest of the document was basically me journaling. I don't journal, but I know writing helps me process things and organize thoughts, so I just wrote. Starting with the words "Dad, I love you." I wrote out all my thoughts, a letter he'd never get to read. I wrote about checking the Ring camera and it automatically pulling up the video of him getting the paper with the dog that morning. I made my bed and cried, put away dishes and cried, couldn't finish folding the laundry because I realized some of it was his. At that point it clicked in my head that the format was poem-like, and I wrote lines with questions that could fit a poem structure. I'm not even a poet, I've always preferred prose, but that's where my brain went.

And I also wrote about how I knew I'd be okay, because I already knew my grief was different. And how awful that made me feel. How I felt guilty that I wasn't there when mom was downstairs. She got the call while doing laundry, and I think I came downstairs right after she left. She went there alone, my uncle meeting her at the hospital, and had to wait until the doctor came out, while I was at home totally oblivious to the fact the most important man in my life was gone.

So, I never saw my dad in the hospital. Never saw how awful he looked after the attempts to revive him, only saw him on Monday at his calling when he'd been cleaned up. Both docs had me wondering if maybe the fact I hadn't seen him let my brain detach more, let me distance myself from his absence and the situation, and if seeing him on Monday would be when it really felt real.

Day 3 and Onwards: Weirdly Okay

On Friday, Day 3 after my dad died, everything felt... weirdly normal.

I think on Thursday, my brain was already starting to push me out of heavy-grief mode. Every time I hugged people on Wednesday I'd automatically cry, but I think towards the end of Thursday that reaction was dwindling. I think on Friday itself, it stopped entirely. I'd hug people but tears wouldn't automatically spring like the previous two days. I could even already tell, "Oh, I'm gonna get kinda tired of all these hugs, aren't I?" On Thursday I randomly cried a couple times, had to run upstairs to hug my mom as it crashed into me once again, but that didn't happen as much on Friday.

I'd already joked about "literal Covid flashbacks", because I got Covid this year and my primary symptom was an eternally runny nose. I went through at least one tissue box on my own and by the end my nose was just sore from blowing and wiping it so much, so I joked my brain didn't want a repeat of that soreness.

Inwardly though, I was reflecting on my previous experiences with grief. I knew I'd enter an "okay" state sooner than others, but I didn't expect it to happen so fast after my dad died. I still felt sad, but I wasn't randomly crying anymore. I live at home, never moved out and even attended a commuter college, we've always been an incredibly close family, so his death should be more... I guess devastating? Heart-breaking? It felt bizarre to me, to already feel like I was edging back towards okay.

My theory: it's an evolutionary trait promoted in neurodivergence, to ensure that at least one member of the "pack" won't be vulnerable. Make sure someone can be functional enough to identify potential threats and such, maybe go out for supplies. I mentioned this theory to a few people in the coming days. My mom said it was almost like a superpower when I explained it.

And as the child in the situation, it sucks. I don't have the experience or knowledge to do all these arrangements. All the financial stuff is on my mom since she has the accounts, she knows who to inform and could estimate how many people to expect, she had all the contacts who could help arrange and set up a reception at our house, etc. And even besides that, as the child in the situation, it wasn't exactly "my place" to do a bunch of that stuff. I couldn't directly help with anything but the obituary, provide tech support for getting the photos for the calling, and providing emotional support.

So, yeah. That sucked for me because I knew I felt much better than mom did, but couldn't really do much to ease her burden. So it felt like I was largely leaving her on her own to navigate the funeral process. We had my aunts and some of her friends present to help, including some who'd experienced similar abrupt loss and could help guide and advise her, but there's still a lot of stuff she needed to do herself. She didn't have much time to really process it on her own because she was just so busy, I don't think she really got a chance to relax until Wednesday after everything was over. So for most of the process, I was much more cognizant of my mom's grief than my own.

And I was honestly quite open with this. I didn't flaunt that I was weirdly okay, but people would ask how I was feeling and I'd be honest: "I think my neurodivergent brain is helping." By Sunday, I was still weirdly okay. The calling was the next day. I helped mom submit the pictures to the funeral home's website. We had a small horde of friends and aunts help move stuff to the backyard to prepare for the post-funeral reception at our house on Tuesday. We got through the day, and picked out dresses to wear.

The Calling

At the calling on Monday, I got to see my dad for the first and last time.

My mom originally wanted a closed-casket calling, but agreed to open-casket because we knew some people needed it. Including my uncle, who'd been present at the hospital and who my mom described as even worse off than her.

It turns out, my mom needed it too, more than she realized.

My dad had an autopsy for a few reasons. I kind of expected one given his heart defect, but there was also the fact it was an incredibly hot day and he hit his head when he fell, so the coroner wanted to confirm what exactly the cause was. And as I said near the start, it was just his heart. As far as I'm aware, he most likely died instantly from the heart attack itself, but they tried to revive him for a while before calling his death, maybe half an hour. The doctor at the hospital said he'd tried everything he could to bring him back. Surgery, intubation, etc.

To sum it up, he didn't look too good in the hospital. When I expressed regret I hadn't been with mom, she said she was glad I hadn't been there. I still wonder if that might have helped me get "okay" so quickly, since I didn't have the traumatic memory. He died away from home, so there's no traumatic memories associated with his body in our house. My first and only time seeing him post-mortem was at the funeral home, after he'd been cleaned up and dressed.

My dad in the casket looked peaceful. I don't know if I'd say he looked like he was sleeping, but he looked so much better than I had feared. At one of the last funerals I attended, I felt like their body hadn't looked like them (and my mom also felt that way when I mentioned it to her later), so I'd worried that might happen here. It was a relief that dad still looked like dad. Later, one of the morticians commented about the nasty bruise on his head from the fall, and I know that bruises can be particularly stark on corpses, so. Big kudos to the mortician. I think seeing him like that, instead of her last memory being at the hospital, was a big help to my mom.

Mom and I hugged in front of him and cried. We talked to dad a bit, and then people poured in. Relatives first, and then friends started coming, both friends of my dad and my mom. My mom is a social butterfly and has a MASSIVE social network in the local branch of her industry, to the point there's an actual joke about "Six degrees of separation from (Mom)", so there were a LOT of visitors just to support her. So my mom was in her element talking to people, while I floated around a bit talking to people I knew, hanging out with my cousins, helping introduce one of my dad's friends to other specific people he wanted to meet, etc.

I myself had four friends visit during the calling. And this is what inspired me to make this post.

Neurodivergence and Grief

One of my friends also abruptly lost her dad a few years ago. It's been a while so I can't remember the exact cause, but I think he'd died of a heart attack too. And like me, she's also neurodivergent. So of everyone I know, she's the one person who could relate to me the most.

So naturally, I told her about how I felt weirdly okay. I'd mentioned to others about how my neurodivergent brain seemed to be helping, mentioned my theory about it being an evolutionary advantage, but I went into more detail with her. I opened up a bit more than I did with everyone else, because I knew she'd gone through the same loss.

And she'd had the same thing happen.

I won't try to summarize everything we talked about. Some of it is personal and I reached some internal conclusions about her own experience she might not want me to share, but one thing that stuck out was that she told me not to let others act as if I was grieving wrong. She assured me that everyone grieves in their own way, and while everyone says that, hearing it from someone who went through the same experience as me just gave it so much more weight.

I'd been aware my reactions to loss would be different since my grandparents died. I've had years to think on it, and by the calling I already accepted that it was a quirk of my brain. It didn't mean something was "wrong" with me, that I didn't love my dad any less. It's just my brain being kinda weird and helping me adapt faster. I'd once read a theory years ago that autistic people don't struggle with feeling emotions at all, they struggle with feeling too much, and their brains get overloaded and just shut down the emotion. I don't know how true that is, but at times like this, I think that might be true.

But despite knowing and accepting this, hearing that I wasn't alone, that it wasn't just my brain and someone else had experienced this weird "okay-ness", helped more than I expected.

And that's why I'm writing this.

Neurodivergent brains don't process things the same as "normal" people. Anyone who's ND knows that, and every person's experiences with it is different. Even if you, the person reading this right now, also have ADHD and autism, you probably don't have a "writer-brain" analyzing events and your own emotions for writing reference the way I do. I got lucky to be born to two amazing, loving parents who never made me feel like I was wrong or broken for my differences, and to help me adapt to the world instead of trying to suppress those. They helped me accept it as part of myself.

But while I've always known and accepted this, it doesn't change the fact that knowing others feel the same way can be a relief. Confirming that it's not just you, that there are others—it can mean so much.

It's why I proudly identify myself as asexual to people I meet, to help educate others that it's a thing that exists and they're not broken. It's why I was so ecstatic to learn immersive and maladaptive daydreaming are things, to discover that my lifelong game of pretend isn't just some quirk of my autism and ADHD but something thousands of other people do, including full-grown adults. It's why people find pride and comfort in having labels at all, why even diagnoses can be a reason to celebrate: just being able to know you're not alone.

I got lucky with my parents, who have loved and supported me throughout my whole life. I don't even like referring to ADHD and autism as disabilities, because to me, they're just different forms of cognition. Nothing to be ashamed of, they're just a part of who I am. I've spent years thinking and reflecting over myself, and managed to understand the core pieces of myself as a person fairly early on. And I'm happy to say I like who I am.

Unfortunately, my story isn't nearly as common as I'd like though. Many neurodivergent people grow up thinking something is inherently wrong with them, either due to not knowing about their conditions, or because their own families tell them as much. Far too many people think they're awful people, stupid because of learning disabilities, or even just broken. Our "normal meters" are off by default compared to neurotypical people, and if you don't know why, it can really bother you.

This strange okay-ness and quick recovery from grief seems like one of those things that would haunt people, lead to all sorts of guilt for not feeling grief strongly enough when you "should". The words "everyone grieves differently" feels like a kind of hollow platitude in the face of those feelings. It's one of those sayings that everyone spouts, like "time heals all wounds", but there's a huge difference between saying something and experiencing it. It's just one of those things that people say, regardless of experience with it. Especially when it's "normal" people saying it.

So, take it from me now, someone who's neurodivergent and has just experienced close and sudden loss: You might feel okay sooner than you expect, and that's perfectly fine. It's just our brains being weird, and it says nothing about how we feel about the person we lost.

Maybe the circumstances of the death will make it easier or harder for you to adjust. Maybe it will hit you harder when you're alone. Maybe you'll find comfort in surprising details. Or maybe it will hit you in bits and pieces, in the smaller things you notice as time passes.

There are so many ways you can react. It really is true that everyone grieves differently. No matter how you react though, it doesn't automatically mean you're a bad person or don't miss them enough. It just means your brain processes things differently, and might be trying to shield you from the full brunt of the pain.

And besides, even if you feel like you’re recovering too quickly, I think there’s a good chance you feel that loss more strongly than you actually realize.

Nighttime Talks with Dad

The last time I saw my dad was Tuesday, August 22, before he went to bed.

I don’t remember our exact final conversation. We had a nightly ritual though where we’d either try to get our dog Zoey on the porch, or step out there ourselves. Zoey hates people hugging and kissing. For some reason at nighttime, just standing near each other can set her off. Every night when dad would come upstairs from the basement, the second one of us spoke, she’d start barking because she knew that was a precursor to physical contact. (Also, yes, this DID make the initial hug-fest after the news broke a bit frustrating since she barked constantly.) I like to say that she’s brought our family closer together than ever, and she hates it. Dad would go out of his way to give extra hugs and kisses just to set her off, laughing while she’d go crazy. Usually we’d try to get her on the porch so she couldn’t jump up on us while barking, but even after letting her back in he’d still sometimes give an extra hug and kiss just to mess with her.

If she wouldn’t go on the porch, we’d just go out there ourselves. And in more recent months, we’d step outside on the deck to look at the night sky. Dad would usually go out there in the summer before going to bed, so I just started joining him. I think the only constellation either of us can identify is the Big Dipper, but it was still nice to look at the stars and moon.

On Tuesday, August 22, we went outside as part of that ritual.

The next night before going to bed, I stepped outside to talk to dad again.

And I’ve done that most nights since then.

I just step outside and talk to him. I don’t know if he can hear me. I’m not particularly religious and honestly terrified of the unknown eternity that is the afterlife, and I told him that. But I want to believe he can. I tried talking to him from the porch one night, but it felt wrong so I stepped outside to do it. So maybe it’s just psychological and in my head, or maybe it actually means something.

And when I do, I usually end up crying a bit.

That’s one thing I’ve noticed: while I stopped randomly crying throughout the day by like Friday or Saturday, I still cry at night when I talk to him. I think that little note I made on night one that I might feel the grief more strongly when I was alone was right. I’ve even said as much out loud, just asked, “Dang it, why do I only do this at night?” It’s the kind of time where I’d want to hug someone like mom, but by that point she’s in bed.

I’ve probably weirded out Zoey with the near-nightly hugs after these talks. I doubt she understands dad is gone for good, and I don’t think she fully gets we’re sad. That dog lives in her own world and isn’t the brightest. At least she’s finally made the connection that water helps with thirst (no, I’m not joking. We genuinely questioned if she realizes water helps with thirst, and now that she’s drinking regularly we’re pretty sure the answer was “no”).

Right now, I think during the day I can function fine. I think I am mostly fine already, wrong as that feels. I know that it will be the little things I’ll miss the most. Like him making my bed every day, or being able to suggest watching a show, or messing with the dog together, or coming home from visiting friends to see him and mom slow-dancing in the living room.

But at night, when I step outside to talk to dad... Well, I think that’s when I allow myself to really process it. To process his absence on a subconscious level that I just can’t do consciously. Maybe it’s because it’s too much to process, like that theory about autism I mentioned earlier. I don’t know.

One thing I do know: everything still feels surreal.

My mom and I went to my cousins’ lake house over the weekend. We had already planned to go before, and last Wednesday my mom said “Screw it, let’s go up anyway.” We needed the change of scenery and time to decompress after the funeral. She later said it’s basically us avoiding the situation for just a little longer, and I think she was right about that. Being away from the house made it a little easier to act as if it was just a normal vacation, almost like a "girls' trip".

I didn’t talk to dad while up there, maybe due to avoidance, or maybe due to my brain suddenly deciding it doesn’t like being surrounded by water in the dark. It was never an issue on previous visits. Last time we were up there, dad and I sat on the dock staring up at the stars and just being in awe. We’ve been reminiscing about it all summer long. I planned to talk to him, but the first night on the dock I turned off the flashlight on my phone and my brain basically went “nopenopenope, water everywhere verybad runrunrun get to land runrunrun”. So that's a thing now, good to know I guess?

So, yeah. We got back on Tuesday, and were exhausted from a seven-hour car trip. And then I talked to him again last night. Cried a bit, because that’s just how those talks tend to go, and then I went inside to hug the dog before sitting on the couch to resume my usual quasi-nocturnal routine. (I got upstairs and into bed before 4 am though, so I'm getting better! Little victories.)

Closing Thoughts

There’s a lot more I could say, but I don’t know what. Usually I like to edit these sorts of rambles to heck and back, but this time I’m doing minimal editing. (Editing note: I apparently lied, just went back to reread and edited it as I went along, dang it.) For now, I want to focus on some more closing thoughts and miscellaneous details. Things I couldn’t fit above too well, but think need to be said and shared. Maybe it can help you, maybe it won’t.

The benefits of how my neurodivergence is impacting my grief: I can help my mom more. I’ve already decided I’ll take on the task of figuring out all the account transfers (e.g. Netflix, Ring, etc.). I was also able to go through my dad’s laptop to find photos, just quickly page through them and look for any photos with him. I’m not sure my mom could have done that herself without getting sucked into each memory they held.

I will say that, as a writer, I like to think I understand emotions better than most people. I like putting myself in people’s shoes to figure out why they feel a certain way, understand their mindsets and how it influences their thought processes and actions. I’m definitely incredibly empathetic compared to the average person. That said, just because I understand their feelings, it doesn’t mean I know how the heck to handle it. My brain tends to freeze up. Happened when my aunt burst out crying and hugged me when my grandfather died years ago, and it will probably happen again now.

So I’m still out of my element if mom suddenly breaks down sobbing and crying. I think this will apply to many of us. So uh. Sorry guys, I don’t have much advice for comforting people other than “just hug them as needed and let them vent”. Hugs can REALLY help though, I think some people these past two needed the hugs more than I did.

On that note, feel free to reject the parade of hugs. I know a lot of ND folks don’t like physical contact or hugs anyway, but neurotypical folks can get over-hugged during these times too. One of my mom’s friends who lost her husband told us that we might get sick of hugs. So don’t feel obligated to accept them just because of the occasion. You're the one grieving, so they can't judge you for refusing. If they judge you anyway, they're assholes and don't deserve to have their opinions considered.

One of my main coping mechanisms is humor. I try to be mindful of it and keep some of them to myself, but I might've made some jokes that are "too soon". For example, our dog is the only thing now standing between my mom and I from becoming crazy cat ladies. Previously it was my dad's allergies, so yeah. If you also cope with humor, just be careful about telling the jokes. The pain can be more raw for some than others, and some jokes might be too much. Some people are really good at putting up a strong front, so you can't always be sure how they'll actually take it. So be careful.

I mentioned earlier that when my mom told me the news, I first thought it was about my grandmother. At the time, part of me wished it had been my grandmother, which made me feel guilty. But I later found out pretty much everyone had this exact reaction, including my aunt (her daughter) and I think even my grandmother herself. We've all been sort of mentally bracing for her death, and she's 97 so she’s lived a long and good life. It would still be sad of course, but, well, we’re expecting it. No one was expecting my dad to die though. So if you find yourself with similar thoughts, don’t feel like that makes you an awful person.

One of the biggest benefits of my neurodivergence though: I was able to give a eulogy for my dad.

I honestly expected I’d give one from day one, but apparently no one else did until I talked to the minister right before the service. Originally we said I’d go second, between my dad’s best friend and his brother. After his best friend’s speech though, I realized I should definitely go last. I could tell they’d be telling more lighthearted stories, and mine would set a different tone that served better for the end.

I wanted to talk about dad’s love, his most defining trait and the most important thing he passed on to me. He was the kind of man who’d sacrifice for the people he loved, who’d go out of his way to find a specific restaurant despite wanting to go home just because we mentioned wanting milkshakes from there. Heck, last Christmas we all agreed to buy just three gifts each, and guess who didn't stick to that rule? I swore I'd buy a blu-ray player sometime this year instead, our DVD player doesn't work with the new TV we got in the basement so just needed to run to a store together. (I still might, but it's a lower priority now.)

Besides all that, I wanted to share a story he told me, that I’ll also tell you now.

When my grandfather was a little boy, one day at school a classmate came in raging mad about a fight with his own father. They’d had some argument, and this kid was ranting about how he hated his father. Petty, empty words because he was still mad at his dad over whatever they'd fought before.

Well, his father died at work that day. Car accident, I think. And the boy grew up knowing his last memory with his father was that awful fight.

Yeah, that sounds like an awful story to tell a kid, huh? I must have been five or six when he told me, and it was probably because I was pretty angry at my mom for some stupid petty reason. Just a kid throwing a tantrum, you know how it goes. Maybe it was a true story, maybe he just made it up on the spot to show me that being mad at my mom over petty little things was wrong. Either way, it worked. And I think it worked better than my dad ever knew. Thanks to that story, I grew up aware in the back of my head that death can happen suddenly and without warning. Maybe that’s a bit of a bad thing, but I’m grateful I got to understand that so early on without experiencing that sort of sudden loss myself. And it stuck with me, just how awful it would feel to have your last memory be such a bitter one.

So, I made a point to always say “I love you” to my parents and any others I care about. They go to bed, “Good night, I love you.” They're going on a trip, “Have fun, love you!” when they leave and at the end of every phone call. They’re just running to the grocery store five minutes away, I open the garage door to stick out my head to say “I love you” just to make absolutely sure it’s the last thing I said to them, just in case.

I don’t remember my exact last words with my dad. But I know that it was almost certainly “Good night, I love you” just like countless other nights. And I am so damn grateful I can say that.

So I passed on that story at his funeral. And afterwards, I got countless compliments about how strong I was for speaking at all, and how I didn’t stutter or need notes (someone asked if I had public speaking experience, and I don't, so I guess I might have a natural knack for speeches??), but... I think that was most definitely because of my neurodivergence. I think I’ve already made it quite clear over the course of this post, but by the time of his funeral, I was, weirdly, okay. Sad and empty, but not devastated. So I could deliver my message clearly, the same one I'll pass to you:

My dad was a wonderful, loving man, and everyone should remember that you never know which goodbye will be the last one. So make sure you always punctuate your farewells with an “I love you”, and try not to ever part on a bad note. Not even when you’re just going to sleep.

If you’ve read all of this, thanks. And I hope maybe this ramble of mine can help people a bit too, especially those who have yet to experience such a loss themselves.

Remember, everyone experiences grief differently. Maybe it will devastate you and you won't be able to function for a while, or maybe you'll be able to largely go back to "normal" a bit faster than you expect like I did. Brains are weird, even without throwing neurodivergence into the mix, and there's so many factors in grief that makes every experience truly unique. I'm not sure I'd be nearly as composed if I'd seen my dad at the hospital, or if he'd died in pain or of heatstroke. The inevitability and quickness of his death, the fact we could have done nothing to prevent it, has been a surprising comfort to both me and my mom because there are no agonizing "what ifs" to haunt us. We're not sure how we'd feel if it was something preventable, that's a "what if" I don't want to consider.

Just remember that no matter how you respond, somewhere out there, there's likely someone else who's had the same feelings and reactions as you. You're not broken, you're not an awful person. You're just you. Your reaction won't diminish whatever feelings you have for the person—and note that I said have and not had: just because they're gone doesn't mean those feelings are gone too. He's still my father, I'm still his daughter. Death doesn't change that, it just means I can't hug him and tell him that directly anymore. The same applies for every other loss we'll experience. There's a reason some people refuse to date widows and widowers.

Today, my aunt left. She’s been staying here since he died, she flew in from out of state. Tonight will be the first night with just me and mom at our house. This is the first night of our new “normal”. I don’t think we’ll have anyone over tomorrow besides the cleaning lady (who last came the day after he died—felt kinda bad for her to visit that day knowing what happened), so tomorrow will be the first day it’s really just us. The first day we won't have any real distractions from his absence.

I don’t know how we’ll feel in the coming days, how things will go from here. Maybe his death will finally really hit us now that we’re not in funeral-preparation or vacation mode, and can sit and breathe in our own house. Maybe I’ll have a delayed grief reaction. Maybe my mom will break down sobbing in her bed tonight or tomorrow. I don’t know. Everything feels almost dream-like, like we’re in a weird limbo but also not. The world’s still moving without us, and we’re slowly moving with it.

All we can do is take it one hour at a time.

I've started to date a lovely woman, and she's now allowed me to know that she has Dissociative Identity Disorder. I've done my best to read and watch information about the 'disorder' but I was wondering if anyone has had any experiences that might they're willing to share.

I know that everyone is different, and there's no set way anyone who has it acts or behaves.

I've just started switching my medication and it's been pretty bad for me. Brain zaps are very frequent and I'm crying a lot. I'm struggling.

I've been trying to find out what other people's experience has been like when they switch meds. What is normal and what isn't. People who relate to brain zaps and how they deal with it. Are brain zaps even considered a real thing?

What has your experience been like?