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  • Showing only topics with the tag "disabilities". Back to normal view
    1. Meta Quest 2 - For someone in a wheelchair

      Ok, so my partner has gotten the recommendation from one of his spinal cord injury groups that a Meta Quest 2 would potentially be really good for him as way to feel less "closed in" this winter...

      Ok, so my partner has gotten the recommendation from one of his spinal cord injury groups that a Meta Quest 2 would potentially be really good for him as way to feel less "closed in" this winter and that many of the games can be played stationary (he has essentially no control of his legs and uses a power wheelchair).

      I don't know anything about any VR games, so I'd love thoughts on the system, what to look for if we buy secondhand, if a different system would be better (money is a barrier, so I don't want to spend it all on a new system and not be able to afford games), and what games would meet his needs?

      Thanks y'all

      13 votes
    2. What are your beliefs about aging?

      Given all the noise about whether President Biden is frail or cognitively compromised, I thought it would be interesting to informally survey Tildes denizens for their beliefs about aging. These...

      Given all the noise about whether President Biden is frail or cognitively compromised, I thought it would be interesting to informally survey Tildes denizens for their beliefs about aging.

      These are purely conversational questions, each of which is so broad it could be its own topic - I have no skills as a demographer or pollster.

      I also realize there may be national or ethnic definitions around who counts as venerable as opposed to senile, so I'll ask you to include nationality or relevant ethnicity in your response.

      1. What decade of your life are you in - < 20, twenties, thirties, etc.
      2. In what decade (see above) do you think old age begins?
      3. What characterizes being "old" to you? For example, loss of sexual attractiveness, diminution of physical strength or stamina, illness, loss of mental agility, etc.
      4. At what age do you think you will be too old to function as you want to in life?
      5. Do you have experiences of aging (personal, family, acquaintances, caregiving roles) that give you concerns or hopes about your own future?
      6. Do you believe age confers any benefits, and what might those be?
      7. Assuming no catastrophic health events, do you believe life will seem better or worse to you as you age?
      8. Do you feel like aging people are a burden to those younger?
      9. Do you find yourself using pejorative words about age?

      Full disclosure: There is evidence that what you believe about aging influences how well you age.

      1. I'm in my 50's, US, ethnically Jewish.

      2. My current inclination is to say that old age begins around age 75 in general, but I've met people who were what I'd call old at 30 and young at 90.

      3. I know that various measures of peak {insert attribute here} start declining much earlier. 75 - 80 seems to be the point at which many things break down irreparably for the vast majority of people. That's the age range where the ability to live independently drops off, and that's what I count as "old".

      4. I hope to be independent for at least another 25 years, but that's already somewhat determined by a limiting progressive condition. My experiences with aging are biased by highly educated people and super-ager relatives. There have been several centenarians in my family, each of whom was cognitively intact until death even if they were no longer completely independent physically.

      5. I believe age confers the ability to recognize patterns based on cumulative experience. That's what passes for wisdom. The ability to acquire new memories and skills can be more rapid with connections to the previous body of knowledge. Socializing is definitely easier with many years of practice and the dulling of anxieties - the worst that can happen usually already did. For better or worse, people look up to you as a survivor and teacher...

      6. Life will probably get better with age. I've had an extended time without a job followed by a job purely chosen, so I can say that "retirement" is likely to be much more productive and enjoyable both for self and society. I expect old age to be a time of reconnecting with others and doing the charitable activities I don't have flexibility to engage in now.

      7. This is a tough one. At a general scale, we're encouraged to work as hard as possible to hoard resources that will ensure we have the means to maintain independence and purchase care when we're old. Rather, we could live lighter, share more, and build relationships which can sustain us. I count myself fortunate to avoid the burden that many others have endured when dealing with debilitated or demented relatives. And yet there are so many ways in which nations and cultures other than the U.S. do a better job of sharing care.

      8. There's a lot of online discourse about greedy boomers, crumbly conservatives, and so on, but I think those are manufactured divisive narratives. I've been acquainted with so many people over the years who don't fit neatly into demographic or political boxes. On that evidence, I don't think any generation has a greater balance of virtue or vice compared to the others.

      9. I use "adulting" and "old fart" self-denigratingly. I follow r/oldhagfashion for actual IDGAF style ideas.

      18 votes
    3. E-bikes: Seeking advice on a commuter bike that meets disability needs

      I've done considerable e-bike research, and I'm still struggling with unanswered questions... I'm looking for a mid-range e-bike mainly for commuting, approximately 3 miles/5 km each way. Part of...

      I've done considerable e-bike research, and I'm still struggling with unanswered questions...

      I'm looking for a mid-range e-bike mainly for commuting, approximately 3 miles/5 km each way. Part of the route is on unpaved but graded park trails, otherwise paved (sometimes very bumpy) streets and sidewalks. I don't anticipate using the bike for heavy cargo, rough trails or long powered rides, but wouldn't mind working up to 30 mi/50 km trips with partial assists.

      The primary goal is a safe, stable ride that gets me to work reliably without leaving me too banged up.

      Requirements:

      1. Major assistance with steep hills. Though I've rebuilt decent endurance and muscle strength, I've got two artificial hips, and occasional inflammation in knees, ankles, and feet that makes powering up a long incline painful.

      2. Suspension fork and relatively upright riding position. Even with gel gloves, bumps and bangs through a rigid frame and forward leaning will wreck my wrists and hands quickly.

      3. Step-through frame. Thanks to hip replacements, my balance and range of motion aren't all they could be.

      4. Local service availability. Fortunately, I'm in a town with great (if expensive) bike shops.

      Nice to have:

      1. 60 lbs. or less. I don't expect to wrestle the bike up/down stairs or into vehicles frequently. It's more a question of being able to propel it under my own power most of the time and carry it on a standard car rack. I've looked at e-trikes for stability, but they're too heavy and cumbersome.

      2. Hydraulic disc brakes, belt drive and sealed motor hub (expensive but cleaner for commuting and lower maintenance), torque sensor.

      3. Integrated lights.

      4. Fenders, chain guard, rear rack, kickstand, phone holder included or available at reasonable cost.

      5. Visual appeal - colors, not too obvious battery, etc.

      Overnight recharge is fine, the battery doesn't have to be removable.

      Possibilities so far:

      Priority Current (via Costco). review,
      review
      Con:

      • Rigid frame
      • Complaints about required pedalling and power distribution on hills

      Pro:

      • Meets most of the requirements
      • Model has been out for a few years with an established track record
      • Well-reviewed

      RadPower Radster Road Regular review, review
      Pro:

      • Checks all requirements
      • Safety emphasis

      Con:

      • Heavy (78 lbs.)

      Electric Bike Company Model E or R
      review, review
      Pro:

      • Extensive customization available

      Con:

      • Cruiser style less likely to be comfortable for long rides
      • Model R is 78 lbs.

      Ride1Up 700 Series ST review, review
      Pro:

      • Inexpensive
      • Meets most requirements

      Con:

      • Assembly difficulties reported, no local dealer

      Aventon Level.2 Step-through review, review

      This is still early research... but more questions:

      • What am I failing to consider?
      • What's an appropriate price point to look at for my requirements (keeping in mind that I'd be paying as much as $150/mo. for transit when not using the bike)?
      • Anyone else in a similar spot?

      Edit - updates on continuing research, for those interested in comfort bikes... So many manufacturers! It might be time to turn the optimizer brain off. Quite a few of the online-only vendors are just mixing and matching Chinese parts. Reports of terrible customer support and quality/safety issues are common.

      New candidates:

      Cannondale Adventure Neo 2 EQ Speed

      Reviews of this specific newer Class 3 model are scarce, but other Neo models get mostly rave reviews from older riders with various disabilities. As much as I've loved Cannondale bikes, there are some reported quality and design issues in comments that give me pause. The only reason I'd consider an e-bike in this price range is if it's a durable, realistic car replacement capable of safe use in very bad conditions.
      Pro:

      • Most of the important wishlist items covered
      • Top quality powertrain and gearing parts
      • Torque assist - comments say it's smooth and you never miss a manual throttle
      • Versatile for city and road
      • Locally available

      Con:

      • High price even with quality factored in
      • Chain guard not included, and it should be at this price
      • Comments mention battery is difficult to remove

      Envo seems like a reliable Canadian brand that's doing interesting things. There are U.S. distributors. Dollar purchasing power makes this a potentially excellent value choice.
      Envo Lynx 20" Only one professional review, but customers seem happy. I wasn't considering folding bikes originally, but this seems well-made, has English-language support, and has decent specs for the price and flexibility.

      Envo ST 50 - few if any comments available, but the stepover D50 model gets rave reviews. Meets all requirements, with excellent range for longer trips.

      Mokwheel Asphalt ST review, review, review
      Pro:

      • Meets wishlist with moderately priced accessory package
      • Adjustable stem angle
      • Excellent price for features
      • Extra safety lights

      Con:

      • DTC-only (US-based)
      • Lower-quality and range of gearing

      Tenways AGO T review, review
      Pro:

      • Meets wishlist
      • Premium components
      • No-brainer torque control and CVT
      • Stylish

      Con:

      • May be underpowered for steep hills
      • Class 2 limited (may be hackable)
      • DTC, based outside US

      Zen Photon Pro review
      Pro:

      • Wishlist mostly covered
      • Premium components
      • Powerful hill-climbing capability
      • Long range

      Con:

      • Price is over upper limit of budget
      • Relatively new to market
      • Users complain about weight

      Ride1Up Prodigy V2 LS CVT review, review, review, review non-CVT. This might be the pick - meets requirements and then some, good value for quality, relatively future-ready, adaptable for the conditions I'm likely to encounter, and comfortable. It doesn't hurt that it's $300 off right now.

      18 votes
    4. Fitness recommendations to gradually increase mobility while recovering from chronic illness

      So I've had hypothyroidism since at least 2020, maybe longer. I've been gaining weight and losing both mobility and stamina since then. It got to the point where I couldn't put on my shoes without...

      So I've had hypothyroidism since at least 2020, maybe longer. I've been gaining weight and losing both mobility and stamina since then. It got to the point where I couldn't put on my shoes without an extra-long shoe iron and would get too winded to continue after depressingly short walks.

      I was diagnosed earlier this year and put on levothyroxine, and I already feel a lot better. Managing that medication is obviously something to work with my doctor on, but I haven't gotten much advice on how to address getting my body back to where it was prior to the illness really getting into gear. I wasn't crazy active back then either, but it's like night and day to compare me now to me in 2019.

      I attempted to start some low-level at-home strength training and to start taking more regular walks back before I was diagnosed, but I struggled with even extremely mild beginner-level stuff absolutely wiping me out and my endurance never increasing. Now that I'm being treated, I suspect I will be able to build up strength/stamina/etc. more easily, but emotionally I'm still pretty vulnerable to feeling like exercise is something insurmountably difficult, which obviously makes it hard to start a more regular routine.

      Losing weight is something I should do, but it's not my #1 priority here -- I mostly want to improve my mobility and stamina so that I can increase my activity level at all without feeling like shit. Most beginner-level exercise recommendations, be they strength or cardio, start at a level that is above what I can currently physically accomplish. So any recommendations for ways to get started more gradually so that I can make some amount of this exercise part of my routine would be really appreciated.

      13 votes
    5. A new ACLU lawsuit alleges that Washington DC is discriminating against people with mental health disabilities by continuing to send armed officers to mental health calls

      https://theappeal.org/dc-police-mental-health-crisis-response-aclu-lawsuit/ The American Civil Liberties Union of Washington, D.C., filed a lawsuit in federal court Thursday alleging that the...

      https://theappeal.org/dc-police-mental-health-crisis-response-aclu-lawsuit/

      The American Civil Liberties Union of Washington, D.C., filed a lawsuit in federal court Thursday alleging that the district’s practice of sending police officers—instead of mental health specialists—to mental health emergencies violates the Americans with Disabilities Act.

      “Someone who calls 911 for a physical health emergency gets trained medical providers who can treat and stabilize them,” said Susan Mizner, director of the ACLU’s Disability Rights Program, in a press release. “But someone who calls 911 for a mental health emergency gets a police officer with handcuffs and a gun.”

      According to the lawsuit, these differing responses constitute a breach of the Americans with Disabilities Act, which prohibits government entities from denying people with disabilities equal access to government services and programs. The ACLU is suing on behalf of Bread for the City, a local nonprofit that provides healthcare and social services to lower-income and unhoused communities.

      31 votes
    6. What are some very easy to make meal kits/prepared food that are accessible?

      As mentioned before my partner is a new paraplegic. He was a chef before becoming disabled a decade ago and the primary cook at home until the more recent injury. He's struggling to make sure he...

      As mentioned before my partner is a new paraplegic. He was a chef before becoming disabled a decade ago and the primary cook at home until the more recent injury. He's struggling to make sure he eats in part because making a baloney sandwich is currently an ordeal. We expect that to get easier as he gets OT and more used to being in a chair, but I'm wanting to start with prepared meals and work up to easy meal kits that help him get back into cooking. Difficulty level is things that taste good and have a variety of foods, as well as, for the future, kits that require less manual dexterity.
      Recipes also welcome as well as any must have kitchen items. We have an air fryer, microwave, electric kettle and toaster he can use easily. Oven and stove that are a bit more tricky right now.

      ETA: in the United States and with a large variety of grocery stores around me.

      26 votes
    7. Other caregivers, how do you cope?

      Hey all, my partner is newly paraplegic post spine surgery and while he's been disabled through our ten years together this is new. He's using a power wheelchair and has to transfer by Hoyer lift....

      Hey all, my partner is newly paraplegic post spine surgery and while he's been disabled through our ten years together this is new. He's using a power wheelchair and has to transfer by Hoyer lift. And in the six days since he was discharged from the rehab (PT and OT) hospital he's been to the ER twice. We have home health set up. But all of a sudden my life is a lot more... Stressful is understating it. He's going through his own emotional journey and getting support so I was hoping to find some connections, suggestions and the like here.

      Right now I'm feeling a ton of pressure not to let any of the various balls I'm juggling drop. Something that feels unsustainable, particularly with my ADHD. I feel like I'm only getting this far due to stress compensating for my lack of medication (it's packed from our recent move, I'll find it or get a new script I just haven't yet). My partner's in a rush to get a wheelchair van and I don't know if we're making a good purchase and it feels like everything has to be handled right now but also for the rest of our lives.

      Are there devices that are must haves? Things I need to know about wheelchair vans? Empathy from fellow caretakers?

      17 votes