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41 votes
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I don't feel like a cancer patient
Last year (June 2022) I was diagnosed with colorectal cancer. I had surgery (which left me with a permanent stoma) and I had a bit of adjuvant chemo to kill off any remaining cells. I've been...
Last year (June 2022) I was diagnosed with colorectal cancer. I had surgery (which left me with a permanent stoma) and I had a bit of adjuvant chemo to kill off any remaining cells. I've been discharged from oncology, and I've started my 5 year surveillance. Staging is complicated but my I was pT3pN2bM0 (tumour was stage three, I had lots of lymph node involvement, but no metastasis).
Alongside that I've had problems with gall stones, starting in April 2022, and ending this year when my gall bladder was removed.
When I tell people about the cancer they pull on their serious face and say things like "oh no how awful hope you're okay glad to see you're doing so well now it's good news that you're in remission", and when I tell them about the gall bladder they're kind of baffled and not at all concerned.
But here's the thing: cancer was not such a big deal. I do have a permanent stoma, but for some reason my brain has disconnected that from being a cancer thing. I had a relatively gentle chemo regimen (short, and it was CAPOX which is less rough than other meds) -- don't get me wrong, chemo SUCKED, and left me with neuropathy in my feet, but I got through it. When I compare that to repeated[1] hospitalisation for cholangitis (a gall stone stuck in a bile duct causes bile to back up and that causes pretty severe problems), well, those repeated hospitalisations were a much bigger deal for me.
English NHS hospitals tend to have dorm wards. In the ward I was on there were 6 beds to a bay, and 5 bays to the ward, and then a further 6 or 7 single occupancy rooms. Some of the bays were smaller, and had 4 beds. Once the hospital was very full, so I spent a night in a bed (proper bed, not a trolley) but in the ward corridor. I spent over 60 days in hospital for the gall bladder stuff, and just 7 as an inpatient for the cancer. (And Sartre was right, hell is other people ).
There are lots of health forums online and I always feel deeply uncomfortable in the cancer forums. I feel okay in the ostomy forums[2], but I don't use them because they're all a bit odd.
I dunno what the point of this post is. Maybe it's "sometimes cancer is treatable and the person isn't particularly bothered by it", or maybe "people with cancer want support, but sometimes that support won't have anything to do with cancer".
[1] When a stone gets stuck they need to do some emergency work to stabilise you and remove the stone. And if you keep getting stones stuck they want to remove your gall bladder. There's some discussion about when to take the gall bladder out. Hypothetical Bob has a stone stuck - you stabilise him, so do you take the gall bladder out then (when he's still recovering) and then monitor him for a few days and discharge him home to fully recover? Or do you stabilise him, then discharge him home to recover, and call him back for planned surgery to remove the gall bladder? Evidence is inconclusive about which is best, so there's a bit of a lottery depending where you are in England. My local hospital took the later approach. The problem was that i) I had cancer, ii) My gall bladder was very active in kicking stones out and iii) we had several Covid pandemic waves causing huge disruption. These meant that by the time I had recovered enough to have the surgery, and they had a space on their surgical list for me, my gall bladder had kicked out another stone and that reset the whole thing again. They gave up this year and took my gallbladder out.
[2] Online health forums can have this really weird dynamic. English speaking forums are usually dominated by Americans, and Americans fall into 2 groups: 1) People with bad or no insurance and 2) People with good insurance. When someone says "I'm having this problem" the replies from the first group will all be along the lines of "go the the vet and buy this fish medicine" and the second group will be "here's a huge list of tests and products to use".
EDIT: I forgot to mention, I am in England, and so I am very fortunate because all treatment is free and a cancer diagnosis opens up quite a lot of support.
37 votes -
Greece gripped by wildfires, national park threatened along with people and towns
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Chuuk Lagoon's skull problem
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British cooks try Filipino food and cooking methods
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‘Rebel canning’ is having a moment, whether or not it should
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14 votes -
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Icelandic musician Daði Freyr performs some of his favourite songs from home
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The world’s last internet cafes
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OR3O - Clover (2021) (and a little ramble about grief)
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Here's the plan - a video to the audience from LTT
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Fortnightly Programming Q&A Thread
General Programming Q&A thread! Ask any questions about programming, answer the questions of other users, or post suggestions for future threads. Don't forget to format your code using the triple...
General Programming Q&A thread! Ask any questions about programming, answer the questions of other users, or post suggestions for future threads.
Don't forget to format your code using the triple backticks or tildes:
Here is my schema: ```sql CREATE TABLE article_to_warehouse ( article_id INTEGER , warehouse_id INTEGER ) ; ``` How do I add a `UNIQUE` constraint?2 votes -
Japanese performer Namani "Seven Seas" Nagura is now the most decorated air guitar player at the Air Guitar World Championships in Finland
9 votes -
What programming/technical projects have you been working on?
This is a recurring post to discuss programming or other technical projects that we've been working on. Tell us about one of your recent projects, either at work or personal projects. What's...
This is a recurring post to discuss programming or other technical projects that we've been working on. Tell us about one of your recent projects, either at work or personal projects. What's interesting about it? Are you having trouble with anything?
20 votes -
Sparrow Solitaire for Playdate
16 votes -
What does any of this have to do with physics?
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7 votes -
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Wegovy may be valuable new option for heart failure patients
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54 votes -
Bomb Rush Cyberfunk release topic
Developer: Team Reptile (Megabyte Punch, Lethal League, Lethal League Blaze) Platforms: Steam, GOG, Nintendo Switch (August 18) PlayStation 5, Xbox Series X, Xbox One (September 1) Trailers:...
Developer:
- Team Reptile (Megabyte Punch, Lethal League, Lethal League Blaze)
Platforms:
- Steam, GOG, Nintendo Switch (August 18)
- PlayStation 5, Xbox Series X, Xbox One (September 1)
Trailers:
Reviews:
Description:
Team Reptile brings you Bomb Rush Cyberfunk, a future world from the mind of Dion Koster where self-styled graffiti crews equipped with personal boostpacks are battling each other for control of the streets. Start your own cypher and dance, paint graffiti, collect beats, combo your tricks and face off with the cops to stake your claim to the sprawling metropolis of New Amsterdam.
(What the official description won’t say is that this game is an unofficial love letter to Jet Set Radio on the Dreamcast and Jet Set Radio Future on the Xbox. Hideki Naganuma even contributed new songs to the soundtrack.)
33 votes -
Python in Excel: Combining the power of Python and the flexibility of Excel
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16 votes -
Mexican politician introduces bill to criminalize ecocide - only a few countries have such laws but more are considering it
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Huawei accused of building secret microchip factories to beat US sanctions
19 votes -
Israeli cops accused of beating Palestinian detainee, branding him with Star of David
45 votes -
XRISM will be launching Sunday, Aug 27 at 8:26pm, EDT (Aug 28, 0:26:22 UTC)
6 votes -
Cruise autonomous car reportedly swerves in backhoe's way, is busted in San Francisco intersection
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Supermarket in Finland is welcoming canine customers with specially-adapted carts which allow dog owners to bring their pooches grocery shopping
16 votes -
Weekly thread for casual chat and photos of pets
This is the place for casual discussion about our pets. Photos are welcome, show us your pet(s) and tell us about them!
9 votes -
What's the funniest story you know?
Let's bring some gut-busting tales out for others to enjoy.
35 votes -
Any other Yellowjackets fans here?
I just finished season 2, and I’m itching to discuss - but no one else in my world is into it! I’m not quite at theory stage, but I have so many questions I want to bandy about. Anyone here ready...
I just finished season 2, and I’m itching to discuss - but no one else in my world is into it! I’m not quite at theory stage, but I have so many questions I want to bandy about. Anyone here ready to start a spoiler-heavy thread?
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How a Harvard professor became the world’s leading alien hunter
12 votes -
A microcomputer-like prompt on any device
7 votes