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  • Showing only topics with the tag "adhd". Back to normal view
    1. At the end of our ropes

      I’m here to ask the community for help. I know we’re a neurodiverse bunch, so I’ve got good hopes somebody can relate to this. My son is currently 16 and has always struggled with basic tasks....

      I’m here to ask the community for help. I know we’re a neurodiverse bunch, so I’ve got good hopes somebody can relate to this.

      My son is currently 16 and has always struggled with basic tasks. He’s gone through many tests and trainings when he was elementary school, but executive functions remain a challenge. From previous tests, we know he has an IQ of over 145. Back when he was tested, the psychologist advised to change his school curriculum to get him more engaged. This has partially worked: he’s been having more fun at school and has had some really cool academical achievements. But his struggle with basic day to day tasks and school work remains the same, and keeping focus is by far the most problematic part of it.

      With going to middle school came owning a phone and iPad. From day one, these do get his full attention. Me and my son are much alike when it comes to obsessive behavior, so I sometimes feel like I’m looking in the mirror when I see him with his phone. I too can lose myself in a game and binge it in a weekend. But for me, it isn’t 24/7. I can turn it off when it needs to be off. So I’ve always been strict with rules about screen time for him, but these rules have gone out the window in the last 2 years. There has been lying, sneaking and hiding to increase screen time. It has had a negative effect on our family and it’s draining to have to deal with this daily. I think that’s why we’ve somewhat given up on it, it was impossible to keep in check.

      In the past 3 years, he has started to really experience the negative impact of his challenges. We’ve attempted to help him plan his days, to plan his school work, to do chores in the house. But nothing seems to stick and he gets frustrated with himself and it is affecting his mood. In an attempt to find out more about what is causing his difficulties with basic tasks, we’ve asked a psychologist to look into AD(H)D. After an assessment, they’ve now come back with their findings. According to them, it cannot be AD(H)D because he can focus on things he likes (a board game was their example). Their rationale is that people with ADHD cannot focus on any task, even if they like them. They are saying it is his IQ, that he’s too bored to focus on basic tasks. According to them, he should force himself to do menial tasks and that we should be there to enforce this with rules and praise. Like we haven’t tried this already without any results. To say that I’m disappointed and furious about this outcome, is an understatement. It leaves us dead in the water and this makes me feel hopeless.

      I’m hoping to gain some insights by reading your comments. This attempt might point us in a new direction, because I’m fine if it is something entirely different than ADHD. I just really want him to feel better.

      42 votes
    2. Victories and challenges: An A[u]DHD community and support fortnightly thread #6

      I'm attempting to be more active on Tildes (after my last attempt), and I noticed that there hadn't been a new fortnightly thread, so here's my contribution!...

      I'm attempting to be more active on Tildes (after my last attempt), and I noticed that there hadn't been a new fortnightly thread, so here's my contribution!

      https://tildes.net/~health.mental/1oax/victories_and_challenges_an_a_u_dhd_community_and_support_fortnightly_thread

      24 votes
    3. DnD 5e approach to describing executive function

      I was recently thinking of a new way to describe to my spouse (and to myself) how my mind works when it comes to performing tasks. This is a regularly occuring conversation, as her needs and mine...

      I was recently thinking of a new way to describe to my spouse (and to myself) how my mind works when it comes to performing tasks. This is a regularly occuring conversation, as her needs and mine often run counter to each other and leave us both frustrated. I have trouble understanding even my own reactions to things, let alone hers, so I try to explain them in new terms occasionally to see if it makes things click.

      Anyway, I came up with one that I found apt and kinda fun, if maybe a bit sad in places: a DnD 5e character sheet. For the purposes of this exercise, the sheet is for a sorcerer, not a wizard (learning new tasks happens slowly, almost at random) and the Frustration mechanic is effectively identical to Exhaustion in the PHB.

      Here it is. I'm curious if any of you have thoughts on this or find it feeling familiar.

      Spell list:

      Cantrips:

      Relax
      Read
      Eat
      Get ready for bed ¹

      1st level:

      Choose to go to bed ²
      Get ready to leave
      Choose a meal
      Prepare a meal
      Work on dishes
      Take out trash
      Do laundry
      Other chores
      Do a favor (unasked)*

      2nd level:

      Do a favor (asked)*
      Stifle frustration ³

      3rd level:

      Do a big favor (asked)*
      Dismiss frustration ⁴

      Feat - People Pleaser: When casting "Do a favor (unasked)", roll a d20. On a 15 or higher, cast as a cantrip instead. When casting "Do a favor (asked)", roll a d20. On a 5 or lower, add 1 level of frustration. When casting "Do a big favor (asked)", roll a d20. On a 10 or lower, add 1 level of frustration.

      Feat - Desperate Times Call for Desperate Measures: Regenerate 1 spell slot of any level. Add 1 level of frustration.

      Feat - Self Soothe: whenever casting a cantrip, roll a d20. On a 19 or 20, remove 1 level of frustration.

      Curse - Temper: whenever casting a spell of 1st level or higher, roll a d20 with advantage. On a 2 or lower, add a level of frustration.

      Curse - Social Anxiety: when interacting with another character, roll a d20. On a 5 or lower, burn 1 spell slot or add 1 level of frustration.

      ¹ Must be cast on the turn following casting "Choose to go to bed." Otherwise, this becomes a 1st level spell.

      ² After casting this spell, any spell other than a cantrip must be cast one level higher than usual (e.g., 1st level spells can only be cast using 2nd level spell slots).

      ³ Temporarily remove 1 level of frustration. It returns after d20X10 minutes.

      ⁴ Permanently remove 1 level of frustration.

      23 votes
    4. Victories and challenges: An A[u]DHD community and support fortnightly thread #1

      Welcome to the inaugural thread! It is important to me that this is an inclusive space; and it should evolve to serve the needs of the community. What is this space? It is intended as a community...

      Welcome to the inaugural thread! It is important to me that this is an inclusive space; and it should evolve to serve the needs of the community.

      What is this space?

      It is intended as a community space, primarily for those of us with ADHD and/or autism; but it should be open to evolution on what is explicitely encouraged (because all are welcome). It intended as a space to vent about your struggles and challenges in a space where there is implicit understanding of the issues we face with these diagnoses. It is intended as a space to celebrate your achievements and victories with those who understand why those are as meaningful as they are, even the little ones. It is intended as a space to seek support with related issues — like requesting accountability partnering, chunking, rubber-ducking, et cetera. It is a place to post news and articles about ADHD and autism that are of interest to the community. A place for discussion. And a place to be serious and silly together with folks who understand.

      All are welcome to participate here. While generally on Tildes I would expect most participants to accept that ADHD and autism and the like are real diagnoses, I would expect those participating here to either have those diagnoses, understand those diagnoses, or if someone wants to learn more, to ask questions here with an open mind — i.e. this is a positive and supportive space.

      All are welcome to participate here. Not just those with these diagnoses. The self-diagnosed are welcome. Support is welcome to be sought by those with ADHD-adjacent issues: for example, depression can cause executive function issues such that accountability partnering could be helpful. Feel free to seek such help here.

      Your feedback is requested and valued. This community will evolve to fit the needs of those who participate here. What works will be retained; what doesn't work will be dropped. I am your facilitator, not dictator; and while for this first thread I am speaking with my voice, as we evolve things and figure out what works, I will rephrase whatever text that gets posted each time into a passive voice. I just want to reassure you that while I'm taking a leadship position to get the ball rolling here, I will be removing myself from this so it truly is a community space for us all. But to start, you gotta have someone doing the thing. :)

      For now, I'll create one top-level reply that requests for support should be posted under. The idea is that it makes it easier for those wishing to volunteer to help can find the requests more easily. We'll see if that works or not.

      It is my humble opinion that one should be encourged to post as you wish. If you want to post multiple things in a top level reply that are going on, great. If you want to make two little top level replies about different topics, even on the same day? I think that's also fine. Don't be shy about posting.

      I think a fortnightly thread feels about right to start. Too frequent and things can get lost. Too infrequent and the thread might die out before we get a new one. But as with everything else, feedback is desired. By coincidence of when the idea was had, I'm posting this one on a Friday. If you'd prefer a different day, that's feedback that is welcome.

      Welcome to your space! Help make this space be what you want it to be. <3

      edit: Forgot to post where this came from:

      Most recently: https://tildes.net/~health.mental/1oac/proposal_adhd_support_thread_reoccurring

      Less recently: https://tildes.net/~life/1o92/how_my_life_changed_with_adhd_medication#comments

      That first thread had such a sense of community that I want that to keep going, basically. :)

      55 votes
    5. Proposal: ADHD support thread (reoccurring)

      Top eidt: Thread is four hours old and already seems to have support. I'll create the first actual thread tomorrow. So please, your feedback is desired on anything you'd lke to see in the initial...

      Top eidt: Thread is four hours old and already seems to have support. I'll create the first actual thread tomorrow. So please, your feedback is desired on anything you'd lke to see in the initial topic text. Also, I'm thinking fortnightly (every two weeks) might be good to start, but feedback will always be desired. Original thread follows:

      https://tildes.net/~life/1o92/how_my_life_changed_with_adhd_medication#comments

      That thread brought so many with ADHD out of the woodwork.

      I wonder if there might be a use for a recurring (weekly? monthly?) thread for ADHD support?

      I'd envision it for:

      1. Venting
      2. Mutual support, i.e. responsibility coaching, i.e. post what you're trying to work on so the rest of us can gently pester (check up on you) to try and help make sure You Did The Thing
      3. General discussion as a hub for interesting ADHD-related articles/info/etc

      Sort of like an ADHD club on Tildes that might help us all.

      I know I am in love with the thread I linked just having so many of us there talking about this stuff. Reading others struggle with the same things I struggle with is comforting; reading others talking about conquering problems is lovely. And I know my "walking thread" is related to this idea - I started it to try and get folks from the community help keep me on track, so maybe that sort of thing would help others, too. (At least for some of us who aren't medicated! But even for medicated folks who could use that support)

      So this is intended as a meta thread on the topic to see if the idea might have merit.

      I think recurring threads are made manually, so I do volunteer to do that; but if the idea is a go and someone else would prefer to do it, I will certainly bow to that :)

      (Also, it's my humble opinion that any autistic-related subjects would be quite welcome - I feel ADHD and autism are sibling diagnoses, even when they don't both apply to one person. Adn for that matter, anyone dealign with ADHD-adjacent issues - like how anxiety can sometimes present with ADHD-like symptoms - the venting and help-with-accomplishing-things should not be limited to JUST adhd folks, but I envision this as primarily and ADHD space that welcomes all. But my vision is up for discussion, IF the idea even has merit)

      37 votes
    6. How my life changed with ADHD medication

      I recall this thread https://tildes.net/~health.mental/1l62/adhd_diagnoses_are_surging_among_older_americans that I responded to in January, 2 months after my diagnosis, but about 3 weeks before I...

      I recall this thread https://tildes.net/~health.mental/1l62/adhd_diagnoses_are_surging_among_older_americans that I responded to in January, 2 months after my diagnosis, but about 3 weeks before I started medication. At the time, I was "self-medicating" with cannabis every weekend and I did implement positive changes, but I knew I needed something for the week and I knew I didn't want to smoke every day or take cannabis every day.

      The medications

      I started using Vyvanse in late January, after my diagnosis was confirmed in October, but my doctor wanted to wait for my heart results because I had consulted about my heart many many years before and it was the only thing I could answer to her when she asked me: "any past problems about your body?". In retrospect, she did well, because I now realize that most ADHD drugs are stimulants.

      Anyways. My first day on Vyvanse was absolutely I N S A N E. I felt like I was the guy from Limitless taking NZT for the first time. It was like all my mind clutter got removed at once. Normally, I felt like I was losing frames every second, but with Vyvanse, I felt focused, every discussion I had that day, I was fully focused. Everything I had to do that day, or wanted to do, I did. I'm a teacher and there are TONS of stuff we need to do that is not really talked about, stuff like printing papers, organising papers for my groups (I'm in high school), reorganising my desks because someone messed with them, and so much little planning for different projects, future exams, future classes. Most of those things include some sort of planning with others, which can lead to a long list of things to do that just never ends. Well, that day, I did everything I needed to do and I felt like I wasted zero time with everything. I was efficient, quick, did all my tasks and more. I was used to doing thing fast, but I was maybe ~80-85% efficient most of the time. Well, with Vyvanse, I was at 120%. That lasted for a couple of days... and then the side effects started to really pile up.

      I have insomnia, trouble staying asleep, I always wake up during the night and was also diagnosed with sleep apnea last year. So, insomnia coupled with stimulants was just not a good combo. I was not sleeping at all, probably getting 1-3 hours of sleep for multiple days in a row. My heart was often racing very much, often times at non-usual hours, such as at like 3 am...

      I was super happy with the positive effects, it was exactly what I needed. I was able to start routines I had wanted to start for years, such as cooking, cleaning, planning, exercising, etc. I was able to do all that, but my heart racing and my lack of sleep really took a toll on me.

      So I went to see my doctor, we tried Concerta for about a month and a half, but it did just nothing. It was maybe 15-20% of what Vyvanse was AND it still affected my heart, while not helping my insomnia. So I went back to my doctor.

      We then tried Strattera. Oh boy, did Strattera work. I started it around early April and it's exactly what I needed. It's about 85-90% of the positive effects that Vyvanse had, while having close to zero side effects. I'm prepared to be on Strattera for the rest of my life. I'm on 40mg now and I don't need to up the dose, but through the years, I could go as high as 120mg, so there is room to keep the same effects for many many years.

      How it changed my life

      I must state that I'm in my early 30's. I've been living alone all my adult life. I had wanted to make positive changes in my life for years. I wanted to cook more, I wanted to exercise more, to organize my life, to decorate my apartment, to improve everything about my life. I had the willpower, my body just didn't follow. So, in that sense, the medication was just the final push before implementing everything in my life.

      I had already started to make positive changes when I used cannabis during Fall 2024. Every weekend, I would write up a list, smoke a joint and go to work. I just wanted to be able to do that during my work week because, obviously, pot is not an ADHD drug and I couldn't be high all the time.

      I can confidently say that Strattera and the medications just completely changed my life. Yes, I implemented every "positive life changes" you can think of. My life is organized, I can keep agenda updated, I can easily plan needed appointments, I follow-up on people when I tell them too. Remember all the times you've told people "oh yeah, I'll do that later!" and didn't follow up? Well, now I do follow up every time. I have planned my whole summer (yeah, teacher vacation!) easily... the list just goes on.

      Being organized helped me in myriad of ways, in fact, it helped me use cannabis for (what I think is meant to be used) creativity. Now, I smoke a joint every Sunday, when all my chores are done, and I just think about creative projects I have always had and I work towards them, but it's mostly just thinking and writing some of it down. I made huge progress in a fantasy story I had in mind for years. I made huge progress in planning some class changes I wanted to implement next years; stuff like changing the desks configuration, offering benefits for work, changing the work style of my students, etc. And you know what? I'm thrilled to work towards that. I have some camping planned this summer where I plan to go alone and just think about that stuff in nature.

      Anyways.

      The biggest change is honestly just being able to switch from a short-term, adrenalin-energy-based life, to a long term life. I'm hopeful towards the future, because I know I'll be able to see my projects come to fruition. Even if it takes 10 years, I know I can do the work. I understood that, ultimately, life is work. There is stuff you just need to do. I cannot just not do the dishes, I cannot just not pick up after myself. I cannot just not take out the trash. But now, my brain is not tuned around maximizing short-term dopamine, my brain is now tuned around maximizing overall happiness, so I can do that "needed" stuff, while doing everything else while not being more tired than I was before.

      I can just be the man I have always wanted to be. I always wanted to help people, to love people. Every other weekend, I go see my sister and help her with her house. Sometimes, I work like 7-8 hours a day, and I'm happy to do it.

      Don't get me wrong, I still have time in my week where I have leisure time: I game about 10-14 hours every weekend, I surf reddit and youtube ~2-3 hours every day, but I just plan those moments better and end up enjoying them more, honestly. Every time I meet up with my friends, I fully enjoy it. It's not like I'm "no, sorry, gaming is not productive, so I won't do it." It's more like "yes, I can game freely now!".

      Anyways, thank you for reading me, I just wanted to share my experience and I hope you'll free yourself from the judgement/negativity around being diagnosed/medicated with ADHD. If you think you might have ADHD, go to a doctor. Once I reached for help and got my diagnosis, it absolutely completely changed my life for the better. My only regret is not going to the doctor earlier, but I didn't, because "everyone has ADHD", yeah.

      74 votes
    7. Looking for guidance: Cost of ADHD medication

      Hi All, I've just been prescribed the generic version of Vyvanse and had a bit of sticker shock when I was rung up at my local pharmacy. Even with insurance it was nearly $300 for a months worth...

      Hi All, I've just been prescribed the generic version of Vyvanse and had a bit of sticker shock when I was rung up at my local pharmacy. Even with insurance it was nearly $300 for a months worth pills. I realize this is a problem likely unique to the United States, but I'm wondering how other folks are navigating the costs. While I can afford the medication, the idea of taking on a car sized monthly payment for the pills is really unpalatable. Do folks have any tricks or tips for getting the medication at a lower rate, switching to different medications (i.e. adderall or ritalin), or finding a secondary to cover prescriptions? I've read about Goodrx or SingleCare may be more affordable. Does anyone have experience with those providers?

      As a side note, I oversee selection of our company health plan/insurance. While I'd rather not change for the sake of co-workers who have established their primary care physicians with our current offering, I have the ability to change it for 2026. If there folks have providers who cover more of the costs I'm open to hearing it.

      Beyond the costs, does anyone have any advice or guidance for things to watch out for as I start taking the medication? Tomorrow is my first day and I'm a combination of excited and anxious.

      Thanks!

      16 votes
    8. ADHD representation in media

      Ever since my diagnosis two years ago, I have had this as an ongoing conversation with my family. I always felt like there was very little accurate representation of ADHD in media. The few...

      Ever since my diagnosis two years ago, I have had this as an ongoing conversation with my family. I always felt like there was very little accurate representation of ADHD in media. The few examples I could always think of were either very loosely coded as ADHD, or extreme stereotypes. I want to crowdsource some examples of ADHD representation in media, both good and bad.

      Doug from Up: This is a common one that comes up a lot. I think it’s a really poor example. The only ADHD symptom is the squirrel joke they use a handful of times. It’s also (for my presentation at least) extremely inaccurate. Random things I see will indeed distract me, but Doug can come back from the conversation without a missed step. I think this one is extra harmful because it gives a false sense of how the ADHD brain works.

      Dory from Finding Nemo: This is another common one people bring up. Dory’s intrusive and impulsive thoughts are much more accurate to my presentation, so it’s an improvement from Doug. I don’t like that she is often portrayed as stupid or careless. I’m not against a character with those traits, but with so few examples of ADHD in media, I think people may think it comes from the ADHD.

      Evelyn Wang from Everything Everywhere All At Once: This example showed up recently on my Internet searches. I want to rewatch it again with the context of ADHD. I feel like it is probably a decent representation, but I can’t say for sure without a rewatch.

      Percy Jackson: This is the only one on my list that is explicitly diagnosed with ADHD (and dyslexia and other issues). I will give them kudos for the explicit diagnosis, but I don’t think it’s a good representation. ADHD seems to just mean that he is bad at school. It seems that it has no impact on Percy outside of that. For my particular case, I was quite good in school, so it is inaccurate for me. I would be interested to hear if other people resonate more with it. Dyslexia seems to come up more in the books, so it may be a better representation for that.

      Todd from Bojack Horsemen: I saved my personal favorite for last. I first watched Bojack Horsemen before my diagnosis, and ADHD wasn’t really on my mind. After my diagnosis, I realized how good of a portrayal Todd is. As a bonus, it is the only portrayal I have heard of that includes hyper focus (When Todd hyper focuses on writing the rock opera, and then the hyper focus switches to a video game). With the exception of the rock opera, I think I have had the same exact scenario play out in my own life. I had something I wanted to do, was able to focus on it, but was stolen away into a video game hyper focus.

      Are there any other examples you have found?

      30 votes
    9. ADHDers, how do you speed-up, bypass, or otherwise eliminate the "ramp-up" period required for big tasks?

      I was diagnosed as an adult about 5 years ago. I'll spare my life story, but I've spent those five years doing everything I can to give myself an environment where I can achieve my goals, and I...

      I was diagnosed as an adult about 5 years ago. I'll spare my life story, but I've spent those five years doing everything I can to give myself an environment where I can achieve my goals, and I have done a great job with that.

      Apart from getting meds, I've built a strong task management/journaling system, I've built mental habits that help me overcome anxiety spirals, I've forgiven my ADHD for existing, and I have healthier sleep/diet habits to keep my baseline up.

      Lately, though, some new obstacles have come up with the birth of my son (now almost 4mo old). Tbf, I've been aware of these things before, but my son has definitely exacerbated them.

      With the attention and care a child requires, my windows to do things are a lot smaller. Sometimes only 20 minutes. This has made things more difficult in a few different ways:

      1. For me to start doing a lot of things, even things I am excited to do, I have a "ramp-up" period before I can really dig into it. I think this is basically the time I need to plan, prioritize, and/or remember where I left off before I actually execute.

      2. When I know something will inevitably interrupt me, I avoid starting anything because interruptions like, super-duper piss me off. And I don't want to be pissed off.

      3. Not really related, but somewhat. In general, I would like to be able to do more in a day. I'd say my peak operating time is 9am-3pm, give or take. Outside these hours, it's a lot harder for me to do anything outside of "shut my brain off" tasks like house chores.

      As many with ADHD know, an understimulated brain is unpleasant. And how shitty is it that ADHD also makes it difficult to do the things you find intellectually stimulating?

      I hope all this makes sense. I've already accepted that this is my life now, and I'm okay with it. Even still, I would love some practical, actionable advice to help me make the most with what I have. Double points if it doesn't involved upping my Adderall dosage or self-medicating with caffeine. Thanks everyone!

      53 votes
    10. What is the process for adult ADHD diagnosis?

      Every time I find myself in an ADHD related thread on the internets, I feel like I'm seeing my personal struggles being described by others (Anxiety, Depression, executive function issues... the...

      Every time I find myself in an ADHD related thread on the internets, I feel like I'm seeing my personal struggles being described by others (Anxiety, Depression, executive function issues... the list goes on).

      My intermittent attempts to seek out a diagnosis (or rule it out) end quickly with all the utter shite noise in the search results (literally everyone is selling something).

      I'm hoping some of you who've been down this road can shed some light. Should I just schedule and appointment with my GP and start a conversation or???

      Thanks (hope I got this in the right sub-tilde)

      UPDATE: Thank you all so much! I ended up setting an appointment with a nearby adhd clinic that does 2 brain scans, a bunch of bloodwork, several questionnaires, and a couple meetings with a psychiatrist/psychologist (can never remember which is which). 1st scan is on Monday morning, 1st meeting with psych* is in early December. Feeling optimistic.

      Reading through all your comments, I feel connected and optimistic in a way I've never felt before when pondering what I can see to be atypical behavior/emotions/response to stimuli but felt powerless to address.

      Thanks so much for helping a stranger on the internet, hoping to pay it forward someday.

      33 votes
    11. Is empathizing by sharing experience not normal?

      So I've watched this If Neurodivergents Conducted Job Interviews Like Neurotypicals and one thing struck me as odd. Is it not like normal when somebody tells you they've been sick recently for you...

      So I've watched this If Neurodivergents Conducted Job Interviews Like Neurotypicals and one thing struck me as odd. Is it not like normal when somebody tells you they've been sick recently for you to share your own experience with similar condition?

      I do have ADHD and automatically share when this exact situation comes up, but is this like a no-no among neurotypical folks?

      30 votes
    12. ADHD and TODO lists

      I hate TODO lists. Even when they're for a single day. I inevitably put more in my TODO list than I can accomplish in a day. When the new day begins, and I see the tasks I did not accomplish...

      I hate TODO lists. Even when they're for a single day.

      I inevitably put more in my TODO list than I can accomplish in a day. When the new day begins, and I see the tasks I did not accomplish before, I feel anxious, sad, and even ashamed. Then I find some of that anxiety is for how my partner will judge me for the unfinished tasks on my list that she tells herself she expected me to accomplish.

      While I have worked on self-compassion for years, occasionally it is not there. I have worked on having boundaries between my partner's own issues and my mental health.

      I wonder how others with ADHD, particular those with partners, cope.

      EDIT: I started using an allegedly ADHD-friendly planner yesterday. These feelings came pouring out of me this morning, hence the post. Yet I've had these similar difficulties for years.

      38 votes
    13. Is ADHD really that debilitating?

      On another platform a female journalist warned other women not to use menstrual tracking apps. I worked in a co-op during college that sold very nice paper journals for tracking menstrual cycles....

      On another platform a female journalist warned other women not to use menstrual tracking apps.

      I worked in a co-op during college that sold very nice paper journals for tracking menstrual cycles. I replied to that thread mentioning that very nice specialized paper journals still exist.

      Someone ( a man ) replied back to tell me that ADHD women have enough to deal with these days and proceeded to list all the ways something like that could fail.

      I suggested sending emails to one's self along the lines of "update your diary" which someone could then read at home and take care of things.

      Since I don't have ADHD my question is if people who do have ADHD really do find it to be that incapacitating?

      I know it is an Internet thing to keep replying without a reason, even if it is only out of momentum. I'm wondering if that was the deal in that thread.

      42 votes
    14. I made a Google Sheets to-do list that self sorts by priority. I hope it helps someone else as much as it's helped me.

      Hey friends, I struggled hard to find a simple to-do list that would work the way I needed it to. Even the paid options weren't quite helpful for me. Eventually I just gave up and made my own. I...

      Hey friends,

      I struggled hard to find a simple to-do list that would work the way I needed it to. Even the paid options weren't quite helpful for me. Eventually I just gave up and made my own.

      I use it at work and at home every single day. I also made a backup copy to handle an individual project I'm working on.

      Anyway, it's free. I just wanted to share it with you guys.

      Small side notes

      • To start using this, just copy it. It'll open in a read-only mode but you can quite easily pull it over to your own Google Drive.

      • I threw in a donation link on the Sheet. Delete it or ignore it. It's 100% optional and I figured I'd put it there in case this ended up becoming someone's daily driver and they want to say thanks.

      • You can somewhat easily make this sheet work with Google appsheet to use it on mobile as an app. That's what I do for mine so that I can use it on my phone and on desktop throughout the day. Just open appsheet from this sheet and start customizing your app. As long as you're using it for just yourself, you don't have to deploy it or anything. You just download the appsheet app on mobile and access it that way. You can even name it and choose a custom icon. The one caveat is that you'll have to create a time trigger in scripts to make it auto sort. If anyone is dying to do this, I'll post more specific details to help you through it.

      https://docs.google.com/spreadsheets/d/1sIp4uPq3xwgudNA9tIOGmNXzETtyG421WbmvJPWgbsI/edit?usp=drivesdk

      18 votes
    15. Easy access to stimulants aided scientific progress in the nineteenth and twentieth centuries

      https://mastodon.social/@tef/112763581163648202 https://en.wikipedia.org/wiki/Paul_Erd%C5%91s#Personality His colleague Alfréd Rényi said, "a mathematician is a machine for turning coffee into...

      https://mastodon.social/@tef/112763581163648202

      https://en.wikipedia.org/wiki/Paul_Erd%C5%91s#Personality

      His colleague Alfréd Rényi said, "a mathematician is a machine for turning coffee into theorems", and Erdős drank copious quantities

      After his mother's death in 1971 he started taking antidepressants and amphetamines, despite the concern of his friends, one of whom (Ron Graham) bet him $500 that he could not stop taking them for a month. Erdős won the bet, but complained that it impacted his performance: "You've showed me I'm not an addict. But I didn't get any work done. I'd get up in the morning and stare at a blank piece of paper. I'd have no ideas, just like an ordinary person. You've set mathematics back a month."

      https://kolektiva.social/@sidereal/112764385284252961

      They were called the "greatest generation" because they collectively had far easier access to stimulants than anyone before or since


      Random showerthought time:

      The war on drugs, medical skepticism, stigma, and other factors caused stimulants and medications, especially those useful for treating conditions such as ADHD, to become less accessible. This adversely affected the people who needed or would otherwise benefit from these stimulants and medications, and scientific progress and society more widely has suffered because of it.

      35 votes
    16. Routine and structure are very valuable to me for performing my best and achieving my goals. With my first kid on the way, any tips for getting back on track when days go "off script?"

      I was diagnosed with adult ADHD a few years ago. The first thing I focused on was structuring my schedule and environment to allow it to work to my advantage. This has helped immensely with...

      I was diagnosed with adult ADHD a few years ago. The first thing I focused on was structuring my schedule and environment to allow it to work to my advantage. This has helped immensely with improving myself and achieving my goals, I'd say even more so than medication has (then again, the meds helped me accomplish it in the first place).

      However, it doesn't take much to push me off balance. Any unexpected events (frankly, even expected ones) can derail everything, and very quickly I feel this urge to go back to bed and start it all over again tomorrow. I'd liken it to maintaining momentum. Even things like doctor's appointments or mini vacations with my wife have me returning back to my life suddenly with no idea of how to manage it.

      With my first kid on the way, I want to properly prepare myself. I've come to terms with the amount of focus and attention I'll have to give to him. In fact, it kind of sounds nice to recontextualize my life's purpose to just "keep this thing alive." However, I do have ambitions and lofty dreams that, if I'm being honest with myself, are THE reasons I get up in the morning.

      I have no doubt I'll be able to recalibrate to this new life I'm about to enter and develop a new way of living that works for me, but I am curious if anyone has some tips or bits of wisdom to help make the transition quicker, easier, and smoother. To get through my day, I need to slowly pick up a head of steam and barrel through my tasks. How can I maintain this strategy with the frequent interruptions that are inherent to parenthood?

      Thanks everyone. I'm very excited to have a mini-me.

      23 votes
    17. How to find purpose in life?

      I often think about the purpose and/or meaning of life and I've been struggling to work through these thoughts lately. As I teen I've had these thoughts often, but after experiencing my first...

      I often think about the purpose and/or meaning of life and I've been struggling to work through these thoughts lately. As I teen I've had these thoughts often, but after experiencing my first manic episode (that led to psychosis) back in August 2022, the question of "What's the point?" pops into my head quite frequently.

      Alongside this I've been struggling to come to terms with my new diagnosis of 'Bipolar Type I with psychotic features' as I've already been diagnosed with ADHD back in 2017 and I realize that both of these are life-long diagnoses. I know I just have to learn how to live with them, but that's been a tough pill to swallow.

      I should mention that I'm not suicidal or anything, but rather I feel hollow and numb inside as I am very unfulfilled with life. Some days are okay and I'm still functioning and taking care of myself (so it's not like a full-blown depression), but as I mentioned before, I just don't see the point in all of this and don't find many things to be worthwhile or enjoyable anymore.

      Basically I feel like a shell of my former self after my episode and have found much difficulty in enjoying the things I liked before from hobbies, to music and even food (I was a highly food-driven person). It's definitely much better than it was immediately after my episode, but it's as though life has been sucked out of me and I'm just going through the motions of living because it's what I'm supposed to do. I know recovery takes time, but it's been nearly 2 years since my episode and I thought this feeling would go away by now...

      (I've also been seeing a counselor and OT and am doing things such as CBT and ACT which helped a bit, but not enough as I am here asking questions on an online forum seeking help).

      If you have any advice on how to work through this it would be appreciated.


      EDIT (12/6/24): I wanted to say thank you to all the responses and advice given. I may not have replied to everyone, but just know that I have been reading the comments and I do appreciate them :)

      47 votes
    18. What is it like to have both ADHD and autism?

      I've been doing a lot of work with my therapist and it has been suggested that I might have a mix of both Autism and ADHD. I have always related to Autism to a certain extent but I would never say...

      I've been doing a lot of work with my therapist and it has been suggested that I might have a mix of both Autism and ADHD.

      I have always related to Autism to a certain extent but I would never say it because I felt like I didn't really fit because some things I do don't make sense it that context. I was also obsessed with learning to be human since young and have a lot of systems to deal with it and apparently that means I've been masking for a very long time.

      But my therapist also brought up ADHD and that has explained a lot about some the things I'm still currently struggling with. But again, when I look it up, I don't feel like I fully fit. But also, I have developed a lot of systems over the years to deal with my issues and function like a normal human being. So a lot of the things I struggle with is hidden because I've "fixed" them.

      I'm still reluctant to say I have either of those two things because I feel like an imposter. So I've just settled on Neurodivergent and think that I can always learn the tools that help people with ADHD even if I don't have it. Because if the tools work for you, then why not?

      But my therapist has suggested getting diagnosed because it does change what kind of medication you might get. I'm currently on medication for anxiety and depression.

      So now I'm wondering how common it is to have a mix of both ADHD and Autism. For those who have both, what is it like for you? What is your daily life like? What are your struggles and how do you deal with them? When did you realise you might have a mix of both? How do you feel about yourself and your brain?

      I apologize if this isn't the right place to ask this. I don't post very often and am getting used to it.

      38 votes
    19. Feeling lost with mental health treatment

      At 22 years old, after months long assessments, I have been diagnosed with severe ADHD, depression and moderate anxiety. Here is a quick timeline of my experience: May - August : I started CBT...

      At 22 years old, after months long assessments, I have been diagnosed with severe ADHD, depression and moderate anxiety. Here is a quick timeline of my experience:

      • May - August :
        • I started CBT therapy and Sertraline 50mg
        • Gradually I was upped to the a dose of 75mg.
        • In this whole period I did not experience any improvements or side effects, except a loss of appetite in the first few days.
      • September:
        • I started taking Methylphenidate 18mg and went back to just 50mg of Sertraline.
        • From the first day I had felt a sentiment of calmness and control. But it slowly faded away and I still felt I could not concentrate on things or act productive.
        • I also stopped going to therapy as I saw that CBT was not effective for me.
      • October - November:
        • This was a completely different month. I wasn't fully in control of my attention span but it was much better than I've ever been. What was more shocking was how internally I felt at peace and something that I'd describe now as euphoric (as I assume this was just a side effect of the medication). U
        • Until mid november I was actually going around telling people I think I might not be depressed anymore, as I had felt for the first time in a way that I haven't felt since early childhood. I was able to accomplish incredible feats related to discipline and I saw my academic results improving greatly. Unfortunately this sentiment slowly faded away and I was back to my old self by the end of November.
      • December - Now I was upped to 36mg of Methylphenidate and I noticed a much better control of my attention but unfortunately I have not felt that feeling of relief again. And as it seems the effectiveness of the dose diminished from the first few days to now.
        Since December I've had numerous breakdowns, feeling completely exhausted and burnt out. I suffered from classic problems of procrastination starting to work on difficult projects only a couple of days before the deadline and it was all crashing down. I submitted multiple disgustingly low quality pieces of work because I just did not work in time enough but the few days I did work I did incredible amounts of effort and I do feel like the pills helped me stay focused. After this deadline period though I was just met with my normal depression symptoms where I had a long streak of days that I could not even get out of bed or brush my teeth.

      I don't know what more to do. I always knew I was broken and needed help. And for all my life I thought that seeing a psychiatrist is a last resort in case "I can't fix myself" on my own. Now it's been almost a whole year and I am in a critical time period where I need to excel and put in the work but I find myself succumbing to my symptoms while jumping up and down with the doses of some pills that barely seem to have an effect.

      I didn't have many people around me from the start, and many of them would not understand my condition at all (nobody from my family does). But now it seems that even the few that were empathetic I have unfortunately tired out. I've heard my fair share of bad remarks that have gradually demoralised me (ADHD is not real. I'm just lazy. I just like to complain. etc) and due to the fact that I also have codependency problems this has greatly hurt me and made me feel like I am completely alone and nobody cares for my troubles or has my wellbeing in their best interest. Right now I just wish I'd know what to do. I wish there was some clear step by step goal oriented way to "happiness" or at least normality. I don't even know what more to tell my psychiatrist other than how I don't feel well, which is what I've been telling him since the start.

      If you've been through a similar journey, I'd love to hear your experience and any advice you wish you had received earlier.

      33 votes
    20. ADHD friends, how do you organize your clothes?

      I'm failing. My usual tricks aren't working and I don't know what to do with my clothes anymore. One of my ADHD symptoms is that needs to see everything. My "pantry" is open shelves in my kitchen....

      I'm failing. My usual tricks aren't working and I don't know what to do with my clothes anymore.

      One of my ADHD symptoms is that needs to see everything. My "pantry" is open shelves in my kitchen. Everything in the fridge is up near the front of the shelves. I have a giant desk so I can spread out when I'm working. I need to see it all at all times.
      So the issue becomes, how do I do that with clothes. My alligator brain wants them all over the floor so I can see everything. That's not gonna work lol. I used to be good with a closet with no doors, but my new apartment isn't laid out in a way I can do that.

      Does anyone have any interesting clothes storage advice? The clutter is stressing me out, so I need to figure out whatever my new system is going to be.

      27 votes
    21. When did you learn you had ADHD?

      I saw a post on reddit about a guy asking about why his wife changes hobbies so much. He went on to detail her getting super fixated on a hobby, investing a lot of money and learning a lot, and...

      I saw a post on reddit about a guy asking about why his wife changes hobbies so much. He went on to detail her getting super fixated on a hobby, investing a lot of money and learning a lot, and then dropping it. A lot of people were mentioning possibly being adhd.

      I remember that being the first thing that clued me in as an adult who was not diagnosed until later in life.

      Anyone else care to share?

      39 votes
    22. Strategies to manage ADHD

      I figured I would help kick off this new subgroup by starting a discussion on how people with ADHD try to manage it. I had a late diagnosis a couple years ago as an adult, and I have been working...

      I figured I would help kick off this new subgroup by starting a discussion on how people with ADHD try to manage it.

      I had a late diagnosis a couple years ago as an adult, and I have been working with a counselor to develop some behavioral techniques (in addition to medication). Not all of them stick, which in my experiences is the primary challenge of this disorder, but I've had good results when I do use them.

      Primarily, I have a calendar where I put reminders and plan things out. If I have parts of a project I need to get done, I lay those out and assign them to certain days of the week. Working in academia, I live my life a semester at a time and this helps me reevaluate certain goals and it feels reasonable to me to plan out a few months at a time.

      One thing I struggle with when it comes to planning is coming up with accurate estimates of how much time it might take to spend something. This was always a big obstacle in my way when it came to planning things out before - I wanted to know the exact time on how long it took to do something so that my schedule would be perfect. My counselor suggested that I come up with an initial estimate of how long something should take based off my intuition, and then double it (e.g. if I think a task should take 30 minutes, plot it out for 60 minutes of my day). This has been great for me because usually it's a win-win. Often, my initial assessment is underestimating how long something takes, so by accounting for slippage in time I can better chunk out my day. On the other hand, if I do get it done sooner I can pat myself on the back and I now have extra time in the day to get other things done.

      I wanna find better ways of trying to stay on track with habits. I've tried some different apps and none are working too well. Recently I picked up Sunsama which has helped in terms of reviewing the day and looking at subtasks, but as I've gotten busy with experiments I've kind of lost track of that. What are some things that you do to accommodate the way your brains works?

      61 votes
    23. The most frustrating thing about ADHD for me is

      ...When I can't complete a task right now but instead have to wait for some reason. For example: When I have to complete a task list for school, and would love to just blitz through it all, but...

      ...When I can't complete a task right now but instead have to wait for some reason. For example:

      • When I have to complete a task list for school, and would love to just blitz through it all, but have to wait on someone else to fill out some form. Then I get it in an email a day or two later, but have already completely forgotten about the list and things I should do, because something else took over my mind. And I put it off because I have other things to do. Then the deadline comes and goes, and I'm sitting there thinking "Well shit, if I could have done it immediately then it would have been fine."

      • I ask my kids for things they want at the store. I know I need to add it to the grocery list app immediately or I won't remember it, but I'm driving them to camp and can't use my phone. By the time I've dropped them off, I forgot already. Then they're upset with me because I forgot their things, and I'm upset with me because I forgot their things.

      All these little things that just add up to make life a little more frustrating and annoying.

      Anyone else with ADHD, have any tips to overcome these? Frustrations of your own to vent? How do you explain to others that it isn't you being careless or lazy, but instead it's your brain working against itself?

      44 votes
    24. Please criticize my idea for CHORES - a short-term TODO app for ADHD people (and myself in particular)

      Introduction I'm a beginner in programming, but a veteran in film and literature. I know that ideas come easy. Any normal person can come up with a good idea in a matter of minutes. The main...

      Introduction

      I'm a beginner in programming, but a veteran in film and literature. I know that ideas come easy. Any normal person can come up with a good idea in a matter of minutes. The main problem is doing it.

      Besides, I couldn't care less if someone does that before me. I'd probably benefit from their program, and even offer to collaborate. I have a bunch of other ideas in the oven anyway.

      And I'm humble enough to know that such a niche project would never attract the interest of a mega-corporation anyway.

      2. What is CHORES?

      CHORES is a short-term task manager. It's meant to organize nothing more than a few hours or less of your tasks. Month, weak or even your entire day are entirely out of its scope.

      3. Who is CHORES for?

      First and foremost, this app is for my use. But I'm certain there are other people with conditions similar to mine, especially ones with ADHD. I'm also autistic with a compulsive personality, and won't stop until I tinker with every aspect of an object. Not surprisingly, I'm a Linux, i3wm, Emacs and Neovim user. And they're excruciatingly customized.

      What I need is not a full-featured a TODO app like Remember The Milk, Todoist or Org Mode. They're too distracting, I end up just playing with the tools. I need something that allows me to track very short term chores. Thinks like brushing my teeth, taking a shower, eating, walking my dog, washing the dishes and making my bed.

      That's what I intend to do.

      4. What is ADHD

      From the United States National Institute of Mental Health:

      Attention-deficit/hyperactivity disorder (ADHD) is a disorder marked by an ongoing pattern of inattention and/or hyperactivity-impulsivity that interferes with functioning or development.

      4.1 Warning

      Please refrain from suggesting that the ones who use such tools just need to make an effort instead. That's a cliche most people with ADHD and other mental health issues probably heard many times, and by saying that you may cause distress. If you need more information, please refer to the link posted above.

      5. Why another "TODO" app?

      People with severe ADHD like myself frequently forget what they're doing, and what they should do in the very short term. I'm talking 2, 3 or 5 tasks from now. To give you an idea of how bad it is, right now I have an Emacs Org Mode file with the following tasks:

      * Now
      ** TODO Take Ritalin
      ** TODO Start chronometer on Ritalin
        - Tells me when the effect wears off
      ** TODO Take a shower
      ** TODO Take the laptop to the living room
      ** TODO Wash the dishes
      ** TODO Study Python
      ** TODO Post on Tildes
      

      But Emacs and Org Mode do a lot more than that, and this can be very distracting (right now I'm writing this post because creating another file from my now.org file was way too easy, for example).

      Considering that I am the main target audience of this program, any space for tinkering is a dangerous avenue for procrastination.

      6. Who is CHORES for

      The primary target of this project are people with:

      1. ADHD (Attention deficit hyperactivity disorder)
      2. similar conditions or personality traits

      In sum: if you have extreme difficulty focusing, remembering and fulfilling your tasks in the very short term, you may find this program useful.

      7. Who is CHORES not for

      The majority of people can concentrate and perform their short-term tasks with a reasonable degree of efficiency. If that is your case, you have little to gain by using CHORES.

      8. Features

      CHORES is a short-term task manager. It's meant to organize nothing more than a few hours: not your month, weak or even your day.

      1. CLI Linux app (Mac, Windows, GUI, and mobile could happen in the future)
      2. Hard limit of ten tasks (with the option to reduce)
      3. Only the very essential configurations available
      • tinkering is a huge time drain for ADHD people
      • because of that, the defaults will have to be extremely sensible.
      1. Started Stopped status clearly marked by character or highlighting

      8.1 What you would be able to do with CHORES:

      1. Add up to ten tasks
      2. Reorder/Start/Stop/Done these tasks
      3. Undo only one operation
      4. See only the last ten completed tasks

      9. Answer to Possible Questions

      9.1 Why Not Keep Using Org Mode? Or maybe Taskwarrior?

      Org Mode and Emacs are wonderful tools, but they're also a perfect playground for procrastinators. It simply does too much. Emacs is like a box of legos, and that's the last thing an ADHD person needs when it comes to tracking short-term tasks.

      Taskwarrior suffers from the same issue.

      9.2 Why Not todo.txt and similar apps?

      This may seem crazy, but for a severe ADHD person, even todo.txt gives way too many options and features. It is, after, an actual TODO app. I can add 1000 tasks todo.txt. It has an extensive wiki, projects, tags, context tags, special value tags. You might just say: just don't use these options. But that

      9.3 Why not use the extremely minimalist t task manager, by Steve Losh?

      I like t very much, and, depending on its license, I'll probably use at least some of its code. But t lacks some features CHORES requires, such as:

      1. Limit task amount
      2. Add tasks to the bottom (t last tasks randomly, or at least something that seem random to me)
      3. Reorder tasks
      4. Undo
      5. Easily view completed tasks
      6. Add Start/Stop status to a task

      9.4 Why not pen and paper?

      This is a very personal anwer, but here we go:

      1. I will lose the paper every 30 minutes
      2. I will lose the pen every 30 minutes
      3. I will forget to look at the paper, it will probably end up crumpled in my pock
      4. Many of my tasks, such as programming and studying, already happen in the computer anyway
      5. One of my medications interferes with my motor skills and my handwriting is hard to understand - even for me
      6. I like computers. The fact that I like computers makes more likely for me to actually look at the tasks.
      7. In the future, I can add alerts. Can't do that with paper
      11 votes