I'm attempting to be more active on Tildes (after my last attempt), and I noticed that there hadn't been a new fortnightly thread, so here's my contribution!

https://tildes.net/~health.mental/1oax/victories_and_challenges_an_a_u_dhd_community_and_support_fortnightly_thread

I'll preface by saying that if this is the wrong place for this, I'm sorry ahead of time. Additionally if I've tagged you and you disapprove, please let me know.

So to the point of discussion... What helps you persevere in the face of adversity and hardship?

Hello tilderers, I have a dilemma I'm having that I'd like perspective on.

I often find myself doing things not because I want to, but because I have to. I feel obligated to. It is better if I do X than if I don't do X, so I should do X, even if I don't want to.

Though overall I don't consider "feeling obligated" a positive nor sustainable emotion to have.

These are often tied to social etiquette and maintaining a status quo at the sacrifice? of your own comfort.

Examples:

You're an introverted so tend to not desire social activity as much, but understand socializing is good for maintaining relationships so you accept invites regardless of whether you have true desire to be out for the person/occasion/event.

You should get a gift for Y because it's their birthday/Christmas because it's an expected, nice gesture but you don't really have a gift in mind or tendency of gift giving.

Z does something nice for you, pays for your dinner/got a gift/done a favor, but was not something you wanted Z to do or asked them to do. Yet now you feel indebted to give back.

General occasions where social and emotional reciprocation is expected and you're not entuned to reciprocate necessarily. And the general consequence of not reciprocating is weakening relationships/negativity from others etc.

Where is the line between doing whatever you feel/comfortable with (selfishness/self centered?) and doing things because you are socially obligated to (caring about what other people think/feel about you).

What is the resolution to negative feelings of obligation?

How can obligation turn to desire?

How does one perspective shift in this way?
You do this not because you have to, because you want to do this.

Welcome to the inaugural thread! It is important to me that this is an inclusive space; and it should evolve to serve the needs of the community.

What is this space?

It is intended as a community space, primarily for those of us with ADHD and/or autism; but it should be open to evolution on what is explicitely encouraged (because all are welcome). It intended as a space to vent about your struggles and challenges in a space where there is implicit understanding of the issues we face with these diagnoses. It is intended as a space to celebrate your achievements and victories with those who understand why those are as meaningful as they are, even the little ones. It is intended as a space to seek support with related issues — like requesting accountability partnering, chunking, rubber-ducking, et cetera. It is a place to post news and articles about ADHD and autism that are of interest to the community. A place for discussion. And a place to be serious and silly together with folks who understand.

All are welcome to participate here. While generally on Tildes I would expect most participants to accept that ADHD and autism and the like are real diagnoses, I would expect those participating here to either have those diagnoses, understand those diagnoses, or if someone wants to learn more, to ask questions here with an open mind — i.e. this is a positive and supportive space.

All are welcome to participate here. Not just those with these diagnoses. The self-diagnosed are welcome. Support is welcome to be sought by those with ADHD-adjacent issues: for example, depression can cause executive function issues such that accountability partnering could be helpful. Feel free to seek such help here.

Your feedback is requested and valued. This community will evolve to fit the needs of those who participate here. What works will be retained; what doesn't work will be dropped. I am your facilitator, not dictator; and while for this first thread I am speaking with my voice, as we evolve things and figure out what works, I will rephrase whatever text that gets posted each time into a passive voice. I just want to reassure you that while I'm taking a leadship position to get the ball rolling here, I will be removing myself from this so it truly is a community space for us all. But to start, you gotta have someone doing the thing. :)

For now, I'll create one top-level reply that requests for support should be posted under. The idea is that it makes it easier for those wishing to volunteer to help can find the requests more easily. We'll see if that works or not.

It is my humble opinion that one should be encourged to post as you wish. If you want to post multiple things in a top level reply that are going on, great. If you want to make two little top level replies about different topics, even on the same day? I think that's also fine. Don't be shy about posting.

I think a fortnightly thread feels about right to start. Too frequent and things can get lost. Too infrequent and the thread might die out before we get a new one. But as with everything else, feedback is desired. By coincidence of when the idea was had, I'm posting this one on a Friday. If you'd prefer a different day, that's feedback that is welcome.

Welcome to your space! Help make this space be what you want it to be. <3

edit: Forgot to post where this came from:

Most recently: https://tildes.net/~health.mental/1oac/proposal_adhd_support_thread_reoccurring

Less recently: https://tildes.net/~life/1o92/how_my_life_changed_with_adhd_medication#comments

That first thread had such a sense of community that I want that to keep going, basically. :)

Top eidt: Thread is four hours old and already seems to have support. I'll create the first actual thread tomorrow. So please, your feedback is desired on anything you'd lke to see in the initial topic text. Also, I'm thinking fortnightly (every two weeks) might be good to start, but feedback will always be desired. Original thread follows:

https://tildes.net/~life/1o92/how_my_life_changed_with_adhd_medication#comments

That thread brought so many with ADHD out of the woodwork.

I wonder if there might be a use for a recurring (weekly? monthly?) thread for ADHD support?

I'd envision it for:

1. Venting
2. Mutual support, i.e. responsibility coaching, i.e. post what you're trying to work on so the rest of us can gently pester (check up on you) to try and help make sure You Did The Thing
3. General discussion as a hub for interesting ADHD-related articles/info/etc

Sort of like an ADHD club on Tildes that might help us all.

I know I am in love with the thread I linked just having so many of us there talking about this stuff. Reading others struggle with the same things I struggle with is comforting; reading others talking about conquering problems is lovely. And I know my "walking thread" is related to this idea - I started it to try and get folks from the community help keep me on track, so maybe that sort of thing would help others, too. (At least for some of us who aren't medicated! But even for medicated folks who could use that support)

So this is intended as a meta thread on the topic to see if the idea might have merit.

I think recurring threads are made manually, so I do volunteer to do that; but if the idea is a go and someone else would prefer to do it, I will certainly bow to that :)

(Also, it's my humble opinion that any autistic-related subjects would be quite welcome - I feel ADHD and autism are sibling diagnoses, even when they don't both apply to one person. Adn for that matter, anyone dealign with ADHD-adjacent issues - like how anxiety can sometimes present with ADHD-like symptoms - the venting and help-with-accomplishing-things should not be limited to JUST adhd folks, but I envision this as primarily and ADHD space that welcomes all. But my vision is up for discussion, IF the idea even has merit)

I was diagnosed as an adult about 5 years ago. I'll spare my life story, but I've spent those five years doing everything I can to give myself an environment where I can achieve my goals, and I have done a great job with that.

Apart from getting meds, I've built a strong task management/journaling system, I've built mental habits that help me overcome anxiety spirals, I've forgiven my ADHD for existing, and I have healthier sleep/diet habits to keep my baseline up.

Lately, though, some new obstacles have come up with the birth of my son (now almost 4mo old). Tbf, I've been aware of these things before, but my son has definitely exacerbated them.

With the attention and care a child requires, my windows to do things are a lot smaller. Sometimes only 20 minutes. This has made things more difficult in a few different ways:

1. For me to start doing a lot of things, even things I am excited to do, I have a "ramp-up" period before I can really dig into it. I think this is basically the time I need to plan, prioritize, and/or remember where I left off before I actually execute.

2. When I know something will inevitably interrupt me, I avoid starting anything because interruptions like, super-duper piss me off. And I don't want to be pissed off.

3. Not really related, but somewhat. In general, I would like to be able to do more in a day. I'd say my peak operating time is 9am-3pm, give or take. Outside these hours, it's a lot harder for me to do anything outside of "shut my brain off" tasks like house chores.

As many with ADHD know, an understimulated brain is unpleasant. And how shitty is it that ADHD also makes it difficult to do the things you find intellectually stimulating?

I hope all this makes sense. I've already accepted that this is my life now, and I'm okay with it. Even still, I would love some practical, actionable advice to help me make the most with what I have. Double points if it doesn't involved upping my Adderall dosage or self-medicating with caffeine. Thanks everyone!

My wife of 3 years just told me last week that we're getting a divorce. It completely blindsided me, as there was no marriage counseling or communication about the marriage having problems from them before this, but I can't say I don't understand at least some of their reasons. They made it clear that there was no fixing things or repairing the relationship. They're leaving no matter what I do.

Other than the suddenness, they seem pretty willing to be amicable and compromise as needed, at least to an extent. We won't be able to properly separate for a while it seems like, though it's hard to predict the exact timeline at this stage. I'm currently planning a too-expensive last-minute flight back to the States to stay with my family for a little while, since I need some distance and they can be a source of comfort.

I can obviously hire and rely on a lawyer for handling the legal side of things (which will be complicated, to say the least), but I'm truly at a loss for how to handle it emotionally. I'm in my late 20s but I've never even been broken up with before this. Go hard or go home, ig. I hope there are others here who have good advice to share for this situation, because I don't know what to do now that the bottom has dropped out of my life like this. It feels like my whole future is gone. I was in a bad depressive episode already and obviously that's not been improved by this.

(Also, if one of our closer mutual online friends who lurks here is finding out this way -- sorry, she owns the Discord server so I can't exactly bring this up there. I welcome DMs from y'all.)

I might be a little early in posting this thread but I am personally beginning to stress a lot about the holidays - have been for like a month, even, to some degree.

So I wanted to make this thread as a safe venting space.

Is there anything specific about the holidays that might affect or trigger you?

How are you?

Feel very free to vent!

Here’s a topic that I would like to hear some opinions (advice) on. I work in a pretty demanding software role. The positives: I am well compensated and I like the work I do. It also helps that I work on a genuinely useful product whose sole purpose is not only to extract profits from the consumer base. I also do not work overtime.

Therefore I am covered on all bases: moral, financial and personal interest. However, for the past year or so my responsibilities have grown, and I have to juggle more and more (both in number of tasks, their complexity & deadlines) during the same period of time (remember, no overtime).

So now I find myself periodically stressed for longer & longer periods of time. I don’t have energy and motivation for my hobbies, and I dread having to engage in anything more intensive than the occasional walk. But I can tell that this state of being is not sustainable for the long term.

To whoever can relate: what are your thoughts?

Edit: some good things that I have going for myself, that help a little; I have a good sleep schedule, I rarely drink, I don’t stay connected to work outside working hours and I have a very supportive partner.

I posted my own thoughts here, TLDR: I am afraid and catastrophizing and thinking very black and white and spiraling quite a bit and I'm not even American.

This is not meant to be another ~news thread.

Please keep discussion in this thread to mental health only.

How are you doing?

What will the impact of this be on your life?

I'm writing this post in the spirit of the powerful conversations that I had participated in on reddit in /r/adhd. I'm giving up reddit, after this recent fiasco. And, so, I hope to find a similar community here.

And, so, here we go.

I recently quit my job in Big Tech after 7 years in that space. Corporate America, and Big Tech in particular (among other fields) is a human meat grinder. Humans go in and husks come out. After taking a medical leave of absence from work due to complications from anxiety, and multiple medical interventions, I realized that I needed to evaluate whether my job, even my career, was sustainable for me. It only took a few weeks, after returning to work, to accept that, yes, this job and perhaps this career are actively harming me. After talking about it with my wife, at length, I found relief in quitting.

At the core of it: my career has simply been incongruent with my values.

Sure, I've always been a nerd. I was the "brainy" kid. I didn't know how to people well (though I'm told that I'm not on the spectrum or not in any meaningful way). I'd always been overweight and prone to stress. Throughout my life, I was often labeled as the "sensitive" one by people. I rarely felt as though I fit in with any group of people, save perhaps for the other misfits who would band together because they didn't with in with any group of people.

Just before the pandemic began, at the tender age of 47, I was diagnosed with ADHD Combined type. More recently, I was diagnosed with C-PTSD, that I have likely suffered for 40 of my 50 years.

Now I know where that weight comes from: self-medication to give me a dopamine hit and numb me to layers of trauma. I also know where the emotional reactivity comes from: emotional flashbacks resulting from the C-PTSD.

1. Lexapro for well over a decade. It helped to blunt the lows but, I've found, also the highs. I rarely feel poignancy with Lexapro. When I have occasionally been able to ween from it, I have felt a far greater range of emotions.
2. I've had an excellent therapist for going on 8 years who practices ISTDP. He's helped me learn to show up for my more challenging emotions instead of instantly reaching to numb them.
3. Adderall and Vyvanse both used to help until I received a stellate ganglion block (Disclaimer: I have been a client of Dr Mulvaney's practice though I link to it as his explanation is excellent; I'd make this a footnote alas tildes doesn't support that extension for markdown)
4. Ketamine (prescribed) to better address the depression and anxiety. Ketamine, as a psychedelic, combined with the skills learned in therapy has let me dig deeper into my layers of trauma, leading to better overall mental health and better self-understanding.
5. Stellate Ganglion Block mentioned above. Short version: it reduced my seemingly PTSD-driven emotional reactivity to about 10% of what it was prior to the SGB. It's like getting a new nervous system. Unexpected side effect: medications that act on my nervous system now respond differently. As a result, stimulants are now extremely uncomfortable for me whereas before they were effective. Before the SGB, I would say that fear was my primary emotion. Now, I feel things.

I know: I'm privileged. I'm an "old white dude who profited from being in Tech". Yep. True. But I can't retire yet; we don't have that kind of money. We do, however, have enough such that I have the luxury of time to figure out my next steps.

What I have right now is the plan to make a plan. The core of it: live a life congruent with my values--not just at some far off retirement but here, now.

At first, step 1 was to answer this question: "What is the minimum amount of money that I need to earn for us to not massively disrupt our lives?" But then I realized that this is a fear-based question. It means starting out by saying "no" to everything that doesn't earn "enough" money for some arbitrary value of enough.

Where I'm at now, Step 1 Mark II, poses a more inspiring question: "What does retirement look like for my wife and I?" I don't know that we truly get to retire in the sense of living a life of leisure as seemingly many Boomers and earlier were privileged to do. Besides, part of my sense of accomplishment and peace is knowing that I did something to make the world better.

So what do you struggle with?
How are you doing?
What are you doing about it?

Be well.

P.S. This is me trying to do my part, as a new member of this community, to encourage growth not in membership but into different areas of discussion.

One of the communities on reddit that I greatly benefited from was /r/migraine. It was helpful to have a space to talk about common symptoms, experiences, and the various treatment options out there. Wondering if anyone here also experiences migraines & might be interested in a support-ish type discussion thread? I'll post a bit about my personal experience in a separate comment.

(Also -- this is my first post here, so please feel free to let me know if I've tagged this incorrectly or made some other newbie mistake. Thanks!!)